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Author Topic: Hello from Australia  (Read 3126 times)
Hendo
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« on: June 30, 2014, 07:00:08 AM »

Hello All

It is nice to read so many stories and experiences about CKD, dialysis and Transplant.

My story spans over Tome - I'm sure i will post later more detail but by way of introduction........

I was diagnosed with Reflux Nephropathy when I was about 12. We lived in a country town and had to visit Melbourne to see the specialist. I remember some tests (some smile and easy, some not simple and easy) and many dietary requirements and restrictions.

I had a fistula created in April 1999 and started HD in September that year. I don't recall feeling worse over time but looking back - HD did make some difference.

I transplanted on 1st December 1999 and received the donor kidney from my Dad. I know now just how lucky I was!

Apart from minor bouts of rejection at different times, countered by changes in medication, all has been well.

I am married with 3 of the most amazing children ever. I am a  qualified teacher, now running my own tuition business and working with a local realestate agent.

About 18 months ago things started to change of my kidney functioning again began to decline. The medications made little difference and I have again reached stage 5 renal failure.i eGFR is back down to 14 and monthly visits to the Nephrologist are keeping regression slowing.

I love toy golf, am involved in the local football club, enjoy paying its my kids and taking holidays (anyone who doesn't). Last year we went on a south pacific cruise and managed to take the kids to Disneyland California and also Fiji. Tried to fit a bit in before things changed too much with my health.

I am looking forward to reading many more stories and experiences and whilst I understand things are different for everyone, am quite interested in the whole discussion about early start / late start dialysis.

Thanks for taking the time to read through my introduction. You'll find I am honest and open, will contribute where possible and ask when needed.
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Hendo

1992 - age 12 Diagnosed Reflux Nephropathy
1999 - HD 8 weeks
1999 - Dec 1st Live Donor Transplant
2005 - Nov Total right Hip Replacement
2014 - May stage 5 Renal Failur
Ninanna
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« Reply #1 on: June 30, 2014, 07:35:51 AM »

Hi Hendo and welcome to the site!  Post often and I look forward to getting to know you. :)
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Spring 2006 - Diagnosed with IgA nephropathy
June 2013 - Listed on transplant list
Feb 4th 2014 - Kidney and bone marrow tx (both from my mother) as part of a clinical trial at Hopkins
Darthvadar
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« Reply #2 on: June 30, 2014, 11:52:18 AM »

 :welcomesign; to IHD, Hendo....

You'll find that we're a friendly, helpful, and knowledgeable bunch, who are happy to share experiences....

Visit and post often....

Darth, Moderator...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
cassandra
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When all else fails run in circles, shout loudly

« Reply #3 on: July 02, 2014, 02:34:35 PM »

Welcome to the site Hendo

     :welcomesign;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Poppylicious
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WWW
« Reply #4 on: July 05, 2014, 03:57:34 AM »

Hello Hendo ...  :welcomesign; to ihd.com!

It's wonderful that your dad's kidney has given you nearly fifteen years of living such a fabulous life, but not so wonderful that you're now heading back to dialysis.  Here's hoping for another transplant in your near future!

Looking forward to getting to know you better.

Poppylicious, Moderator
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
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