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Author Topic: new to i hate dialysis  (Read 2268 times)
skinnacat
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« on: October 18, 2014, 06:57:46 PM »
my name is tammy and i am 42 years old and i am approaching dialysis
i have a rare autoimmune disease that involves my thyroid gland and the antibodys from
that are attacking my kidneys filters and destroying my kidneys
i have had this disease scince i was 23 years old and really seems like all my life
i am in stage 5 right now will a creatinine level of 5.1...i dont feel that sick ..all my labs are normal except the bun, creatinine and gluclose
i am married and have twin autistic boys that just turned 17 years old...its alot to deal with and some days seems impossible for me
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cassandra
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When all else fails run in circles, shout loudly
« Reply #1 on: October 19, 2014, 09:46:58 AM »
Welcome to the site skinnacat


          :welcomesign;

Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
MaryJoe
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« Reply #2 on: October 19, 2014, 09:53:00 AM »
 :waving;  Welcome to IHD skinnacat! Sounds like you have a full plate to deal with. Let us know how we can help.
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
Jean
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« Reply #3 on: October 19, 2014, 02:40:29 PM »
WOW, you do have a full plate to deal with. But, dont be afraid, we are all in the same boat, so ask away!!
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One day at a time, thats all I can do.
skinnacat
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« Reply #4 on: October 19, 2014, 05:00:48 PM »
ya its been pretty full for as long as i can remember...but i have learned that i can deal with whatever comes my way
so i am trying to be strong in all  this but there are days that i feel very overwelmed...the other sad part to this is my mom
died of cancer not even 2 years ago and not being able to talk to her about this is really hard..she was only 56 years old
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PrimeTimer
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« Reply #5 on: October 19, 2014, 05:14:14 PM »
Welcome, skinnacat! I'm not the one on dialysis (my husband has Stage 5 ESRD) but I am always shocked and amazed at what people with kidney failure go through and how they deal with it. I can relate a little tho..I help my husband do home-hemo, I have an autistic nephew and lost my mother a year ago. This site has been very helpful so I hope it does you some good, too.
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Gerald Lively
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« Reply #6 on: October 19, 2014, 11:52:00 PM »
Dear Skinnacat:
Next time you see your doctor ask them about your immunoglobulin levels. Your blood tests should already have it listed.  Low levels suppress the immune system, raises hell with the kidneys, can cause asthma like symptoms and is often overlooked.
I went through five doctors before this came to my attention and already I'm seeing results.
Dialysis; for the best comfort, learn how to calculate the water removal.
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Hodgkin's Lymphoma - 1993
Prostate Cancer - 1994
Gall Bladder - 1995
Prostate Cancer return - 2000
Radiated Prostate 
Cataract Surgery 2010
Hodgkin's Lymphoma return - 2011 - Chemo
Renal Failure - 2011
Renal Function returned after eight months of dialysis - 2012
Hodgkin's Lymphoma returned 2012 - Lifetime Chemo


Human hopes and human creeds
have their roots in human needs.

                          Eugene Fitch Ware
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