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Author Topic: Is there something about you most people don't know?  (Read 29827 times)
angela515
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i am awesome.

« Reply #150 on: July 14, 2008, 06:46:20 PM »

Awesome :)

I don't like camping at all.
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
twirl
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« Reply #151 on: July 14, 2008, 06:49:09 PM »

camping sucks
and go to the bathroom and but it in a baggie
it is just fertilzer anyways ???
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flip
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« Reply #152 on: July 14, 2008, 07:16:40 PM »

Around here campgrounds have rest rooms and showers.
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monrein
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Might as well smile

« Reply #153 on: July 14, 2008, 07:33:13 PM »

My husband and I have done a lot of wilderness white water canoeing and obviously that requires camping but the camping we like is very remote, with little chance of running into any other people.  We've done several fly-in by float plane trips and then we paddle the river running the rapids and then get picked up a couple weeks later by float plane.  The canoe is strapped to a pontoon and our packs go inside.  Our longest trip was 20 days.  We dehydrate some of our food and must carry everything we need for the entire trip.  We also eat as much fish as Lee can catch.  I've done 11 trips and Lee still tries to go every other year now with my brother.  Our most adventurous trip was the Hood River which empties into the Arctic Ocean and is a river packed with pretty exciting rapids, some stretches as long as five or six kilometers of paddling fun.  No toilets or showers of any kind.  Just the river and the woods.

However, I'm not a big fan of car camping and campgrounds full of people and my pet peeve is campers with all the technology of home, especially things that make noise in the woods like radios.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
twirl
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« Reply #154 on: July 14, 2008, 08:27:43 PM »

Around here campgrounds have rest rooms and showers.

so you are not that far in the backwoods of Kentucky
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« Reply #155 on: July 14, 2008, 08:55:14 PM »

I'll post some pics this weekend. My house was built in 1882 if that's any indication.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #156 on: July 14, 2008, 09:07:36 PM »


monrein - your kind of camping sounds wonderful. Someday I'd love to go somewhere far away from civilization. I, too, am not a fan of RV parks that turn into drunken, loud music parties.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #157 on: July 14, 2008, 09:38:42 PM »

It must be different where you all are from. Around here campgrounds are much different than RV parks and quiet hours are strictly observed. We sit around  the campfire, drink a little beer, and the loud music consists of a couple of guitars and Peter, Paul and Mary music. Most cooking is done on the campfire.
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kitkatz
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« Reply #158 on: July 15, 2008, 12:31:40 AM »

I'll post some pics this weekend. My house was built in 1882 if that's any indication.

You got an outhouse?
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Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #159 on: July 15, 2008, 01:02:04 AM »

Four rooms and a path
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G-Ma
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« Reply #160 on: July 15, 2008, 12:06:09 PM »

OK...I grew up on a farm in ND and hauled bales all summer, milked cows all year 2X a day, 36 by hand starting when I was 4 and when I was 14 we finally got automated milking machines and that was like getting a diamond ring now.  My dad thought I was his son but I would never change how I grew up.  How about u'all???
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!

« Reply #161 on: July 15, 2008, 01:59:39 PM »

In November 1979 I met in person Paul and Linda McCartney. The story behind it is this.

Our daughter Donna was born with Cystic Fibrosis. At about 3 years old she became fascinated with Paul McCartney and his music. She was Paul McCartney mad! I bought her lots of Wings records and albums and at about four years old she started making a scrapbook of any newspaper cuttings and magazine pictures she could find.

Up until this time the drug regime and treatment were working well and from two years old remained very healthy and energetic and a little monkey at times I might add but overall she was just like any other child of her age. But then she started slowly deteriorating. In that summer of '79 she caught a virus which attacked her heart and we were given the heartbreaking news that she only had about six months to live.

As you can imagine Rita and I were devastated we just couldn't believe we were going to lose our gorgeous little girl. I started to think what I could do to make her last months of her life as happy as possible. She had become too weak to ravel to somewhere like Disneyland. At this time it just happened that Paul McCartney and Wings were on tour in England and they would be appearing at the Manchester Apollo in the November for two nights.

So I wrote a letter to him explaining the situation and said how it would make her day to meet him   took it to the theatre on the first night and gave it a doorman to give to him.  The next day we got a phone call to say 'Be at the theatre for 5.30 pm and we can all meet him after the sound check.'

We sat through the sound check and eventually were lead backstage to meet the great man himself. I think Rita and I were more gobsmacked than Donna because we were almost speechless at first but she chatted away to him  from the word go  so naturally. While Donna and I were talking to Paul, Rita and Linda McCartney struck up a conversation which sounded like they were old friends. They were both so kind and approachable.

I'm so glad we did that for her because six weeks later she sadly passed away age 4 & half

I'll always remember the hilariously innocent thing she said as we were coming away from the venue. She said 'Mummy, why has Paul got a prettier face than Daddy?'  :rofl;

We'll never forget her and though we were young enough to get over it and eventually get on with our lives we still can't reconcile it and it will always be there. We decided not to have any more children because CF is an hereditary disease and there is a 1 in 4 chance of another child being born with CF. There's no way we would have risked it.

I have some pictures somewhere of the meeting and I'll try and dig them out and post them.
« Last Edit: July 15, 2008, 02:03:16 PM by Ken Shelmerdine » Logged

Ken
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« Reply #162 on: July 15, 2008, 02:30:42 PM »

How fantastically wonderful that you did this for your daughter.  Keep those memories always.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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« Reply #163 on: July 15, 2008, 02:41:12 PM »

Diane Sawyer and I are cousins.
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peleroja
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I have 16 hats, all the same style!

« Reply #164 on: July 15, 2008, 03:02:03 PM »

I have a pre-sternal PD catheter.
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David13
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A meow massages the heart.

« Reply #165 on: July 15, 2008, 03:04:28 PM »

I have a pre-sternal PD catheter.

Cool!   :2thumbsup;

Don't they also refer to that type of catheter as a "bath tub" catheter?
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twirl
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« Reply #166 on: July 15, 2008, 03:22:36 PM »

Flip   does Diane Sawyer know?
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flip
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« Reply #167 on: July 15, 2008, 03:28:11 PM »

Yes, we talked at the family reunion last year but we don't keep in touch. My brother lives close to her mother in Louisville and they talk frequently.
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peleroja
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I have 16 hats, all the same style!

« Reply #168 on: July 15, 2008, 04:47:24 PM »

Don't know, David; I've always been kind of a shower person anyway!
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paris
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« Reply #169 on: July 15, 2008, 07:07:10 PM »

Dear Ken,  thank you for sharing a very personal story full of love for your sweet Donna.   What a wonderful thing for you to do for her.  I have loved Paul McCartney since I was 13, watching the Ed Sullivan show.   I now admire him for taking time to be with your family and give all of you a wonderful memory.  I saw Wings when they toured in the US, but I can't imagine ever meeting Paul and Linda.       And I thought you really did look like Paul!!     Thank you for letting us know about Donna. :cuddle;

Something people don't know about me?   I am extemely insecure. 
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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« Reply #170 on: July 15, 2008, 08:17:51 PM »

That I am an old person stuck in a young body? :urcrazy;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
flip
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« Reply #171 on: July 15, 2008, 08:29:29 PM »

Hell, I'm a young person stuck in an old body, still listening to my 8 tracks and Lp's.
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okarol
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« Reply #172 on: July 15, 2008, 11:14:56 PM »


Sweet story Ken. Donna had good taste!  :2thumbsup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
annabanana
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« Reply #173 on: July 16, 2008, 01:07:31 PM »

Ken, thank you for sharing that beautiful story.

About me? I used to correspond with the author Tom Robbins.
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caregiver to Randy:
HepC and stage 4 ckd
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twirl
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« Reply #174 on: July 16, 2008, 06:34:35 PM »

when I was a child Dr.Debakey saved my life
I had a hole in my heart
that is about all I can remember
I was the first to live from something about the operation
and I am medical books, out of date now---but there was a time
and Missy was born with a diaphmatic hernia is also in medcial books
she is alive and that is rare
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