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Author Topic: Moving house when on home haemodialysis  (Read 2701 times)
Sugarlump
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10 years on and off dialysis

« on: December 08, 2014, 09:27:38 AM »

We are about to start home haemo in January and they (the powers that be) are making noises about not moving house for 3 years?
Anyone else had experience of this or actually moved whilst on home haemo?
I couldn't possibly say whether or not I will move house in the next few years...who knows?
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cassandra
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When all else fails run in circles, shout loudly

« Reply #1 on: December 08, 2014, 10:02:36 AM »

They told me that too when I was thinking of starting home hemo with Fresenius. Mainly (I thought) because of the money 'they' invest in the necessary changes in the house. But with Nxstage that's not needed. So I'd check if that's true for Nxstage too.

NB January!!!! Girl

        :yahoo;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
Sugarlump
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10 years on and off dialysis

« Reply #2 on: December 08, 2014, 11:57:38 AM »

If it's possible I might move next year if we have enough money and can find the right house that is suited to my mobility issues but
I am NOT putting off home haemo until then. I so much prefer Drew needling me and taking care of me (he does it better than the nurses) and
for last two weeks we have been doing haemo in our own little room, with nurses about if we have a problem, otherwise we just get on with it.
Being in control is quite a heady feeling (well Drew is in control mainly) but we have a very strong partnership that has weathered a lot of storms
and makes us very close.  :cuddle;

If necessary we would have to pay them to move the machine!!! or move to a different health authority!

@Cassie Baxter are bringing out a new portable machine similar to the NX stage, now about to trial it in various hospitals...if only it were ours!!!!
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cassandra
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When all else fails run in circles, shout loudly

« Reply #3 on: December 08, 2014, 02:15:30 PM »

I so hope you'll find a solution. And I'm happy for you how far you've come in the end. I'll check over here how it works with moving with Nxstage, Maybe you could find out where Baxter is doing the trials?

Lots of luck, lots of love, Cas
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
Sugarlump
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10 years on and off dialysis

« Reply #4 on: December 09, 2014, 05:47:51 AM »

The Baxter bloke that I have "befriended" said to keep watching their website for a list of hospitals!!!!
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Rerun
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Going through life tied to a chair!

« Reply #5 on: December 09, 2014, 07:00:18 AM »

I thought they want us to LIVE A NORMAL life....

       :urcrazy;
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Sugarlump
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10 years on and off dialysis

« Reply #6 on: December 10, 2014, 12:43:14 PM »

ha ha ha!!!!
Only if it suits them and their purses....... :rofl;

psst. Didn't you know dialysis patients aren't supposed to go on holiday, attend weddings or funerals or move house. It's too inconvenient for them!!!!
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
JW77
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« Reply #7 on: January 17, 2015, 11:03:34 AM »

I might, be facing this later this year... If I can sort out training on the new machine I'll need to learn (either Fresenius or Nxstage, together with my partner). AND we can find somewhere suitable to rent.  I'll get some help from family, but they, especially my mother,  have better ideas on what's 'best for me'. Which causes me stress!

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Medical stuff, includes 3 kidneys, cancer, meningitis, 1 heart attack and its long and not that interesting! Maybe one day I'll write a book.! `

I have an eclectic taste in music, I fly kites, I read, write, tog, blog and have a bit of a passion for multicellular eukaryotes, and kites.

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