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Author Topic: Received confirmation letter today  (Read 2845 times)
tigtink
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« on: April 25, 2014, 11:50:15 AM »
I received my letter of confirmation in the mail today that I am officially on the wait list at U. of Wisconsin at Madison.  List date is April 22.  I am on hold until mid-June because of the vaccinations, but I am already accruing time.
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MooseMom
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« Reply #1 on: April 25, 2014, 11:53:10 AM »
That is fantastic news!  What a brilliant way to begin the weekend!  :yahoo;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
jeannea
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« Reply #2 on: April 25, 2014, 12:01:14 PM »
Great! As long as you're getting your time that's good. Hardly anyone gets a transplant in the first few months anyway.
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Ninanna
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« Reply #3 on: April 25, 2014, 12:21:53 PM »
Woohoo!  :cheer:
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Spring 2006 - Diagnosed with IgA nephropathy
June 2013 - Listed on transplant list
Feb 4th 2014 - Kidney and bone marrow tx (both from my mother) as part of a clinical trial at Hopkins
cattlekid
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« Reply #4 on: April 25, 2014, 12:57:12 PM »
Woot!!!   :bandance; :bandance; :bandance;
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Deanne
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« Reply #5 on: April 25, 2014, 02:07:23 PM »
Congratulations! Your evaluation went very fast. It took at least a couple of months before I was initially listed. Your center seems much faster than mine. Now the hard part begins - waiting!
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
cassandra
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When all else fails run in circles, shout loudly
« Reply #6 on: April 26, 2014, 02:11:25 AM »
Congrats tigtink

     :cheer:


 Love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
SooMK
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« Reply #7 on: April 26, 2014, 07:04:02 AM »
Congrats!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
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