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Author Topic: Moving centers next week  (Read 8138 times)
kitkatz
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« on: June 22, 2013, 06:53:32 PM »
Finally a nocturnal center has opened closer to home  For the last three to four years I have been driving 28 miles each way to go to nocturnal dialysis. FMC has a nocturnal center in Loma Linda. Just opened u and I requested a move.  Instead of 28 miles it will be 8 miles.  Hubby and daughter who have been taking me and picking me up will be much happier  It is much closer to home.  It is a brand new center. 
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Angiepkd
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« Reply #1 on: June 22, 2013, 08:33:42 PM »
That is great news!  I wish there was a nocturnal center near me.  Best of luck with the move! :yahoo;
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
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April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
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Jean
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« Reply #2 on: June 23, 2013, 01:54:36 AM »
That's great. Let us know how it works out for you. !!
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okarol
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« Reply #3 on: June 23, 2013, 01:55:59 AM »
 :2thumbsup; Great!!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
boswife
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us and fam easter 2013
« Reply #4 on: June 23, 2013, 09:19:44 AM »
man oh man!! every bit helps.  This will make such a nice difference for all ... I wish the center near us did noc.... I think i would consider the switch from hh to that and feel good about it. 
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
noahvale
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« Reply #5 on: June 24, 2013, 10:27:42 AM »
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« Last Edit: September 21, 2015, 03:16:21 PM by noahvale » Logged
willowtreewren
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« Reply #6 on: June 24, 2013, 11:27:27 AM »
Excellent news!  :yahoo;

I agree that every bit of time you can eek out is great!

Here's to positive change!

Aleta
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galvo
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« Reply #7 on: June 24, 2013, 11:10:23 PM »
Enjoy!
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Galvo
Chris
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« Reply #8 on: June 24, 2013, 11:22:36 PM »
Great News!
I just hope the hired help is good too!
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deniferfer
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« Reply #9 on: June 26, 2013, 08:28:47 PM »
That is really wonderful! Hopeful they well get some new comfy chairs to go with that new center!  :2thumbsup;
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kitkatz
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« Reply #10 on: June 26, 2013, 10:52:00 PM »
I start at the new center tomorrow Thursday.  My whacked out BP ought to give them a few starts tomorrow night. Oh well. I know my body and dialysis after so many years on it.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kitkatz
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« Reply #11 on: June 29, 2013, 10:11:13 PM »
Oh my! seven miles from h0ome instead of 23 miles.   15 minutes instead of forty.  The center is nice, clean. Staff was welcoming.  They were a gentle stick for the first tim.  TV has more channels than I know what to   do with.  Internet.  Chairs,no beds, yet.  BP of 87 wigged one person out.  I told them it was high for me.  They did not tell me TTH SUNDAY!   Showed up Saturday expecting dialysis, no one there.  Would have been nice to know that.  Paperwork does snot say days.  Oh well. Try again tomorrow.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Jean
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« Reply #12 on: June 30, 2013, 01:37:05 AM »
Well, I am glad it is clean and nice too. Wouldn't you know it, looks as if I might be at the DaVita on Magnolia by the first of the year. My GFR has gone down to 20 ( not too bad still ), but my Hemo is now at 9 and my creat double what it should be, so I know I am on borrowed time. And now you wont be there to greet me. Bummer.
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One day at a time, thats all I can do.
kitkatz
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« Reply #13 on: June 30, 2013, 03:42:43 PM »
Bummer, Jean.  But I am so much closer to home. Will you do nocturnal?
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Jean
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« Reply #14 on: July 01, 2013, 12:38:15 AM »
I am gonna try to do nocturnal. I think I mentioned to you at one time that my Neph will not discuss my dialysis options with me. So, now, he is sending me to CKD school and I will find out there I hope, whether or not I can do PD, then I can make my choice with out any confusion.
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One day at a time, thats all I can do.
kitkatz
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« Reply #15 on: July 04, 2013, 11:46:51 PM »
It takes us ten minutes to get to the new center. Nice travel time.   My new tech is a Disney freak so we have something to talk about.
My BP is still nutso.  Doctor says above 75, I wished him good luck.  No, he was serious.  So my BP hits 75 and below  The nurse went whacko. I had my BP taken almost 100 times the other night.  No sleep.
They will adjust to me.
« Last Edit: July 04, 2013, 11:48:11 PM by kitkatz » Logged


lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Jean
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« Reply #16 on: July 05, 2013, 12:33:29 AM »
I am glad you like it. Hope it continues to work for you.
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One day at a time, thats all I can do.
kitkatz
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« Reply #17 on: July 08, 2013, 10:12:13 PM »
I have been looking at old posts on IHD.  It was five years ago August 1 that I started nocturnal dialysis in Riverside.  I cannot believe it has been that long.  The new center is working out. I have not slept yet. I need an egg crate and a head pillow to be more comfortable.  My low BP is making the nurses crazy and the docs.  They want the upper number over 80 and I laugh.  I like the fact they want to solve the problem and keep me above a certain level.  They call the doctor for orders at the drop of a hat. I like that the docs are more involved in care at this unit.  I have actually had conversations this clinic with two doctors.
It is a work in progress.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
galvo
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« Reply #18 on: July 09, 2013, 12:28:23 AM »
As is life!
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Galvo
okarol
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« Reply #19 on: July 09, 2013, 12:18:51 PM »
Would a little salt help your BP? Eat a pickle an hour before?  :waving;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
boswife
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us and fam easter 2013
« Reply #20 on: July 09, 2013, 02:54:32 PM »
wow kitkatz,,, your bp and bos seem to *had* been running side by side. :(  Only, weardest thing, he had some sort of horrid (thought he had heart attack and died in my arms) sesiure type thing, collapsed, and eversince, his bp is staying just above 100 most of the time.  I watch closly still of course, and sometimes still give the m pill at start as it just keeps me feeling a bit better, and it doesnt raise it but hold it.  Only give it when he starts in the 90's. I sure hope you start sleeping, it surly makes a world of difference.  Bless you and all your/our hearts for all you go/get through. 
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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