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Author Topic: Hello from Dialysismom  (Read 3032 times)
dialysismom
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« on: May 24, 2013, 07:33:15 AM »
I am the mom to an adult, son who is just starting pd.  There is so much to learn it is sometimes overwhelming.  Glad to see so many and learn from all experiences.
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MaryJoe
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« Reply #1 on: May 24, 2013, 09:06:23 AM »
 :waving;  I remember how overwhelmed I felt when I was first diagnosed!  Many IHDers came to my rescue with sound advice and words of encouragement and comfort, as they will for you.  Welcome to IHD. I hope your son does well on PD. There is much information on other threads, and if your questions aren't answered already, don't hesitate to ask.
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
MaryD
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« Reply #2 on: May 24, 2013, 05:14:40 PM »
Welcome, dialysismom!      :welcomesign;

How old is your son?  Dialysis is a whole new way of life for you both.  Best wishes.
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dialysismom
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« Reply #3 on: May 24, 2013, 09:07:12 PM »
He is 42 years old. 
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papacat
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« Reply #4 on: May 25, 2013, 01:14:30 AM »
 :welcomesign; dialysismom
You have come to the right place to learn about PD. I spent many hours looking at different threads and learned quite a bit of info about PD here.
papacat
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Joe
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« Reply #5 on: May 25, 2013, 07:39:13 PM »
Welcome dialysismom, and I hope we can help as you go through this experience. Ask away, someone likely has been there and done that and can answer questions for you.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
Poppylicious
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« Reply #6 on: May 27, 2013, 09:41:05 AM »
 :welcomesign;
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
boswife
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us and fam easter 2013
« Reply #7 on: May 27, 2013, 11:07:40 AM »
Welcome DM ;)  We all (cargivers/partners/ patients :) ) are all here for you and your son.  Im caregiver/partner to hubby who has been on hemo for about 3 1/2 years. Almost 2 1/2 years of those we have been on 'home hemo' w/nxStage.  It's all good, wish we could have gone PD but this is what we got so we feel blessed it's available :)  Im so glad you found your way here as it really REALLY eases your heart to know of how do-able it all is, and when your feeling its not, well, were here to lean on.   :flower;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
cassandra
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When all else fails run in circles, shout loudly
« Reply #8 on: May 27, 2013, 01:29:06 PM »


Welcome to the site DM.     :welcomesign;

Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
willowtreewren
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My two beautifull granddaughters

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« Reply #9 on: May 27, 2013, 01:40:13 PM »
 :welcomesign;

You will get lots of good info here!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Wildrose
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« Reply #10 on: May 31, 2013, 02:10:21 AM »
 :welcomesign;
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1995 - Diagnosed with 'some kind' of kidney disease during first pregnancy at 16 yrs old due to excess protein in urine
1998 - Biopsy diagnosis of IGA Nephropathy at age 18
2007 - Successful second pregnancy, creatnine of 1.8 something
2009 - Successful third pregnancy creatnine of 2 something
2009-November of 2011 - Somehow went from Creatnine of 2 something to 5.43
November 2011 - Diagnosed with End Stage Renal Disease
3/28/12 - Started Peritoneal Dialysis
5/21/12 - Ended up in hospital for 5 days with PD fluid leaking through hole in diaphragm to right lung
5/25/12 - IJ catheter placed, 5/26/12 - First in center hemo treatment
6/15/12 - Back on PD for three weeks and hemo at same time, 7/7/12 - PD fluid leaked again, off PD and still on hemo, 7/15/12 - on PD again and hemo
7/23/12 - chest xray shows fluid leak again, off PD for one month with possible thoracic surgery in future to fix hole in diaphragm. 5.70 creatnine
8/7/12 - 24 hr urine test shows improved kidney function. 3.47 creatnine - Dr reduced hemodialysis from 3x's to 2xs a week.
CebuShan
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« Reply #11 on: June 01, 2013, 09:23:03 AM »
   :welcomesign;  DialysisMom!
All the info is overwhelming! The people here are great about answering any and all questions! Feel free to come often!
Best of luck to you & your son!
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
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