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Author Topic: My story made into a fundraising video for my hospital.  (Read 3228 times)
monrein
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Might as well smile
« on: November 10, 2014, 12:56:27 PM »
This is a fundraising video that was made by my hospital and nephrologist and targets people who have made significant donations in the past. Please do not think that I am posting it here in order to solicit from any of you here at IHD...I am not. I merely thought that it might be of interest since I started this whole business with dialysis way back in 1980 and am now on my second transplant...6 years total of dialysis and 29 years total of transplant...23 years with one and now almost 6 years with the second. I think they did a nice job of capturing my garden, parts of it anyway.

https://www.youtube.com/watch?v=9YoHnA6jqIQ
« Last Edit: November 10, 2014, 12:57:37 PM by monrein » Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MooseMom
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« Reply #1 on: November 10, 2014, 01:22:47 PM »
Apart from being impressed with your story about dialysis/transplantation, I was delighted to get to see more of your garden AND to get to see/hear your husband.  It was also nice to get to hear your voice; it has been a long time since we met in Vegas!

Thanks for posting this!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #2 on: November 10, 2014, 01:37:46 PM »
How beautiful! I loved seeing your stunning garden! Thanks for sharing!

 :cuddle;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
jeannea
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« Reply #3 on: November 10, 2014, 03:05:32 PM »
Good for you for sharing your story!
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SooMK
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« Reply #4 on: November 10, 2014, 05:12:38 PM »
This is just beautiful. Your garden is magnificent. So nicely done. Thanks for sharing this.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
del
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del and willowtreewren meet
« Reply #5 on: November 10, 2014, 06:26:17 PM »
Thanks for sharing.  Your garden is absolutely gorgeous and what a great way to raise funds.
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Don't take your organs to heaven.  Heaven knows we need them here.
Zach
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"Still crazy after all these years."
« Reply #6 on: November 10, 2014, 07:16:06 PM »
Wonderful video!

Love to you and yours,
--Zach
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
iolaire
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« Reply #7 on: November 11, 2014, 06:15:29 AM »
Good video, I like that its entirely narrated by your husband, doctor and yourself.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
cassandra
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When all else fails run in circles, shout loudly
« Reply #8 on: November 15, 2014, 08:41:51 AM »
Real nice, and a gorgeous garden, and great to see you, and your husband in the flesh

Keep well and lots of love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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