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Author Topic: Got my PD catheter Yesterday  (Read 2822 times)
Sydnee
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« on: August 08, 2013, 09:12:53 PM »

I was nervous about the surgery because the surgeon was going to do it Laparoscopy. I had my gallbladder out that way and had so much pain and a very hard recovery (in the hospital 5 day) on a out patient surgery. This went really well thou. They were running late so I didn't get into the OR until 2:30 pm at 5:30 pm I was leaving for home. Not in too much pain but still need meds every now and then.

Ed talked to the new PD nurse it sounds like I will be getting 1 week of training which will include both manual and cycler.
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After a hard fight to not start I started dialysis 9/13
started on PD
hoping for home hemo starting to build a fistula 1/14
cause PKD diagnosed age 14

Wife to Ed (who started dialysis 1/12 and got his kidney 10/13)
Mother to Gehlan 18, Alison 16, Jonathan 12, and Evalynn 7. All still at home.
www.donate2benefit.webs.com
Jean
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« Reply #1 on: August 09, 2013, 01:00:08 AM »

Glad you did not have a lot of pain. I am facing the same thing myself in a few months ( at least I hope I have a few left.) I am scared of the whole thing. Were you???
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One day at a time, thats all I can do.
Sydnee
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« Reply #2 on: August 09, 2013, 01:12:19 PM »

Yes I am, and I was scared. But Ed (my hubby) has been on PD a year now with not problems he was on in-center hemo for six months before that. I can't help but think that bad things will happen to me after all my family members that went on dialysis all died young.
But Ed shows me it doesn't have tobe that way.
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After a hard fight to not start I started dialysis 9/13
started on PD
hoping for home hemo starting to build a fistula 1/14
cause PKD diagnosed age 14

Wife to Ed (who started dialysis 1/12 and got his kidney 10/13)
Mother to Gehlan 18, Alison 16, Jonathan 12, and Evalynn 7. All still at home.
www.donate2benefit.webs.com
MooseMom
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« Reply #3 on: August 09, 2013, 01:26:29 PM »

Glad you did not have a lot of pain. I am facing the same thing myself in a few months ( at least I hope I have a few left.) I am scared of the whole thing. Were you???


Jean, I went back and looked at your very first post in which you said that you'd be on dialysis within a year.  That post was dated 15 April, 2009.  A little over 4 years ago, right?  So, it must have been so hard for you, these past 4 years, watching your renal function slowly decline.  I can empathize; I did that for 8 years, and I spent that 8 years in an almost constant state of anxiety.  I didn't realize that now you are really that close to having to start dialysis.  Is there any chance your kidneys might still be chugging along two years or so from now?  Or do you really feel that it truly is a matter of months?

I don't blame you for being scared.  :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
MooseMom
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« Reply #4 on: August 09, 2013, 01:28:11 PM »

Yes I am, and I was scared. But Ed (my hubby) has been on PD a year now with not problems he was on in-center hemo for six months before that. I can't help but think that bad things will happen to me after all my family members that went on dialysis all died young.
But Ed shows me it doesn't have tobe that way.

You just keep using Ed as an example, OK?  I'm glad that surgery went well.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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