Hello Thanks for letting me join the group.

[Love8669]

I am an advocate and partner for a Dialysis patient.  We have been together for 2 yrs.  We have made a loving home together. 
I am told I am mentally ill as my husband of 24 years died of liver and kidney disease 3 yrs ago. Lol.  I learned so much about the illness, I have much understanding and wanted to share with my new love. 
I am looking for support from you guys as an advocate.  My partner is Tony.  Tony has been on dialysis for 7yrs.  He has Alport Syndrome. A rare kidney disease that can cause blindness and deafness.  Tony is deaf.  Alport is passed in the family gene pool.  He has a daughter and grandson, that could get renal failure.  I have really helped Tony with Dr visits and his meds.  With hearing loss, even with hearing aids, there are still challenges.
In the last 7 months, he has had issues with meds doses during dialysis. I have been involved with all,  to get the injected drugs right for him.  I am interested in seeing if anyone out hear had some bad reactions and had to find what is right for them.
I have been very frustrated in seeing his activities decline this year in dealing with side effects.  So, the reason I hate dialysis is the process Tony goes through everyday.  Any other advocates out there fighting the battles?

[Ninanna]

Hi and welcome Love!  We have many members here who are care partners. I'm sure they will be around soon. Until then make yourself at home!

[Jean]

Thank you for being a caregiver. You are worth your weight in gold and so     to IHD. The welcomes will come fast and furious and we are glad to have you with us.

[Darthvadar]

Hello Love....

Great to see a fellow carer....

  to IHD... I know , being a carer myself, that you have lots to offer here...

Visit and post often....

Look forward to see you posting frequently...

Darth, Moderator...

[Poppylicious]

Hello Love, and  !  Thank you for joining us!

Poppylicious, Moderator

[Charlie B53]

Anyone that thinks you are 'mentally ill', has a screw loose.  Losing your first Husband to disease has definitely left an impression on you which forced you to learn far more than 'normal' people.  They haven't a clue of the trials you had to learn to cope with.  Those experiences help you be a better partner and caregiver to your Husband now.  He is a lucky man to have you.

IHD is a great place to share, vent when you need to, and ask questions about anything that isn't clear to you.  While most of us are not Dr's, the combined experience found here is invaluable and can't be found anywhere else.

[Bambino_Bear]

Welcome to our group!