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Author Topic: Question About Urea And The Smell Of  (Read 10224 times)
PrimeTimer
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« on: June 29, 2014, 11:45:14 AM »

Question:  We usually will smell urea draining from the waste line during treatments. We know that's good because it means urea is being removed but what if you don't smell it or the smell isn't as strong? Is that good or bad? 
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Pod99966
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« Reply #1 on: June 29, 2014, 01:17:59 PM »

You have to remember that it is being mixed with distillate as it drains, so the smell shouldn't be strong.
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PrimeTimer
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« Reply #2 on: June 29, 2014, 09:54:23 PM »

You have to remember that it is being mixed with distillate as it drains, so the smell shouldn't be strong.
He's been doing home hemo for 6 months and there is usually a strong smell of urea but lately, not so much. Just wondering if this is a sign of something. We haven't changed his volume or treatment time.
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
cassandra
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When all else fails run in circles, shout loudly

« Reply #3 on: June 29, 2014, 10:35:34 PM »

I find the smell depends a lt on how clean the drain from the machine is too?
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
PrimeTimer
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« Reply #4 on: June 29, 2014, 11:06:08 PM »

I find the smell depends a lt on how clean the drain from the machine is too?
You might be on to something there...I've been flushing the drain line more frequently with bleach.
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
cassandra
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When all else fails run in circles, shout loudly

« Reply #5 on: June 30, 2014, 12:36:41 AM »

Well there you go than:

"Some bleach a day keeps the pee smell away"


       :yahoo;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
cassandra
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Posts: 4974


When all else fails run in circles, shout loudly

« Reply #6 on: June 30, 2014, 12:40:59 AM »

Well there you go than:

"Some bleach a day keeps the pee smell away"


       :yahoo;


Take care, Cas
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
PrimeTimer
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« Reply #7 on: June 30, 2014, 11:47:11 PM »

Well there you go than:

"Some bleach a day keeps the pee smell away"


       :yahoo;


Take care, Cas
I wish they could invent some sort of "scented" filter for the waste to pass thru. Ahh, cinnamon, lavender, rose petals, orange slices...raspberry, lemon...
Logged

Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
cassandra
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When all else fails run in circles, shout loudly

« Reply #8 on: July 01, 2014, 12:15:21 AM »



      :rofl;
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
PrimeTimer
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« Reply #9 on: July 01, 2014, 08:02:23 PM »

No, seriously. I really wish they could invent a scented filter but not like those things that hang in the toilet bowl. How about little scented tablets that could be loaded into the drain line prior to treatment?  "Honey, what scent do you want to go with tonite? Cinnamon, lavender, green apples? Ooh...how 'bout lemon???" Knowing my husband, he'd probably choose "new car smell".   :sarcasm;

 
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
obsidianom
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« Reply #10 on: July 02, 2014, 02:21:31 AM »

I still drain into a bucket all spring and summer so I can use the dialysate for fertolizer for my fruit trees. It does smell but the trees love it.
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My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
Speedy1wrc
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« Reply #11 on: July 02, 2014, 07:32:57 AM »

I drain onto a utility basin in the basement. During treatment I am told it's pretty bad. It smells for awhile afterwards too. I keep a jug of bleach nearby and dump a splash in it every so often.

I actually figured out a way to flush the drain line every treatment. Save the little double female adapter in a syringe wrapper and after treatment use it to connect the saline line to the drain line. Open the clamps and let the left over saline drain and flush the line. It works.
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Pod99966
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« Reply #12 on: July 02, 2014, 08:39:56 AM »

I actually figured out a way to flush the drain line every treatment. Save the little double female adapter in a syringe wrapper and after treatment use it to connect the saline line to the drain line. Open the clamps and let the left over saline drain and flush the line. It works.

Are you talking about the saline line with the white clamp?
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Speedy1wrc
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« Reply #13 on: July 02, 2014, 09:25:40 AM »

Yes. I run the white line from the saline bag through the double connector into the yellow drain line on the Pureflow. It's maybe a 300 ml flush every treatment.
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cassandra
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When all else fails run in circles, shout loudly

« Reply #14 on: July 02, 2014, 10:23:27 AM »

I'll try that thanx. I'm using the 60 ml syringe that you get with the 'conductivity clean-out kit' sorry forgot the name, with diluted bleach to flush in between sacks
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
amanda100wilson
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« Reply #15 on: July 02, 2014, 02:58:18 PM »

I stopped using the black waste line other than during prime and drain.  I attach my yellow line from the cartridge to a disposable waste line.  That way only clean dialysate without the body waste product goes through the black line.  Saves all the bleaching.
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
Speedy1wrc
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« Reply #16 on: July 02, 2014, 06:35:10 PM »

My drain runs through the floor to the basement, so a disposable line wouldn't work.

I keep a spray bottle of 10:1 bleach in my supply cabinet. Once a week I inject 60 ml in the drain line during prime so by the time the machine is ready it can be flushed out. Not so bad.
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PrimeTimer
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« Reply #17 on: July 02, 2014, 07:59:41 PM »

Anybody ever have their pet chew up a disposable waste line? I would much rather be able to use the yellow disposable waste lines because they aren't as cumbersome to deal with compared to the heavy duty black line but, would sure hate to have our cat (who isn't declawed) chew it up or poke holes in it while a batch is being made in the nite. Otherwise, during treatment, dear kitty is put on lockdown in the bedroom where he naps for 4 hours.
At nite however, he is free to roam the place and luckily, has never snuck out like we did as teenagers.  :shy;
Logged

Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Pod99966
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« Reply #18 on: July 02, 2014, 09:22:13 PM »

Yes. I run the white line from the saline bag through the double connector into the yellow drain line on the Pureflow. It's maybe a 300 ml flush every treatment.

I think I tried that once and the line with the white clamp is so small it took forever to drain. I guess it you just hooked it up and walked away for a while it might be ok.
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Speedy1wrc
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« Reply #19 on: July 03, 2014, 08:18:58 PM »

Most of the time it drqins in a minute or so. Every so often though it refuses.
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drawingdami
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« Reply #20 on: August 06, 2014, 08:41:06 AM »

Black lines? Mixtures? Smells? What is this magic you all speak of?

Here in NYC, you can ONLY use the pre mix dialysate bags  with your NxStage. I guess because most of us live in little apartments and rent, landlords are not willing to make any modifications to the bathrooms or anything. Aside from having an ENORMOUS amount of supplies taking over the apartment, it is all pretty simple.  You only get yellow drain lines when you use the pre-mix, and I just throw it out when treatment is over. I NEVER KNEW THERE WAS A SMELL! I smell absolutely nothing, and neither do my roommates.

So what kind of set up is required if you don't use premix bags?
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Transplant 03/7/97, 15th year coming up, but ol' guy is winding down....
Chest catheter re-inserted 3/27/12 (happy b-day to ME??)
Re-started hemo dialysis 3/31/12
Started NxStage home dialysis training 4/2/12
arm fistula placed 4/4/12
Awaiting cadaver donation since 3/12

-------------------------------------------------------------------------------------------------------
"Beware of Dragons,
 For Ye be Crunchy and Good with Ketchup."
obsidianom
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« Reply #21 on: August 06, 2014, 08:59:01 AM »

Black lines? Mixtures? Smells? What is this magic you all speak of?

Here in NYC, you can ONLY use the pre mix dialysate bags  with your NxStage. I guess because most of us live in little apartments and rent, landlords are not willing to make any modifications to the bathrooms or anything. Aside from having an ENORMOUS amount of supplies taking over the apartment, it is all pretty simple.  You only get yellow drain lines when you use the pre-mix, and I just throw it out when treatment is over. I NEVER KNEW THERE WAS A SMELL! I smell absolutely nothing, and neither do my roommates.

So what kind of set up is required if you don't use premix bags?
Pueflow really doesnt use any modifications. WE just stick the drain line in the kitchen sink. You can use that or any sink or toilet or even a bucket. The water line needs to hook up to the cold water line but that is no big deal . No plumbing modifications are needed. It is MUCH easier to use then bags and needs a LOT less storage space.
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My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
amanda100wilson
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« Reply #22 on: August 10, 2014, 09:39:46 AM »

PrimeTimer, when you are making or draining a batch it goes through the black waste line, only the drain from the treatment goes through disposable line.  This means only non-biological fluid goes through black line, so no smell.
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
PrimeTimer
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« Reply #23 on: August 10, 2014, 02:31:55 PM »

PrimeTimer, when you are making or draining a batch it goes through the black waste line, only the drain from the treatment goes through disposable line.  This means only non-biological fluid goes through black line, so no smell.

Thanks, that is very good to know. I am tempted to ask the Neph to make the yellow disposable wastelines part of my husband's monthly prescription. That way I could just use the black waste line for making/draining a batch. We do have a box of the yellows on-hand and I've used a couple of them during treatment but if we want to regularly receive them as monthly supplies, I was told that the Neph would have to write a prescription for it. Meanwhile, I've gotten into the habit of injecting a little bleach down the black waste line once a week after treatment and that works.   
Logged

Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
obsidianom
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« Reply #24 on: August 12, 2014, 05:57:35 AM »

PrimeTimer, when you are making or draining a batch it goes through the black waste line, only the drain from the treatment goes through disposable line.  This means only non-biological fluid goes through black line, so no smell.

Thanks, that is very good to know. I am tempted to ask the Neph to make the yellow disposable wastelines part of my husband's monthly prescription. That way I could just use the black waste line for making/draining a batch. We do have a box of the yellows on-hand and I've used a couple of them during treatment but if we want to regularly receive them as monthly supplies, I was told that the Neph would have to write a prescription for it. Meanwhile, I've gotten into the habit of injecting a little bleach down the black waste line once a week after treatment and that works.
Weekly bleach is recommended for the black waste line. That is what we do and it doesnt smell at all. It also keeps it open better so it wont clog.
Logged

My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
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