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koako
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« on: May 17, 2014, 12:29:16 AM »
Hello, I'm 23 and I have IgA. I have been on dialysis over a year, started when I was 22. I hope to make friends here who can understand what I am going through.
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Rerun
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Going through life tied to a chair!
« Reply #1 on: May 17, 2014, 12:33:52 AM »
Hi Koako, and welcome to IHD.  I'm so glad you found us.  Where are you from?  I had to start dialysis when I was 24 and now I'm 53... not sure if that is good news or bad news.  LOL

This is a great place to be and there are "kids" your age.  I hope you are on a transplant list...

Rerun, Admin   :welcomesign;
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Bambino_Bear
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« Reply #2 on: May 17, 2014, 12:57:14 AM »
 :welcomesign;

My husband is pretty young too.  Only 33.  He does PD and is doing really well.
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I am a caregiver to my wonderful husband,  He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
He had a transplant in November 2019.
koako
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« Reply #3 on: May 17, 2014, 02:30:39 AM »
More information about me: I'm from Kansas and I just got on the transplant list late January of this year.

Rerun-wow, you've been doing dialysis for a long time. I think that's what scares me the most. It's knowing that this disease is never going away. It is something I will have to live with forever  :'(
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Ninanna
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« Reply #4 on: May 17, 2014, 05:10:01 AM »
Hi Koako and welcome to the site!  I too have IgA. Post often and I look forward to seeing you around.
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Spring 2006 - Diagnosed with IgA nephropathy
June 2013 - Listed on transplant list
Feb 4th 2014 - Kidney and bone marrow tx (both from my mother) as part of a clinical trial at Hopkins
Darthvadar
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« Reply #5 on: May 17, 2014, 07:25:29 AM »
 :welcomesign; to IHD....

Hope you visit often, and make lots of posts....

Looking forward to seeing lots more of you....

Darth, Moderator....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Poppylicious
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« Reply #6 on: May 17, 2014, 09:06:32 AM »
Hello kaoko, and  :welcomesign;!

Poppylicious, Moderator
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
obsidianom
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« Reply #7 on: May 18, 2014, 08:12:42 AM »
Quote from: koako on May 17, 2014, 12:29:16 AM
Hello, I'm 23 and I have IgA. I have been on dialysis over a year, started when I was 22. I hope to make friends here who can understand what I am going through.
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My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
obsidianom
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« Reply #8 on: May 18, 2014, 08:14:08 AM »
Quote from: koako on May 17, 2014, 12:29:16 AM
Hello, I'm 23 and I have IgA. I have been on dialysis over a year, started when I was 22. I hope to make friends here who can understand what I am going through.
Welcome. What kind of dialysis are you on? What can you tell us about your experiences on dialysis? WE are here to listen and help.
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My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
koako
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« Reply #9 on: May 19, 2014, 05:04:05 AM »
I'm on In-Center Hemo. My experience has been a whirlwind. It all started when I checked my blood pressure. It was very high but I didn't think anything of it. However the high BP lasted for a few weeks and my mom got worried. So I went to check it out at the Drs. Next thing I know, I get a phone call a couple weeks later, telling me I have Freaking Kidney Failure. I go to the hospital and immediately get a cathter put in and Bam! I start dialysis and have been living with dialysis ever since.
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Zach
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"Still crazy after all these years."
« Reply #10 on: May 19, 2014, 06:01:38 AM »
Welcome to our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
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