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Author Topic: Is there something about you most people don't know?  (Read 29865 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: March 15, 2007, 05:36:55 PM »

Me: I drive barefoot.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
goofynina
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He is the love of my life......

« Reply #1 on: March 15, 2007, 05:49:53 PM »

OMG, i hope they dont know about the time.... or the time I.... or even when I.... oh noooo, i cant tell them about the time when We.... and then there was that one time at band camp  ::)    What can i say, i was a wild child....  :P 
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
angela515
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i am awesome.

« Reply #2 on: March 15, 2007, 05:56:11 PM »

I love sleeping outside in the warm sun.
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Deanne
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« Reply #3 on: March 15, 2007, 09:07:19 PM »

If I tell, won't everyone know???

I don't think many people know just how non-social I am. I cringe when the phone rings because I'm afraid it might be someone who wants to gab. I hate spending time on the phone. I get very antsy at social gatherings unless the gathering has a purpose. I enjoy walking with my friends, but get antsy when we stop for coffee after walking if we sit there for more than a half hour or so. Just sitting around with people is a challenge unless there's an activity to focus on.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Zach
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"Still crazy after all these years."

« Reply #4 on: March 15, 2007, 09:20:11 PM »

Me: I drive barefoot.

 ;)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
kitkatz
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« Reply #5 on: March 15, 2007, 10:13:14 PM »

I like getting into a warm car and enjoying the warmth as it seeps up into the bones.  AAAH!  I must have been a cat in a previous life.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Ohio Buckeye
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« Reply #6 on: March 17, 2007, 05:41:22 PM »

Yes!   LOL!

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If I must do this to live, I must strive to live
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nextnoel
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« Reply #7 on: March 19, 2007, 01:12:41 PM »

I like getting into a warm car and enjoying the warmth as it seeps up into the bones.  AAAH!  I must have been a cat in a previous life.
As long as you get INTO the car and not ONTO the car, you're OK! ;)
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I can't reach the hill like I used to, but I'm not at a standstill yet!
Sluff
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« Reply #8 on: March 19, 2007, 02:07:31 PM »

I like getting into a warm car and enjoying the warmth as it seeps up into the bones.  AAAH!  I must have been a cat in a previous life.
As long as you get INTO the car and not ONTO the car, you're OK! ;)

Or under.
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nextnoel
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« Reply #9 on: March 19, 2007, 02:08:19 PM »

Good one, Sluff! :clap;
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I can't reach the hill like I used to, but I'm not at a standstill yet!
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #10 on: March 19, 2007, 02:38:05 PM »

heheheheh u guys crack me up :lol;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #11 on: March 19, 2007, 02:51:03 PM »

Goodynina has been to Prison and worked on the chain gang.
« Last Edit: March 19, 2007, 03:25:25 PM by Sluff » Logged
okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #12 on: March 19, 2007, 03:06:01 PM »

Hey, no outting other members!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
goofynina
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He is the love of my life......

« Reply #13 on: March 19, 2007, 04:16:18 PM »

Goodynina has been to Prison and worked on the chain gang.

See if i tell you anymore of my secrets Sluff, oh, and how were the fish net stockings you wanted me to order for you, did they fit?? :P ;)

(dont worry i wont tell them about the stilleto's or the garter belt, those will remain our secret, hope the shoes were the right color, you did say red didnt you??)  lol, ;)
« Last Edit: March 19, 2007, 04:18:45 PM by goofynina » Logged

....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Sluff
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« Reply #14 on: March 19, 2007, 06:59:51 PM »

I guess my secret is out. But I promise to not say a word about your paid overnight trips to LA. We do have to keep some secrets don't we? ;)

Remember this picture? :2thumbsup;
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brenda
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« Reply #15 on: March 19, 2007, 08:25:01 PM »

Kitkatz you got the popcorn and those lawnchairs still? It's time to bring'em out again. This one should be good! :popcorn;
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Life is what happens while your making other plans.
goofynina
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He is the love of my life......

« Reply #16 on: March 19, 2007, 08:54:34 PM »

I guess my secret is out. But I promise to not say a word about your paid overnight trips to LA. We do have to keep some secrets don't we? ;)

Remember this picture? :2thumbsup;

See what i mean, if your going to tell the story, tell it right, it wasnt "overnight"  they were for the weekend, i think that does not qualify as overnight, DUH, and as for the pic of my "family"  ain't we purty ;)

oh and i called your shrink  like you asked me too, she said sorry, there is no hope for you, YOU DONE LOST IT,  sorry buddy  ;D
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Zach
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"Still crazy after all these years."

« Reply #17 on: March 20, 2007, 05:15:11 AM »

I have a fifth toe on my left foot ... and my right foot.
Please don't get grossed-out    :-\
Logged

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Sluff
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Posts: 43869


« Reply #18 on: March 20, 2007, 05:26:56 AM »

Proper balance is paramount.
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glitter
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« Reply #19 on: March 20, 2007, 10:06:53 AM »

I have a fifth toe on my left foot ... and my right foot.
Please don't get grossed-out    :-\


I have that SAME affliction-my mother says it happened in the womb!! :o
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
kitkatz
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« Reply #20 on: March 20, 2007, 02:10:56 PM »

I like to read trashy novels.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
brenda
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« Reply #21 on: March 20, 2007, 02:20:14 PM »

I want to be on Jeopardy someday.
I watch all the sunday morning fishing shows.
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Life is what happens while your making other plans.
Yonanamama
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Got kidney?

« Reply #22 on: May 04, 2007, 06:43:46 AM »

Hmmmm!

Nope! ;D
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Hopefully donating a kidney to a Matchingdonors.com recipient/friend this summer.     

WHAT IF THE HOKEY POKEY REALLY IS WHAT IT'S ALL ABOUT!?
anja
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« Reply #23 on: May 04, 2007, 11:02:10 PM »

WHY?????  What have you been told?????
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carson
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« Reply #24 on: May 05, 2007, 06:03:23 AM »

I see dead people.










must be something to do with my job (mortician) >:D
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2009 infection treated with Vancomycin and had permacath replaced
2009 septic infection that wouldn't go away
2007 began Nocturnal Home Hemo with Permacath
1997 began Peritoneal Dialysis
1982 had cadaver transplant
1981 diagnosed with GN2 and began Peritoneal Dialysis
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