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Author Topic: Epomans Kidney Talk Podcast  (Read 20039 times)
Wattle
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« on: March 03, 2007, 01:23:23 AM »

Here is the link to Epomans podcast.   :grouphug;


http://www.rsnhope.org/kidneytalk-podcast/show-index/its-a-hard-knock-life-for-kidney-patients/




Edited: Updated link to podcast - okarol/admin
« Last Edit: May 10, 2013, 09:58:23 PM by okarol » Logged

PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
thegrammalady
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« Reply #1 on: March 03, 2007, 03:45:57 PM »

thank you
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s
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Ohio Buckeye
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« Reply #2 on: March 03, 2007, 08:08:07 PM »

I tried to listen to this and it cuts out every 3 or 4 words.
Can only get bits and pices of the talk.
Is there something special you have to do or have to get it?
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If I must do this to live, I must strive to live
while I am doing this.
Sluff
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« Reply #3 on: March 03, 2007, 08:26:40 PM »

I tried to listen to this and it cuts out every 3 or 4 words.
Can only get bits and pices of the talk.
Is there something special you have to do or have to get it?



Allow it to run through and completely load. Then it should sound better.
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Ohio Buckeye
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« Reply #4 on: March 03, 2007, 08:47:37 PM »

ok, thanks Sluff.
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If I must do this to live, I must strive to live
while I am doing this.
RichardMEL
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« Reply #5 on: March 04, 2007, 04:49:49 AM »

[ edited out upon reading the news about Epo ]

I am interested to listen to this podcast. I had thought of doing something myself... but not sure about it.
« Last Edit: March 04, 2007, 05:06:11 AM by RichardMEL » Logged



3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
mcjane
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« Reply #6 on: March 05, 2007, 09:35:05 PM »

I have the same problem with it cuting off. I'm told it's because I'm on dial up. If your on cable it should play through.

I also have the same problem watching anything on youtube.

My dial up is 9.95 a month, cable is 42.00. Too much of a difference to switch.

You guys that are having trouble, are you also on dial up using the phone lines?
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aharris2
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Volcan Pacaya, Guatemala

« Reply #7 on: March 23, 2007, 04:14:14 AM »

i think this post should be stickied (??)


cheers,

Rolando
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
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« Reply #8 on: March 23, 2007, 05:50:03 AM »

Stickied upon your request.



Sluff, Administrator
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okarol
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« Reply #9 on: September 30, 2007, 01:09:48 PM »

You can go directly to hear the podcast featuring Epoman by going to http://www.rsnhope.org/programs/kidney_talk3.php and scrolling down to

November 7, 2006
It's a Hard Knock Life for Kidney Patients

There are also other good interviews available.

It's cool to hear Epoman's voice. I miss him.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Phurball
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« Reply #10 on: January 05, 2008, 05:21:42 AM »

Thank you Bill.      Your legacy will live on and on.   IHD will always bring us closer to you.   I feel like I knew you, although I did not, but your spirit permeates IHD, and I am so glad it does.


~ Cee
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We can do no great things, only small things with great love.


Fistula installed 04/11/07
okarol
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« Reply #11 on: August 23, 2008, 11:05:25 AM »

 :bump;

Listen to Epoman if you haven't already.  :)

There are many good topics to listen to on KidneyTalk. Check them out.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #12 on: January 06, 2009, 11:46:28 AM »

:bump;

Listen to Epoman if you haven't already.  :)

There are many good topics to listen to on KidneyTalk. Check them out.
re-bump
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
CybeR
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DODGERS!

« Reply #13 on: October 23, 2009, 07:31:11 PM »

This is great! Thanks
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Zach
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"Still crazy after all these years."

« Reply #14 on: October 23, 2009, 08:08:52 PM »

A MUST hear!

8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
glitter
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« Reply #15 on: November 11, 2010, 04:05:42 PM »

bump for new peeps  :flower;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

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nephrectomy april13,2006
dialysis april 14,2006
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #16 on: February 02, 2011, 05:49:14 PM »

 :bump; Always good to listen to Epoman's interview.  :clap;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Silverstar
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« Reply #17 on: February 23, 2011, 11:37:12 PM »

Thank you for making this a sticky. And most of all thank you Epoman for all You've done.
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chook
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Born to be a Granma!

« Reply #18 on: March 05, 2011, 08:15:40 AM »

This is well worth a listen. Great to listen to OUR founder!
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
Whamo
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« Reply #19 on: November 06, 2011, 03:58:03 AM »

Epoman sure suffered a lot of pain.  We all have our own crosses to bear, but we can take heart in his positive approach to the challenges of the disease.  The force was strong with Epoman.
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Renal-dialysis.net
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« Reply #20 on: March 31, 2012, 05:18:06 PM »

Thank you very much for this useful link
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #21 on: May 10, 2013, 02:41:58 PM »

 :bump; Hear Epoman's podcast.

(Oh Thank you Henry! I corrected the link!)
« Last Edit: May 10, 2013, 09:57:34 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #22 on: May 10, 2013, 09:58:57 PM »

 :yahoo; Now it works!!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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