I found this site while googling "kidney disease and forgetfulness". It was such a huge relief to find other people who are experiencing the same thing. I am not going mad!I'm 55 and I'm waiting to start dialysis. I've recently become anaemic so that's a whole new pleasure to endure. I'm diabetic and have sleep apnoea, so I tend to be on line in the middle of the night. I'm really looking forward to reading all the discussion threads. It'll give me something to do when I start treatment!
Hello Matchb3 and welcome to IHD.I am in a similar situation. Until about 10 days ago I was in hospital for over two weeks because of ESRF and dangerous levels of anaemia.I was almost unable to walk or look after myself and was told in hospital, that I was too anaemic and too unwell to start with dialysis now. The doctors gave me an iron infusion, then some injections (forgot how these injections were called) and as an outpatient I was given four "Mircera" injections until now. These “Mircera” injections have changed my life for the better : I don’t feel so cold anymore, my Urea (bun) , Creatinine and haemoglobin levels have improved a little and I can manage a little better again. I am able to read a book again, able to learn a little on the piano again, go for my walks etc.and my appetite has come back again as well... Before the iron infusion and “Mircera” injections I felt completely incapacitated and could not do anything anymore.,I could not even eat anymore and lost lots of weight because all my food tasted horrible, even a cup of coffee tasted bitter...... At the moment I enjoy a little “honeymoon” of feeling better, before finally starting with dialysis but hopefully this pre-dialysis “honeymoon” lasts for as long as possible before I have to start dialysis ... The trouble with the situation at the moment is, that everything is so uncertain... ... Is your treatment similar to mine?Where in the UK are you? I live in London. Best wishes from Kristina.