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Author Topic: My pre-dialysis-days have finally come to an end...  (Read 77867 times)
kristina
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« Reply #25 on: December 06, 2014, 01:18:14 PM »
Thank you obsidianom for your very kind humanitarian thoughts.
It is so good for me to know that I can come here with any questions I may have
and it is so sweet of you to offer your kind assistance.
Thanks again from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
galvo
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« Reply #26 on: December 06, 2014, 08:10:22 PM »
I thoroughly support obsidianom, kristina. I've got over 5 years up and am happy to add my two-bobs worth where necessary!
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Galvo
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« Reply #27 on: December 06, 2014, 11:27:30 PM »
kristina,
Hope your journey into dialysis will make you feel well and strong! Already you sound emotionally strong, hopefully dialysis will make you feel physically stronger, too!
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
kristina
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« Reply #28 on: December 07, 2014, 03:34:40 AM »

Thanks again galvo and PrimeTimer for your very kind emotional support.
It is very much appreciated and it is so good for me to know where to come with my questions...
Thanks again from Kristina.
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
obsidianom
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« Reply #29 on: December 07, 2014, 07:55:19 AM »
Kristina you are very important to all of us here.
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My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
kristina
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« Reply #30 on: December 07, 2014, 02:05:42 PM »
Thank you obsidianom for your kind reassurance...
... I wish I could be a little less nervous about the event...
Best wishes and thanks again from Kristina.
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
kristina
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« Reply #31 on: December 09, 2014, 03:03:34 AM »
... In a strange sort of way my life would come to an end right now,
but with the help of modern medicine, determined medics and regular dialysis
and the genius of the inventor of dialysis, Willem Johan Kolff,
I am given another chance to continue with my life and perhaps even with my career ...
(if I continue to take great care of myself and keep an eye on my strict vegetarian very healthy diet...)
... a very strange and a very eerie thought..
...and it makes me feel very humble indeed...  :grouphug;
« Last Edit: December 09, 2014, 03:37:50 AM by kristina » Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
amanda100wilson
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« Reply #32 on: December 09, 2014, 10:30:13 AM »
I know that feeling, Kristina.  I have had nearly 26 years on bonus days because of dialysis and transplantation.  Made me take on challenges that I probably wouldn't have done otherwise and an appreciation of life that I don't think healthy people probably don't understand.
Logged
ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
kristina
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« Reply #33 on: December 09, 2014, 01:14:08 PM »
Thank you Amanda,
I shall do my utmost best to achieve many bonus days & bonus years as well.
Thanks again from Kristina.
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
kristina
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« Reply #34 on: December 09, 2014, 02:47:08 PM »
... and thank you JW77 for arranging this telephone call !
It was like medicine to actually talk so someone who has been there and seen it and it was extremely helpful!
Thanks again from Kristina.
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
kristina
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« Reply #35 on: December 10, 2014, 01:53:23 PM »
Thank you all very much for your good wishes and for kindly keeping your fingers crossed .
I had my cath "put in" my chest today and everything went extremely well and I am very pleased.
It still feels a little sore, but that is all and I am now mainly recovering from the mental strain of anticipation...
... and I shall be able to start dialysis within the next few days.
Thank you all very much again; it is so good to be able to come here and exchange our experiences...
Best wishes and thanks again from Kristina.
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
MooseMom
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« Reply #36 on: December 10, 2014, 02:56:04 PM »
Was it true for you, that the anticipation was worse than the experience itself? 

I am so glad the cath insertion went well.  I am greatly relieved.  Thanks so much for telling us, and please do keep us updated once dialysis starts.  I have great hopes for your future!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
kristina
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« Reply #37 on: December 11, 2014, 02:24:13 AM »
Hello MooseMum,
Yes, it is true, the anticipation was much worse than the actual event.
I also feel very lucky that I came across a most professional and very kind-minded nephrologist
who specializes in these chest-op's and he involved me at the same time in a most interesting literary discussion.
I hardly noticed anything of the operation itself and our interesting talk made me concentrate on what we were discussing...
... I feel very lucky because I was at the right time at the right place and came across a most professional medical team...
... and I very much hope that my good luck continues a little longer and I come across a good dialysis centre as well...
... and hopefully there won't be any drug-intolerances or allergies or problems with "my" photosensitivity
...and hopefully my body is going to be able to take dialysis...
Thanks again from Kristina.
« Last Edit: December 11, 2014, 02:32:54 AM by kristina » Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
obsidianom
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« Reply #38 on: December 11, 2014, 08:31:11 AM »
Quote from: kristina on December 11, 2014, 02:24:13 AM
Hello MooseMum,
Yes, it is true, the anticipation was much worse than the actual event.
I also feel very lucky that I came across a most professional and very kind-minded nephrologist
who specializes in these chest-op's and he involved me at the same time in a most interesting literary discussion.
I hardly noticed anything of the operation itself and our interesting talk made me concentrate on what we were discussing...
... I feel very lucky because I was at the right time at the right place and came across a most professional medical team...
... and I very much hope that my good luck continues a little longer and I come across a good dialysis centre as well...
... and hopefully there won't be any drug-intolerances or allergies or problems with "my" photosensitivity
...and hopefully my body is going to be able to take dialysis...
Thanks again from Kristina.
Kristina, if you do have any problems with dilaysis, bring them here to us. I can help you figure things out. The good news is that there arent really any medications involved. Its just a matter of the speed and fluid removal . Do you still urinate ?  That makes a huge differance.
We are here for you.
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My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
MooseMom
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« Reply #39 on: December 11, 2014, 10:32:49 AM »
Kristina, I am so pleased that you are happy with your medical team.  You know what difference that makes!!

Any news on the transplant front?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
kristina
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« Reply #40 on: December 12, 2014, 03:57:41 AM »
Thank you for your kind concerns, obsidianom and MooseMum
I don't know any news about my transplant yet, because my body has to get much stronger first
and my understanding is that this is going to happen through my oncoming sessions of dialysis...
...  fortunately I don't have any direct ESRF-problems showing "loudly" yet, things and my body-functions are "still in place"...
... The only symptoms of ESRF showing is the (very bad) water-retention in my feet... and I have swollen eye-lids ...
 ... and I am extremely exhausted and feel really dead-tired at all times...
Thanks again from Kristina
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Jean
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« Reply #41 on: December 12, 2014, 01:49:31 PM »
Kristina, my computer was in the garage and I had no idea you were " that" close. But, even without me, you did well, just as we all knew you would. You are one great role model and I am so glad things went well for you.    :cuddle;
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One day at a time, thats all I can do.
MaryJoe
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« Reply #42 on: December 12, 2014, 05:53:47 PM »
Kristina, I'm hapy to hear your catheter placement went well, and that you are so happy with your medical team. Hoping dialysis removes the extra fluid and relieves the swelling in your feet and eyelids, and improves your strength and energy level quickly.
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
Rerun
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Going through life tied to a chair!
« Reply #43 on: December 13, 2014, 03:34:25 AM »
Okay... today is the BIG day.  You will be fine.  Take a blanket or two.  Wear a shirt that buttons down the front so they can get to your chest catheter.  Take a small water and a snack if they let you eat at your center.  Only ask a few questions a day!  At least with a catheter you don't have to deal with needles at first. 

You got this!

                       :yahoo; 
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kristina
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« Reply #44 on: December 13, 2014, 02:42:44 PM »

Hello again and thanks again for your kind thoughts.
Today I had my very first 70 minutes of dialysis and I am pleasantly surprised.
The nurses were very kind and they looked after me, explained everything and brought me coffee, biscuits and sandwiches .
I do hope my good luck continues...
...Strangely enough, my life would come to an end right now, but with the help of dialysis it can continue...
... and I am very grateful to be given this chance...
During the dialysis I did a few crosswords and noticed that dialysis is a very new routine I need to get used to.
Rerun, many thanks for remembering that it was my BIG day today !
It went surprisingly well and I thank you again for your kind thoughts.
Kind regards and best wishes from Kristina. :grouphug;
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
cassandra
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When all else fails run in circles, shout loudly
« Reply #45 on: December 13, 2014, 04:57:34 PM »
Now THAT'S great to hear! Thanx for the update.

Love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Zach
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"Still crazy after all these years."
« Reply #46 on: December 13, 2014, 07:21:45 PM »
Dear Kristina,

Just know you are not alone on your new journey with hemodialysis.
We will be here to help you along.

Love and luck,

--Zach
 8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
kristina
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« Reply #47 on: December 14, 2014, 03:31:46 AM »
Thank you very much again.
It is quite a new journey and today I feel very exhausted and relieved
from my initial fear and anticipation...
Thanks again from Kristina. :grouphug;
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
galvo
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« Reply #48 on: December 14, 2014, 09:25:11 PM »
So glad it went well. There will be a few ups and downs, but nothing you won't be able to handle. Kind thoughts to you.
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Galvo
kristina
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« Reply #49 on: December 15, 2014, 09:50:03 AM »
Thank you galvo for your kind thoughts.
My ups and downs have already started and I am on a bumpy road right now,
but I feel very lucky that I can share my experiences and continue to ask my questions here.
That makes a difficult situation so much easier to get sorted ...
It is very much appreciated and thanks again from Kristina.
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
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