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CalamityEC
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« on: March 23, 2014, 02:53:37 PM »
I have my final dialysis treatment tomorrow before I get a donated kidney on Tuesday.  I'm super excited, but I also am so nervous that I kinda want to just throw up and hide in my room.  I'm hoping this transplant goes as well as the first (26.5 years). :2thumbsup;
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"In three words I can sum up everything I've learned about life: it goes on." ~Frost

"Sometimes I've believed as many as six impossible things before breakfast." Alice's Adventures in Wonderland
MooseMom
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« Reply #1 on: March 23, 2014, 03:59:48 PM »
OH WOW!!!!  This is tremendous!!!  I cannot WAIT to hear all about it, so hurry up, get transplanted and get home so that you can update us!  LOL!  Congratulations! :yahoo;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Angiepkd
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« Reply #2 on: March 23, 2014, 06:47:51 PM »
Congrats! That is awesome news!  Praying it all goes well for you!
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
Bambino_Bear
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« Reply #3 on: March 24, 2014, 01:52:51 AM »
 :yahoo; :yahoo;
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I am a caregiver to my wonderful husband,  He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
He had a transplant in November 2019.
Darthvadar
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« Reply #4 on: March 24, 2014, 06:58:21 AM »
 :welcomesign; and the very best of luck with the op!...

Please visit us and post often... I'm dying to hear all about you and your new bean's adventures!....

Regards...

Darth, Moderator....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
cariad
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« Reply #5 on: March 24, 2014, 11:07:11 AM »
Quote from: CalamityEC on March 23, 2014, 02:53:37 PM
I have my final dialysis treatment tomorrow before I get a donated kidney on Tuesday.  I'm super excited, but I also am so nervous that I kinda want to just throw up and hide in my room.  I'm hoping this transplant goes as well as the first (26.5 years). :2thumbsup;
I had similar feelings when the date for my second transplant was set, so I'm inclined to say it's perfectly normal.

I'm hoping that this transplant is the last renal replacement therapy you shall ever need. Best of luck!
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Charlie B53
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« Reply #6 on: March 29, 2014, 04:54:04 PM »

They would have to knock me smooth out in order to hold still.  I wouldn't know how to act just to think that I might be free of Dialysis.

We will be praying for a smooth surgery and that you will wake up feeling a full bladder, and got to GO!

Who ever thought we would one day want to be able to P again?
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shayron1982
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« Reply #7 on: March 29, 2014, 06:57:33 PM »
 :cheer: CONGRATULATIONS Calamity!!! I am very happy to hear that you will be getting a new kidney soon! I will be praying that all goes well for you!   ~Sharon~
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~Sharon~
Diagnosed with FSGS 2003
AV Fistula upper right arm 2007
On transplant list @ MUSC 2008
PD Cath placed 2013
Started PD at home 2014
cassandra
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« Reply #8 on: March 30, 2014, 01:59:41 PM »
Fantastic news

     :yahoo;


Keep calm, and carry on, and lots, and lots of luck. Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
lainiepop
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« Reply #9 on: March 30, 2014, 02:09:41 PM »
Wonderful news!! Tons of luck for tomorrow xxx
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
SooMK
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« Reply #10 on: March 30, 2014, 04:11:48 PM »
Best of luck!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
talker
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« Reply #11 on: March 30, 2014, 06:40:12 PM »
Quote from: CalamityEC on March 23, 2014, 02:53:37 PM
I have my final dialysis treatment tomorrow before I get a donated kidney on Tuesday.  I'm super excited, but I also am so nervous that I kinda want to just throw up and hide in my room.  I'm hoping this transplant goes as well as the first (26.5 years). :2thumbsup;
Hello CalamityEC,
I call this 'little Miracles' in action.
I am happy for you.
Take some deep slow breaths  and endeavor to relax.

talker
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Be Well

"Wabi-sabi nurtures the authentic by acknowledging three simple realities: nothing lasts, nothing is finished, and nothing is perfect."

Don't ever give up hope, expect a miracle, pray as if you were going to die the next moment in time, but live life as if you were going to live forever."

A wise man once said, "Yesterday's the past, tomorrow's the future, but today is a gift. That's why it's called the present."
CalamityEC
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« Reply #12 on: April 01, 2014, 05:39:13 AM »
So my surgery was last Tuesday :)  I feel like a train wreck, but that tends to happen with me and surgery.  My levels are FANTASTIC.  :cheer: My creatnine is in the high 60's.  The kidney is working beautifully.  I just have to get through this pain hump and I'll be good again.  I got discharged from the hospital yesterday and have a clinic appointment today.  I can see light at the end of the table.

My donor (my mom) is pretty sore, but she's coping.

thanks for the kind words!  I also got my chest catheter removed yesterday.  I had named him Pete.  My kidney's name is still a work in progress :) :thx;
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"In three words I can sum up everything I've learned about life: it goes on." ~Frost

"Sometimes I've believed as many as six impossible things before breakfast." Alice's Adventures in Wonderland
Charlie B53
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« Reply #13 on: April 01, 2014, 05:58:53 AM »


Tremendous news!

Your Mom is an awesome person, sharing her kidney with you to again give you a more 'normal' life.  She truely is a special person.

Don't try to do too much too fast, give yourself a little time to finish healing well.

Take Care,

Charlie B
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Angiepkd
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« Reply #14 on: April 01, 2014, 09:20:22 AM »
Wonderful news!  Hope you and your awesome mom heal quickly! Thanks for the update! :bandance;
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
MooseMom
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« Reply #15 on: April 01, 2014, 09:29:12 AM »
This news has made my day, and it's not even noon yet!   :clap;

Congratulations.  Big hug for your mom!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
cassandra
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When all else fails run in circles, shout loudly
« Reply #16 on: April 01, 2014, 10:29:21 AM »
More fantastic news!!!!

       :bow;


Lots of love to you, and your mum, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
CalamityEC
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« Reply #17 on: April 02, 2014, 03:36:12 AM »
Thanks guys!
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"In three words I can sum up everything I've learned about life: it goes on." ~Frost

"Sometimes I've believed as many as six impossible things before breakfast." Alice's Adventures in Wonderland
lainiepop
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« Reply #18 on: April 02, 2014, 11:46:22 AM »
Wonderful news! So glad it's all gone well xxx
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
CalamityEC
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« Reply #19 on: April 08, 2014, 02:46:52 PM »
So the kidney is still doing well 2 weeks out, but holy crap, beds and I are not getting along.  I want to go home so I can sleep in my lazy boy. lol
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"In three words I can sum up everything I've learned about life: it goes on." ~Frost

"Sometimes I've believed as many as six impossible things before breakfast." Alice's Adventures in Wonderland
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