I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
April 25, 2024, 09:44:33 PM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Introduction
| |-+  Introduce Yourself
| | |-+  introduction		 0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: introduction  (Read 4677 times)
jazzthaaagawjus
Newbie
*
Offline Offline

Gender: Female
Posts: 5
« on: June 01, 2014, 10:22:02 PM »
Hi everyone

thanks for letting me join. My names jazz and im 18 years old, ive recently been diagnosed with polycystic kidneys with countless amounts of cysts of each kidney,  my gfr is 40 and I thought I'd join up by reading about what I have to expect in the near future.

Thanks!
Logged
:) be happy
Darthvadar
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2815
« Reply #1 on: June 02, 2014, 01:47:37 AM »
Hello Jazz....

 :welcomesign; to IHD.... Glad to have you....

Please feel free to ask for any information you need... We're a friendly bunch, and are always happy to share our experiences of dialysis... The good, the bad, and the ugly...

Hope to see you visiting and posting often....

Darth, Moderator...
Logged
Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
cassandra
Elite Member
*****
Offline Offline

Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly
« Reply #2 on: June 02, 2014, 02:51:59 AM »
Welcome to the site Jazz

    : :welcomesign;


I hope D is still a long way of yet.

Take care, Cas
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
jazzthaaagawjus
Newbie
*
Offline Offline

Gender: Female
Posts: 5
« Reply #3 on: June 02, 2014, 07:09:07 AM »
Hi to both of you, thank you for making me feel welcome! I hope the dialysis will be a very long time away also! Just wanted to prepare myself for what might happen, also my dad has polycystic kidneys too and will be starting dialysis soon so its nice to know there's lots of advice here from everyone:)
Logged
:) be happy
Joe
Elite Member
*****
Offline Offline

Gender: Male
Posts: 1166
« Reply #4 on: June 02, 2014, 10:57:42 AM »
Welcome to the site Jazz. I think you will find a lot of background about this disease here. Happy reading.
Logged
Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
goofball
Jr. Member
**
Offline Offline

Gender: Female
Posts: 68
« Reply #5 on: June 02, 2014, 11:56:40 AM »
Hi jazz,

Your kidney function might remain stable with just a gentle downward slope for years before you notice anything.  Make sure to take your BP medication if you have some prescribed.  Enjoy the many years of health that lie ahead!
Logged
APKD - 47yr-old

Renal Diet Chef
jazzthaaagawjus
Newbie
*
Offline Offline

Gender: Female
Posts: 5
« Reply #6 on: June 02, 2014, 10:14:17 PM »
Hi goofball

I hope so too, my doctor hasn't really given me much information about this, so I'm just a bit curious, as you have polycystic kidney disease also what were the first signs that you knew you needed to go on dialysis? Like what symptoms to look out for?

thanks!
Logged
:) be happy
Bambino_Bear
Full Member
***
Offline Offline

Gender: Female
Posts: 285


WWW
« Reply #7 on: June 02, 2014, 11:55:14 PM »
 :welcomesign; Jazz!
Logged
I am a caregiver to my wonderful husband,  He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
He had a transplant in November 2019.
Simon Dog
Administrator/Owner
Elite Member
*****
Offline Offline

Gender: Male
Posts: 3460
« Reply #8 on: June 03, 2014, 01:12:04 PM »
My signs when I first went on PD were all in lab tests, but when I had my residual drop off and PD wasn't enough, the main symptom was that my stomach was on a hair trigger.  I'd be walking the dogs, and pause to puke; I kept a bag in my desk "just in case" (and used it); and I remember opening the door at a stoplight and heaving onto the pavement.  By the time I was in the hospital, I could not keep food down.  My doc transitioned me to hemo and told me "if your symptoms are uremia, your symptoms will reverse quickly".  He was right - I have had no trouble keeping food down since the transition.
Logged
goofball
Jr. Member
**
Offline Offline

Gender: Female
Posts: 68
« Reply #9 on: June 04, 2014, 05:49:40 PM »
I'm not on dialysis yet, I have about a year to go.  I hate it in advance, LOL.
Logged
APKD - 47yr-old

Renal Diet Chef
jazzthaaagawjus
Newbie
*
Offline Offline

Gender: Female
Posts: 5
« Reply #10 on: June 04, 2014, 10:19:00 PM »
Quote from: Simon Dog on June 03, 2014, 01:12:04 PM
My signs when I first went on PD were all in lab tests, but when I had my residual drop off and PD wasn't enough, the main symptom was that my stomach was on a hair trigger.  I'd be walking the dogs, and pause to puke; I kept a bag in my desk "just in case" (and used it); and I remember opening the door at a stoplight and heaving onto the pavement.  By the time I was in the hospital, I could not keep food down.  My doc transitioned me to hemo and told me "if your symptoms are uremia, your symptoms will reverse quickly".  He was right - I have had no trouble keeping food down since the transition.

Hi simon dog thanks for sharing that with me I never thought it would have caused sickness all the time I'll have to look out for that nearer the time that sounds awful!

& goofball, me too! I hate it in advance also!
Logged
:) be happy
Ninanna
Full Member
***
Offline Offline

Gender: Female
Posts: 279
« Reply #11 on: June 05, 2014, 07:00:11 AM »
Welcome Jazz!  I'm glad you are doing your research and that you found us. I look forward getting to know you better. :)
Logged
Spring 2006 - Diagnosed with IgA nephropathy
June 2013 - Listed on transplant list
Feb 4th 2014 - Kidney and bone marrow tx (both from my mother) as part of a clinical trial at Hopkins
Poppylicious
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3023


WWW
« Reply #12 on: June 08, 2014, 07:20:01 AM »
Hello Jazz, and a big  :welcomesign; to the ihd forums! We're a supportive and lovely bunch, mostly!

 ;D

Poppylicious, Moderator
Logged
- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Jean
Member for Life
******
Offline Offline

Gender: Female
Posts: 6114
« Reply #13 on: June 08, 2014, 02:00:58 PM »
 there are lots of younger folks like you in this forum. Hopefully you will hear from them and soon. You have a pretty good amount of time before you have to start, hopefully. I was at GFR of 29 in 2007 and am now only at 20.  :welcomesign;  to IHD
Logged
One day at a time, thats all I can do.
goofball
Jr. Member
**
Offline Offline

Gender: Female
Posts: 68
« Reply #14 on: June 09, 2014, 06:31:07 PM »


This is a chart of my renal function decline and, in red and orange, predictions.  I estimate I will need to be readied for dialysis Spring 2015, to start in the fall.
Logged
APKD - 47yr-old

Renal Diet Chef
jazzthaaagawjus
Newbie
*
Offline Offline

Gender: Female
Posts: 5
« Reply #15 on: June 18, 2014, 07:38:32 AM »
Hi everyone!  Thanks to all for being so welcoming!

& goofball: This chart is really interesting! It really gives a good view of exactly how much it goes down after a certain amount of time,  I'm really glad you posted that its really interesting

Thank you!
Logged
:) be happy
Pages: [1] Go Up Print 
« previous next »
 
Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!