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Author Topic: Called! Waiting, waiting....  (Read 16774 times)
galvo
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« Reply #25 on: February 10, 2014, 07:53:20 PM »
Wonderful to hear!
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Galvo
Bambino_Bear
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« Reply #26 on: February 10, 2014, 11:16:57 PM »
 :cheer: :cheer: :cheer: :cheer: :cheer: :cheer:

So happy for you!!!
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I am a caregiver to my wonderful husband,  He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
He had a transplant in November 2019.
cariad
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What's past is prologue
« Reply #27 on: February 11, 2014, 06:00:24 AM »
Excellent! Welcome to the transplant side. :yahoo; :yahoo; :yahoo;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
cdwbrooklyn
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« Reply #28 on: February 11, 2014, 07:30:06 AM »
What's meant for you is for you...congrats. May God bless you with this kidney that it will function for ever.   
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
WishIKnew
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Alports, dialysis '07-'12,cancer'11,transplant '12
« Reply #29 on: February 11, 2014, 07:55:24 AM »
So happy for you.  Teary eyed over here!
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cassandra
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When all else fails run in circles, shout loudly
« Reply #30 on: February 11, 2014, 07:56:10 AM »
Fantastic news!!!!

     :cheer:    :cheer:    :cheer:
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
willowtreewren
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My two beautifull granddaughters

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« Reply #31 on: February 11, 2014, 08:52:23 AM »
Tremendous news!  :yahoo; :yahoo; :yahoo;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
lainiepop
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« Reply #32 on: February 11, 2014, 12:05:37 PM »
Wonderful news!!! Thinking of u xxx
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
Deanne
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« Reply #33 on: February 11, 2014, 06:55:41 PM »
Surgery was at 1:00 this morning. My parents and sister flew in yesterday and arrived a couple hours before surgery. I slept most of today, but was up for a short walk and some time sitting in a chair this afternoon. I think I'm done with pain meds already and I should be able to have clear fluids tomorrow.

My family is headed back to my house about 1/2 hour away for the night. As expected, I'm on insulin for now because of the steroids. My urine output is at 1900 already, creatinine is 1.75, bp and potassium are low. So far everything is looking great overall.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Bambino_Bear
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« Reply #34 on: February 11, 2014, 07:19:21 PM »
 :2thumbsup; :2thumbsup; :2thumbsup; :2thumbsup; :yahoo; :yahoo; :yahoo; :yahoo; :clap; :clap; :clap;
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I am a caregiver to my wonderful husband,  He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
He had a transplant in November 2019.
MooseMom
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« Reply #35 on: February 11, 2014, 07:29:55 PM »
Deanne, many congratulations to you, and here is hoping to a very speedy recovery. :yahoo;  Can't wait to hear more from you.

I'm glad your family has arrived.

I'm so very pleased for you.  Thanks so much for posting.  Rest well.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Darthvadar
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« Reply #36 on: February 12, 2014, 12:41:37 AM »
Yippie!....

Great news, Deanne... Congratulations to you and your new tenant!....

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
cassandra
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When all else fails run in circles, shout loudly
« Reply #37 on: February 12, 2014, 04:26:34 AM »
Fantastico!!!! Have an extra drink on me

   :clap;            :beer1;             :beer1;



         :flower;


Lots of love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
cattlekid
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« Reply #38 on: February 12, 2014, 10:12:05 AM »
Awesome news!  Have they started talking about when you will be going home yet? 
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Joe
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« Reply #39 on: February 12, 2014, 02:29:09 PM »
That is great news Deanne! Congratulations!  :bandance;
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
willowtreewren
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My two beautifull granddaughters

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« Reply #40 on: February 12, 2014, 02:46:52 PM »
I'm so glad you are doing well and that bean has kicked in already.  :2thumbsup;

Great news!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
RichardMEL
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« Reply #41 on: February 12, 2014, 06:55:13 PM »
WOW!! !Those figures and labs are fantastic for so soon after the op.. and you walked and go tup.. That is brilliant!!

So very please for you!! May it continue to be smooth sailing.

always thought you had a good figure... er.. figures... er.. measurements.. er... oh heck.. I'm in trouble now!  :rofl; :rofl;

 :yahoo; :2thumbsup; :clap; :bow; :beer1;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Clara
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« Reply #42 on: February 12, 2014, 09:44:37 PM »
Such fantastic news.  :)
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SooMK
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« Reply #43 on: February 13, 2014, 07:13:46 AM »
Hurrah! Please keep us up to date.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Deanne
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« Reply #44 on: February 13, 2014, 07:49:09 AM »
Lol at Richard. My measurements, figure, and everything have pretty much been exposed to the world now. I flash people without a second thought. My creatinine came in at 0.5 this morning. Is there such a thing as too low? My doctors are talking about pulling the catheter out today and starting to remove the IV lines. If so, I might be able to go home tomorrow. Everyone here has been incredibly nice. They're going to send me home on insulin, as I expected. Steroids do that to me. My bp was a bit high yesterday, but I think it was because my mom had her relatives here, against my will. My nurse came to kick them out for me.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
MooseMom
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« Reply #45 on: February 13, 2014, 09:11:00 AM »
Good for your nurse!!  :2thumbsup;

Sounds like things are going really well for you.  Hope you can get home soon.  Again, congrats!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
jeannea
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« Reply #46 on: February 13, 2014, 10:23:38 PM »
Deanne, I always say that when I got my first transplant they surgically removed my modesty. I was in my 20s and never had kids. Now I just can't care.

Sounds like you're doing great!
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Deanne
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« Reply #47 on: February 14, 2014, 05:18:25 AM »
Why did I think this would be easier than it is? Everyone tells me I'm doing better than average. Able to get up and move around but very slowly,. I'm able to think clearly and am mentally "normal," but I hate that it hurts to move and I can't do little things like reach down to pull up my blanket or put my socks on without a struggle. Getting in and out of bed takes thought and planning. Put this leg here, this arm there, now slowly move your torso. Grrrrr. What was it like for others if they say I'm doing so well?

They're still talking about releasing me tonight. Maybe I'll improve faster at home. I'm glad I went through this. I just didn't think it would be so hard.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Darthvadar
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« Reply #48 on: February 14, 2014, 08:55:45 AM »
Great news, Deanne....

You'll recover SO much better in your own environment....

There's an Irish saying 'níl aon tinteán mar do thinteán féin'... Translated, it means 'There's no fireside like your own fireside'.... Keep up the good recovery... And congrats, again....

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Deanne
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« Reply #49 on: February 14, 2014, 09:08:27 AM »
The Foley catheter is gone and I'm getting my last IV infusion, then the  neck line should be ready to come out. One of the doctors told me to put normal clothes on as soon as I can and they'll be more likely to release me today. I'm a bit nervous about going home because my mom might make me crazy.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
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