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Author Topic: Travel with NxStage  (Read 2817 times)
CebuShan
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« on: June 15, 2013, 12:00:55 PM »

Have any of you traveled with your unit and had NxStage send your supplies to your destination?
How did that work out?
The reason that I ask is this:
I got a call from my Disaster Relief Team to help out up in Chicago (just about 2 hrs from me. Close enough to test).
I knew I would be up there or a week. I called and made all the arrangements to get some supplies delivered. I was assured that everything would be fine.
I brought enough supplies to dialyze twice. Dialyzed before I left on Sunday. My supplies were being delivered on Wednesday.
Wednesday comes, no supplies. I called UPS and was told that my supplies were at the distribution center and I could PICK THEM UP!!
We went to the center, no supplies! I was told the driver had not returned yet. So I waited for an hour past the time when he was supposed to get there. The place closed so I had to leave. Called UPS to explain that they packages were medical supplies and I needed them ASAP. I was again told that they were at the center and to go pick them up. I explained that the center was closed. UPS told me that the soonest they could deliver was Friday! (Mind you, we were leaving on Saturday!) I had already missed a day waiting for my supplies that hadn't arrived and now I would have to miss another day hoping they showed up Friday! After discussing it with my team, I decided that the best thing to do was just go home. I contacted NxStage and asked them to just cancel the order. No problem they tell me.
 So, my husband drives up to get me. About a half hour after we left, I get a phone call from my team. UPS showed up with 1 box! ONE BOX!! What was I going to do with ONE BOX?!
One of my team members offers to bring it with her on her way home. OK (so I thought!) I contacted NxStage again and they assured me that the rest of the order had been cancelled and UPS was to return it.
Friday night I get another phone call from my team that 11 boxes had now showed up! WHAT?!
Fortunately, the same team member has room to bring the boxes with her.
 I contact NxStage again and they say that UPS was contacted and knew they were supposed to return the boxes!
UPS claims that the whole mix up was because they had the wrong address! LIARS!!! The label on the boxes showed the correct address!   :Kit n Stik;

So much for being portable!
Based on my experience, I don't think I can afford to go anywhere where I can't bring all of my needed supplies with me!  :thumbdown;
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
Angiepkd
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« Reply #1 on: June 15, 2013, 02:46:42 PM »

That really stinks!  I am hoping to do some traveling this summer, but maybe I will bring my own supplies.  I would hate to be ten hours away and have this shipping problem.  Hopefully it was just a fluke?  I would give it another try if you can travel someplace close again.  Let us know how it goes if you give it another shot!
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
cassandra
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When all else fails run in circles, shout loudly

« Reply #2 on: June 15, 2013, 03:04:01 PM »

What a ridiculous situation Cebushan. I did get my boxes etc delivered to the Netherlands, and all went well. I'm so sorry to read about your experience, and hope you don't give up cos it's fantastic if all goes properly.

Maybe with your next try you can leave after it is confirmed that your boxes are already delivered.

Good luck next time, love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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