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Author Topic: Just back from visit to Mum in hospital... I'm emotionally wrung out, BUT.....  (Read 7931 times)
Darthvadar
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« on: February 06, 2014, 10:23:41 AM »
Hi All...

Well, I'm just back from the hospital... I'm worn out!... BUT, there's news of Mum...

Much to his surprise, her Neph. has declared her to have Moderate Mental Capacity now, and by some miracle in a position to contribute to her own care plan... So he has taken her off the Long Term Nursing Home List, and has changed her plan to transferring to a Rehab/Convalescence Unit for about six weeks of the three Rs... Rest, Recovery, and Rehab...

Meanwhile, we hammer the Health Service Executive for a hefty Home Care Package of home support... Then all going well, we get her HOME!!!!.... Not bad for a woman who was hours from death a few weeks ago, eh???...

You lot are obviously storming Heaven with the prayers!... Please continue with them... It's a long way to go yet, and anything could happen to change all of this, but there's a positive plan now!...

Thank you, everyone....

Love... Darth....
« Last Edit: February 06, 2014, 10:26:04 AM by Darthvadar » Logged
Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
MooseMom
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« Reply #1 on: February 06, 2014, 12:44:09 PM »
Spectacular news!   :yahoo;  This has made my day!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
cassandra
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« Reply #2 on: February 06, 2014, 03:29:26 PM »
Great to hear!!!

      :cheer:



Love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
galvo
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« Reply #3 on: February 06, 2014, 09:27:34 PM »
Goodo! Hang in there, Darth!
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« Reply #4 on: February 06, 2014, 09:28:29 PM »
 :2thumbsup; Keeping good thoughts and  :pray; sending up prayers.
One day at a time my friend!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Darthvadar
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« Reply #5 on: February 07, 2014, 12:40:37 AM »
Thanks Folks....

Yes, I'm hoping that it happens... Being realistic though, I realise that anything could happen, and everything goes pear shaped....

Still, not too bad for a woman who was to live for mere hours connected to a Morphine Pump, in the care of the hospital's Palliative Care Team.... I had even spoken with a Funeral Director!...

No hope at all, said the docs... But as we Irish often say "Nobody told the corpse!"...

Love to all...

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Poppylicious
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« Reply #6 on: February 07, 2014, 03:03:54 AM »
 :2thumbsup;
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cariad
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« Reply #7 on: February 07, 2014, 04:43:58 AM »
Absolutely amazing! I am keeping a good thought that this leads to your mum returning home. What a miracle that would be.

Thinking of you and your mum, Darth, and wishing you only the best. :cuddle;
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« Reply #8 on: February 07, 2014, 01:36:55 PM »
 :2thumbsup;

Wonderfully FABULOUS news!   :clap; :yahoo;

I'm so thrilled to hear this.

 :cuddle;
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Darthvadar
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« Reply #9 on: February 11, 2014, 05:32:05 AM »
Well, a bit of an update....

Mum had her plaster cast removed yesterday.... I needn't tell you, the doc was warned not to damage the only signature allowed on the cast, that of her Neph., Prof George Mellotte... http://www.beaconrenal.ie/consultants_melotte.html ... So she's now wearing a fracture brace, and is healing well...

The plan is still to get her out to a Rehab Hospital to recover, and get as strong as she can be... Meanwhile, I do battle with the HSE to get a Home Care Package...  The docs, nurses, and the Social Worker have all advised me to back off from the personal and continence care, and leave it to the professionals who will be in every day, fingers crossed!...The plan is still to get her home.....

She was listed to go to Long-Term Care in a Nursing Home when her memory was so poor... But she's perking up, and is getting witty again, so going home's now a goal to reach for!... The cheeky mare told our Home Help who visited her yesterday that she didn't like her outfit.... "Too dark", says she "makes you look old... A bit witchy, in fact!... All you're short of is the broomstick!"... Dear Lord, I've wanted her back, what have I let myself in for???... LOL!!!!!....

Love to all....

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
cassandra
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« Reply #10 on: February 11, 2014, 08:05:07 AM »

    :rofl;

When you have the package sorted, it's going to be fab I'm sure. Great to hear how much better your mum is doing.

Love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
cariad
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« Reply #11 on: February 11, 2014, 08:23:17 AM »
This is so fabulous! Well, maybe not for the Home Help who is probably utterly traumatized and purging half her wardrobe as we speak, but those of us safely outside Ireland welcome this brilliant news! :beer1;
 :yahoo; :yahoo; :yahoo;
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Darthvadar
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« Reply #12 on: February 11, 2014, 09:22:56 AM »
Yep, I never know what she's going to come out with....

Told her Neph. that she hates his (admittedly dark) suit....

Conversation as follows......

Mum... "Don't like that suit!"...
Neph... "What's wrong with it, Elsie???"...
Mum... "It's dark, dull, dreary, and makes you look old!"...
Neph (while battling to contain his laughter) "Do you want me to stop wearing it, Elsie???"...
Mum... "I want you to burn it!"...

So said Neph. says he's going home for a cry and a bonfire!...

Oh, and this was AFTER him being nice and taking her OFF the Phosphate Binders, AND off the Renal Diet!... Says calories are MUCH more important!!!... Says she can eat what she likes!... She grinned and said "What about a banana???"... He came back five minutes later, with said banana, and tells her "Enjoy!"... She replied "Aaaw, thank you SO much for the banana... And I STILL hate your suit!"... Poor guy!.....

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
cariad
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« Reply #13 on: February 11, 2014, 09:33:41 AM »
Quote from: Darthvadar on February 11, 2014, 09:22:56 AM
Yep, I never know what she's going to come out with....

Told her Neph. that she hates his (admittedly dark) suit....

Conversation as follows......

Mum... "Don't like that suit!"...
Neph... "What's wrong with it, Elsie???"...
Mum... "It's dark, dull, dreary, and makes you look old!"...
Neph (while battling to contain his laughter) "Do you want me to stop wearing it, Elsie???"...
Mum... "I want you to burn it!"...

So said Neph. says he's going home for a cry and a bonfire!...

Oh, and this was AFTER him being nice and taking her OFF the Phosphate Binders, AND off the Renal Diet!... Says calories are MUCH more important!!!... Says she can eat what she likes!... She grinned and said "What about a banana???"... He came back five minutes later, with said banana, and tells her "Enjoy!"... She replied "Aaaw, thank you SO much for the banana... And I STILL hate your suit!"... Poor guy!.....

Darth....
:rofl; :rofl; :rofl; :rofl; :rofl; :rofl;

Oh, dear! Well, I can certainly see the family resemblance!  ;)
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Darthvadar
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« Reply #14 on: February 11, 2014, 09:48:12 AM »
Yes Cariad....

I blame the parents!...

Darth.....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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« Reply #15 on: February 14, 2014, 09:15:52 AM »
She seems very perky ... that must be a relief after everything!

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Darthvadar
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« Reply #16 on: February 14, 2014, 02:15:43 PM »
Quote from: Poppylicious on February 14, 2014, 09:15:52 AM
She seems very perky ... that must be a relief after everything!

 ;D

Very perky, Poppy....

For a woman who's been so unwell... Had a meeting with the Social Worker today... They're still planning to move her to Peamount Hospital... They do Rehab for older people with complex conditions...

Next move then is a Case Conference with Mum, and I, the Social Workers, the docs, and the Health Service Executive to plan for her coming home with daily support... Fingers crossed!...

I'm praying that it works out...

Thanks a million to everyone for all the support...

Love to all....

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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« Reply #17 on: February 14, 2014, 04:39:11 PM »
One step at a time.  Sounds good!

              :flower;
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okarol
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« Reply #18 on: February 15, 2014, 11:03:40 PM »
Best wishes to you both. Glad to here she's doing ok.  :clap;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Darthvadar
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« Reply #19 on: February 16, 2014, 01:35:24 AM »
Thanks All...

Plan is still for her to be transferred to Peamount Hospital for between four and six weeks Rehab... Now, it's not yet certain that Peamount will take her... The dialysis being the main issue... Whether they'll agree to take that on... If not, there is a back-up plan... The hosp. she's in has an Age Related Unit, and they'll take her for Rehab if need be... Not as good as Peamount, but not a bad second....

We'll see... We should have some idea by the middle of next week...

Fingers crossed!...


Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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« Reply #20 on: February 16, 2014, 05:37:04 PM »
I'm glad there is a Plan "B"!  :2thumbsup;

This is good news and I love that Elsie is on the mend!  :clap;

Here are some of Poppy's *huggles* for you!  :cuddle;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
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« Reply #21 on: February 18, 2014, 09:38:08 AM »
Sounds like things are looking up. So glad for both of you.
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Darthvadar
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« Reply #22 on: February 18, 2014, 09:54:32 AM »
Had a meeting with the Social Worker today....

Peamount will not take her!....  :rant; :rant; :rant;...

They say that they can't (I say won't!) commit to the dialysis!... Say that they can't be certain of always having someone on shift who's capable of doing it!...

So thank God for Plan B... She stays in Tallaght Hospital for her Rehab!....

Oh and I'm now filling in a pile of forms to apply for the Home Care Package!... The joys of it all....

Darth...
« Last Edit: February 19, 2014, 02:13:05 AM by Darthvadar » Logged
Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
MooseMom
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« Reply #23 on: February 18, 2014, 02:10:10 PM »
Oh wow, good luck with all of that!  There always seems to be yet one more challenge...

 :grouphug;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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