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Author Topic: lainiepop in hospital had emergncy op  (Read 8973 times)
lainiepop
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« on: May 26, 2014, 08:54:53 AM »

hi was rushed in by ambulane early hours of tues morn with agony in tummy and 9 hrs oof vomiting. long sttory short rushd too surgery late wed afternoon my bowel was twisted aroound old scarr tissue had to be cut out and repaired. iim in right state the level of care has been awful and feel likr im not making progress have eaten bit toodday but then bowels go wiild. so scareed
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
Rerun
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Going through life tied to a chair!

« Reply #1 on: May 26, 2014, 10:35:51 AM »

You need to be on a liquid only diet for about a week.  Your bowel needs to heal and so do not eat solids. 

Hope all goes well.   :pray;   
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Poppylicious
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« Reply #2 on: May 26, 2014, 01:50:52 PM »

Yikes.  So glad you posted this ... was worried about you (started a thread on the ihd Members bit - will link that to this.) I hope that you have a really speedy recovery so you can get home to those beautiful children.

Lots of *huggles* x
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Ninanna
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« Reply #3 on: May 26, 2014, 04:18:37 PM »

So sorry to hear about this Lainie. I hope you are able to recover quickly.
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Spring 2006 - Diagnosed with IgA nephropathy
June 2013 - Listed on transplant list
Feb 4th 2014 - Kidney and bone marrow tx (both from my mother) as part of a clinical trial at Hopkins
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« Reply #4 on: May 26, 2014, 06:39:04 PM »

 :grouphug; :grouphug; :flower;
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I am a caregiver to my wonderful husband,  He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
He had a transplant in November 2019.
kitkatz
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« Reply #5 on: May 26, 2014, 07:18:21 PM »

Take it slow with food. Figure out what upsets your tummy and intestines and what helps.  Remember the antibiotics killed all the flora and fauna in your system.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Deanne
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« Reply #6 on: May 26, 2014, 09:16:56 PM »

I hope you feel better soon! Can you have things like nutrition drinks instead of food for a while? Something like Ensure?
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
galvo
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« Reply #7 on: May 27, 2014, 12:03:25 AM »

That's awful! I hope you improve rapidly. :thumbup; :cuddle;
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Galvo
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« Reply #8 on: May 27, 2014, 12:09:35 AM »

Get well soon!....

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
willowtreewren
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My two beautifull granddaughters

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« Reply #9 on: May 27, 2014, 04:35:47 AM »

Oh, dear! Do take it easy on the food intake. Your bowels have major recuperation and healing to go through and solid food won't sit well.

 :grouphug; :cuddle; :grouphug; :cuddle;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Shaks24
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« Reply #10 on: May 27, 2014, 05:18:38 PM »

Sending prayers for quick healing and recovery.
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Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
lainiepop
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« Reply #11 on: May 29, 2014, 03:25:02 AM »

thank  yoou. im sstlll iinn its been awfull. potassum really llow fro m diarrrrah on driip for tthatt not sure if kiidnyy dtugs affeected creatnne up aa bit.  am hungry tthey say eat liitttle of whtt i want butt be patint hpefful boowels slowin down nw. surgen said it woulld have been fatal if not done as wooulld haavee twisttedd off blood vesssels aand killed organs. im stuggling as is my  2 yarr tx aanniirsary ttoday xx
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
galvo
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« Reply #12 on: May 29, 2014, 11:59:15 PM »

hang In there, girl! We're with you!
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Galvo
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« Reply #13 on: May 30, 2014, 03:42:38 AM »

What galvo said!

Thinking of you, lainie. *huggles*
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
cassandra
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When all else fails run in circles, shout loudly

« Reply #14 on: May 30, 2014, 06:11:16 AM »

Oh hon, we are all thinking of you, and sending healing vibes,


     :grouphug;             :flower;



Love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
lainiepop
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« Reply #15 on: May 31, 2014, 12:16:51 AM »

Hi all.

I came home last night after a long stressful stay in hospital. Glad to be home but still in pain and struggling.

Had such an awful few days, my potassium had gone down to 2 due to the diarreah so my kidney specialist said i needed iv potassium for a couple days. Cue hysteria as my veins are shot to pieces. They eventually got me gas and air to get cannula in because i was in such a state. So one night on that they manage to take bloods....and lose the kidney and potassium results. I kid u not. Anyway they said they'd leave it til the morn. Eventually results were found potassium up to  2.8, creatinine at my normal 72 so everyone happy. Im eating, bowels not emptying much and more solid, but my temp is flaring. They dont know why (they think because i keep getting hysterical). Anyway they want to scan the operation site incase theres fluid or something. So i barely slept that night, woke up at half 5 as they siaid were gonna draw blood at 6am, this didnt happen til 9am then i went for ultrasound. The guy was so lovely looked at every organ posssible and said all was normal, he even measured blood flow in kidney and told me what a wonderful kidney it is.  Anyway after that my bowels started going completely wild again cue me being hysterical all afternoon and wanting to talk to the docs. He explained it will be up and down and i have to ride with it theres no point me being in hospital. Kidny doc comes to see me, says potassium up to 3.8 and creatinine 64!! (due to having so much iv fluid over last couple days lol). He told me they are happy just take diarulyte when i have diarreah and go recover. Its funny i hadnt seen that doc since the seizure 18mths ago and i made some joke about i only see him when ive almost died and he said well i almost made a very good job of it this time. Obviously we got to the hospital in time, i knew something was seriously wrong when i puked and it wasnt bile but pooh  :puke;

Ive felt so stressed this is honestly the most painful thing ive had done. When the ultrasound guy was showing me everthing my built bladder and kidney etc it just amazes me how it all fits in my little body and works, but my little body feels like its been smacked repeatedly with a baseball bat. Much worse than kidney tx, but docs said it would be cos whole gut is healing and learning to process food again. Kidney doc said its a longer recover time, so i cant really do anything fo a good while. My little boy has brought me breakfast and gets me cushions he is an angel and will make such a good doctor.
Not looking forward to later as got nurse coming out to take the staple clips out of my scar ive never in my life had this always dissolvable ones so worried gonna have a panic attack again.  My back is very sore from holding myself in certain ways but i did sleep better last night. Just want my stitches out then desperately wanna wash my hair!

Luckily its half term so steve has been off this week, my mum is coming up tomorrow for as long as because i cannot lift or care for elena. Dilemma for her is dad as he is 4 weeks post heart bypass. She had to take him to docs yesterday as he passed out for moment (he's been doing really well tho). Doc took him off ramopril as his bp is low and iron so contributing to feeling faint. They said mum can go, he has a neighbour to look in on him morn afternoon and eve, must keep phone by him at all times, and if is really bad he'll stay with my mums sister. Its hard for her but we need her more.

xxx
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
cassandra
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When all else fails run in circles, shout loudly

« Reply #16 on: May 31, 2014, 03:05:18 PM »

Great you are home!! And enjoy your family. I think I've had those staplethings too after belly ops. I don't remember the removal as high up in the painy things list at all, so stop fearing the worst please.

Lots of healing vibes, and love to you, and your family, Cas
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
galvo
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« Reply #17 on: June 01, 2014, 07:52:42 PM »

You've gone through hell, and survived! You're a champion!! So great that you're at home; that's the best cure there is. The hair washing should be a wonderful occasion!
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Galvo
lainiepop
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« Reply #18 on: August 19, 2014, 09:15:16 AM »

Hi everyone, hope you're all doing well! Just thought would give u an update. Am now about 3 months post my emergency bowel resection surgery and feel ok, am doing normal stuff now, my 3 yr old still says, not allowed lift me mamma!' lol i tell her it's ok now :) Never had a follow up at hospital, have to see gp for referral if i have a problem! I don't, although i do get the odd diarreah maybe a couple times a week, when trying out new foods or eating too many veg/fruit.

Had tx clinic today, creatinine from bloods drawn last week was 63 !! (the kidney will turn 69 in a couple weeks!). Ive been drinking tons in the warmer weather so prob why so low. Found out why am so tired, my hb is 9.4, they think from all the diarreah previously depleted me in hospital, and i had a 10 day period that just finished (missed a month ). It was low straight out of hospital. I asked about an iron infusion but he said no, im taking liquid iron so he said to take 2 sachets instead of one and hopefully my body will catch up. But everything else is in normal range!!
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
Deanne
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« Reply #19 on: August 19, 2014, 10:54:57 AM »

You're doing great!  :yahoo;

Creatinine of 63 after all of that?! Very impressive!
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
lainiepop
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« Reply #20 on: August 19, 2014, 11:23:44 AM »

I know Deanne, we're very happy, dad is sunning himself with mum in Malta at the mo so can't tell how good his kidney is doing! I had a suspected uti the last couple weeks so have been drinking tons of water and cranberry juice, so i think that's why it was so low, appointment 8 weeks ago was 67, i guess i'd say my baseline is around 70. Hydration i think is the key! Hope u r well xx
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
cassandra
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Posts: 4974


When all else fails run in circles, shout loudly

« Reply #21 on: August 19, 2014, 12:02:02 PM »

Fantastic news!!

     :yahoo;



Love, Cas
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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