A positive post!

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A positive post!

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Topic: A positive post! (Read 2974 times)

Angiepkd

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A positive post!

« on: April 06, 2013, 10:35:32 AM »

I wanted to take a minute to post something positive! I completed my first week at home and I feel great! Button holes are working well, labs are good and we are getting into a routine that fits our busy schedules. I cannot begin to explain how much better I feel both mentally and physically. Thanks to everyone on this site for your help and taking the time to reassure me in my panicky moments! Fingers crossed for continued smooth sailing. For anyone considering switching to home hemo, my advice is to go for it. All of the things that seemed so overwhelming to me have turned out to be very doable, especially self cannulating. I am by no means an expert, but please PM me if you want to ask any questions about my experience. Thanks again for the support!


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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol! So far we are doing great!

MooseMom

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Posts: 11325

Re: A positive post!

« Reply #1 on: April 06, 2013, 10:40:16 AM »

I want to thank you for posting this, angiepkd! As jbeany posted on another thread, most people are too busy enjoying life to take the time to post something positive on this site (which is a good thing!), so it is very reassuring to the rest of us when we read about such good news. I'm so glad home hemo is fitting well into your life. You should be proud to have achieved so much!


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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."

amanda100wilson

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Re: A positive post!

« Reply #2 on: April 07, 2013, 10:52:49 AM »

love to hear this?


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ESRD 22 years
-PD for 18 months
-Transplant 10 years
-PD for 8 years
-NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...

lmunchkin

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Posts: 2471

"There Is No Place Like Home!"

Re: A positive post!

« Reply #3 on: April 07, 2013, 01:08:58 PM »

Quote from: amanda100wilson on April 07, 2013, 10:52:49 AM

love to hear this?

Yes maam it is! Just reaffirms our Advocacy for D at home, especailly NxStage!


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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present. NxStage at home

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