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Author Topic: New member: MyssAnne  (Read 3655 times)
MyssAnne
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« on: March 05, 2007, 02:15:53 PM »
I'm a new member here, just found out about this group this afternoon, and registered.
I've been a capd patient since last April, on the cycler (Fresenius) since last June (2006).
I have had peritonitis three times, hospitalized for it twice, and had my tube replaced this
past December (2006), necessitating two weeks of hemodialysis through a catheter in
my shoulder/neck.  Not bad, really. But I much prefer my cycler, thank you very much!

What else. I work full time, which is a struggle, since that is ALL I do most days. My fiancee
is 2 hours away, so I only see him on weekends/emergencies.  It took me two months to recover from the surgery in December. I just, last week, worked a full week. I was so excited!
I went through a major bout of depression, about 4-5 weeks, hiding it from everyone,
since I didn't see me nurse, other than for her to change my dressing, and my fiancee and
I could not see each other (weather woes!)

I'm getting back to my usual cheerful/hyper self, which is nice! It's hard not having someone
to lean on, physically when needed, but I've learned to adapt!
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: March 05, 2007, 02:19:23 PM »
 :waving; Hi MyssAnne,
Welcome to IHD!

Karol
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MyssAnne
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« Reply #2 on: March 05, 2007, 02:28:07 PM »
Thanks! I was so excited to see that there are other people here who have Alport's
also! Makes me feel not quite so alone, ya know?

More info: I'm 46 years old, a single mother of a 19 year old who is in Basic Training
(Army, Reserves, thank goodness!), and who will be moving to Indianapolis (I live in
Muncie, Ind.) when he gets out later this month.  I wanted to see him graduate
this time, but I can't. We went to his BT (he's on his 3rd training session) graduation,
and that really cause a lot of physical distress. That's what irks me the most. I can't do
what I wanna and what I used to do.

GRRR!!!
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Sluff
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« Reply #3 on: March 05, 2007, 02:54:06 PM »
Thanks for taking the time to introduce yourself. This website is intended to be your home away from home, offering advice when you need it, an occasional laugh and even more importantly an ear to listen to you when you ask questions, or just need to vent.

A thread you may find interesting here just for fun http://ihatedialysis.com/forum/index.php?topic=2660.0

Welcome MyssAnne, to our family here at IHD

-Sluff, Administrator
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Joe Paul
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« Reply #4 on: March 05, 2007, 02:57:34 PM »
Welcome MyssAnne, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
bolta72
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my best friend
« Reply #5 on: March 05, 2007, 04:12:14 PM »
 :welcomesign; :clap;
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gotta do what I gotta do.. 2 yrs in ctr hemo
kimcanada
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« Reply #6 on: March 05, 2007, 05:51:10 PM »
 :welcomesign; MyssAnne

I hope that you end up loving this site just as much as me :)

Kim
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angela515
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i am awesome.
« Reply #7 on: March 05, 2007, 06:36:00 PM »
 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
carolyn77531
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« Reply #8 on: March 05, 2007, 07:38:51 PM »
 :welcomesign;
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YOU are stronger than you realize.
Wiser than you know.
What was once your life is now your legend.........
anja
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« Reply #9 on: March 05, 2007, 07:46:45 PM »
 :welcomesign;  to the community, MyssAnne !  (from another Alport's )   :cuddle; 
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #10 on: March 05, 2007, 08:05:53 PM »
Welcome to our wonderful community.  I am so glad that you decided to join us.  I am sure that you are going to find this site extremely helpful as you deal with your challenges.  This site has become a real family and I am looking forward to hearing more from you.  There is lots to read, so take you time and go through as much as you can.  But keep posting too, so that we will know how you are doing. Here is a group hug from all of us.  :grouphug;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
kelliOR
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« Reply #11 on: March 05, 2007, 08:20:09 PM »
Nice to meet you, MyssAnne!           Kelli
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Shoot for the Moon.....Even if you miss, you'll end up among the Stars ........


Denied PKD for years (Boy, was I good at it!)
Dragged kicking and screaming to dialysis (in center hemo)
Transplant from a friend March 24, 2006 at OHSU
kitkatz
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« Reply #12 on: March 05, 2007, 08:34:04 PM »
Welocme to the IHD.com home.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
mcjane
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« Reply #13 on: March 05, 2007, 09:07:26 PM »
Hi & welcome MyssAnne, always nice to see new members.

Jane
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Zach
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"Still crazy after all these years."
« Reply #14 on: March 05, 2007, 09:10:42 PM »
Welcome to our community!    ;)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #15 on: March 06, 2007, 01:20:58 AM »
 :welcomesign;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
MyssAnne
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« Reply #16 on: March 06, 2007, 05:18:54 AM »
Thanks guys! I really enjoyed this site, and did some more reading last night when I got home.
I always wondered why the clinics never sponsored some social get togethers, well, this is
MUCH better!

Better get back to work....
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thegrammalady
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« Reply #17 on: March 06, 2007, 07:34:26 AM »
 :welcomesign;
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
joanna2007
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« Reply #18 on: March 06, 2007, 08:16:53 PM »
Hi MyssAnne,
    I'm a newbie too.   Thanks for the welcome to me and I want to welcome you.  As Hoosiers we need to support each other.   :welcomesign;
     My grand-daughter who lives with me is dating a student from Ball State.....so.....she knows the way to Muncie very well.

                             Joanna
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This is the day that the Lord has made, let us rejoice and be glad in it.
                            Joanna
billoggblog
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You Dialyse to Live....You Don't live to Dialyse!
« Reply #19 on: March 16, 2007, 06:38:41 PM »
 :welcomesign;
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Yesterday is History..........Tomorrow is Mystery..........
Today is a Gift...That's why they call it Present.
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