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Author Topic: "voluntarily" doing an extra exchange  (Read 3555 times)
Deanne
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« on: February 04, 2014, 07:56:40 AM »

My weight is up, my BP is up. My UFs have been down. I'm considering doing a manual exchange today, probably filling at noon, draining after work. I know I'm carrying extra fluid. I didn't order enough extra green bags to start doing two greens most nights. I'll order better next time. I do have several boxes of manual bags, so I'm thinking about putting them to work as needed to pull off this fluid. Grrrrr. I was trying to avoid manual exchanges, but I got myself into this by not ordering more green cycler bags and I don't want this to get out of control.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
cassandra
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When all else fails run in circles, shout loudly

« Reply #1 on: February 04, 2014, 10:16:13 AM »

Good plan, and good luck

Love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
Joe
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« Reply #2 on: February 04, 2014, 03:09:48 PM »

That is a good plan Deanne. I did that occasionally  when my weight would spike.
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Leave the rest to God...
Deanne
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« Reply #3 on: February 04, 2014, 04:06:53 PM »

I think the Liberty cycler doesn't always drain completely. I drained off 700 mL before I did a fill even though I'm supposedly dry during the day. I pulled off another 300 mL after a 2.5 hour dwell. I feel thinner now.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
okarol
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« Reply #4 on: February 04, 2014, 04:55:09 PM »

Good solution!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Joe
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« Reply #5 on: February 04, 2014, 07:44:12 PM »

I didn't connect that you were using a cycler. With my Baxter, I typically didn't get everything off through the regular cycler final drain and had to do a manual drain at the end of the cycle. I would typically get another 800-1000 ml off. Not familiar with the Liberty cycler, do you have a manual drain setting you can use before you disconnect? That would likely clean you up.
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Live simply. Love generously. Care deeply. Speak kindly.
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Deanne
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« Reply #6 on: February 06, 2014, 07:21:53 PM »

The Liberty doesn't seem have an option to do a manual drain. I don't think I often have an issue with it not draining everything off. I did another manual this afternoon and it barely drained anything before I did the fill, and the drain about 2.5 hours later only pulled off about 200 mL using a green bag. That wasn't really enough to be worth the time for doing the manual exchange,but my BP and weight are still higher than I'd expect them to be. Is it possible I still have fluid that isn't being pulled off, even though I still urinate quite a bit? I have "high" nights when my UF is ~1200, but also "low" nights when it might only be ~600. It's very inconsistent.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Joe
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« Reply #7 on: February 06, 2014, 08:08:22 PM »

If you're not getting anything off with the drain before you fill, you are likely doing ok and not retaining. The difference in your UFs may be a combination of how much you are taking in during the day and the fact that you are still peeing. Talk with your team and see what they say, but I'd guess you are doing ok.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
Deanne
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« Reply #8 on: February 06, 2014, 08:31:42 PM »

Thanks! That's reassuring. I see my nurse next week and my neph in a couple of weeks.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Whamo
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« Reply #9 on: February 16, 2014, 06:42:20 AM »

I recently began a high-dose therapy.  It takes me almost an hour to fix up my cycler, drain, fill, and get to the dwell.  I detach, go about my day for about four hours, and hook up for ten more.  I'm feeling a lot better.  I'd been hospitalized twice because my ten hours wasn't working.  I was suffering from chronic constipation, and feeling intense "discomfort" from too much fluid at night.  The pain was excruciating.  On the worst night I cramped for a few hours, and then felt like throwing up, heaving dry, for a few more.  I was freaking out.  I stopped therapy.  My blood got dirty, and my mind started losing it.  I endured enemas in the hospital.  I started a cranberry juice/lacalose cocktail that I drank every few hours.  Finally, my stomach cleared out, and things began to improve.  I still get an upset stomach, but not as heavy, and after I eat the wrong food.  For some reason jello with fruit in it upsets my system.  A root beer from a fast food place didn't seem to help either.  I keep learning how to cope with these incidents, but it seems like something else always pops up once a problem is solved. 
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Fox_nc
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« Reply #10 on: March 15, 2014, 03:03:59 PM »

May be too late to help, but you might see if your clinic has some of the concentration that you need until your order.
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Being normal is not necessarily a virtue. It rather denotes a lack of courage. -- from the movie Practical Magic
Whamo
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« Reply #11 on: March 31, 2014, 05:36:35 PM »

 :yahoo; :clap; :bandance;  Ever since I started doing a mid-day drain and fill, plus the regular hours at night, my dialysis has been getting better and better.  I love it when a plan comes together.
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Shaks24
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« Reply #12 on: April 01, 2014, 06:26:15 PM »

Deanne, is there one more level of solution above green? I don't remember the colors but I think there is 1.5, 2 and 4% I think. Have you tried that? All I use to this point is the 1.5.
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Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
Joe
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« Reply #13 on: April 01, 2014, 07:45:07 PM »

The colors go yellow, green, red for the 1.5, 2.0 and 4%.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
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