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amykathleen2005
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« on: March 04, 2013, 08:57:07 PM »
Hi,

Just joining. My husband is a 30 year old type 1 diabetic with kidney failure and will need dialysis in the near future. I joined to learn about other's experiences. We are hoping to do home hemo, ideally nocturnal home hemo. Also we are looking into transplants.
« Last Edit: March 04, 2013, 08:59:54 PM by amykathleen2005 » Logged
MaryD
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« Reply #1 on: March 04, 2013, 09:36:50 PM »
Hi amykathleen!  Welcome.     :welcomesign;

You sound as though you have a fairly good handle on kidney failure already.  I'm on PD, but there are many others doing home HD just waiting to have their brains picked.

Look forward to hearing more from you.
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MooseMom
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« Reply #2 on: March 04, 2013, 10:28:02 PM »
Well, there are lots of people who are happy to share their experiences!  If you have specific questions, IHD is the font of all knowledge. :P
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Poppylicious
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« Reply #3 on: March 08, 2013, 06:23:45 AM »
 :welcomesign; amykathleen! You do sound quite prepared already!  Hope we can be of help!

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
smcd23
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The patient, the baby and the donor - October 2010

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« Reply #4 on: March 08, 2013, 07:49:52 PM »
 :welcomesign;

Another young person! I don't love the circumstances that bring you here, but I like hearing from other young folks who are dealing with ESRD because of some of the similar challenges we face. Hope you find the info you need here.
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
lmunchkin
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"There Is No Place Like Home!"
« Reply #5 on: March 09, 2013, 06:56:10 PM »
Quote from: MaryD on March 04, 2013, 09:36:50 PM
Hi amykathleen!  Welcome.     :welcomesign;

You sound as though you have a fairly good handle on kidney failure already.  I'm on PD, but there are many others doing home HD just waiting to have their brains picked.

Look forward to hearing more from you.

That would be me, Amy!  Ive done both on my husband.  I remember some of PD, but can  really help with the home hemo. Have not tried the nocturnal yet!

Please feel free to ask!!!

Again welcome to IHD & God Bless,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Rerun
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Going through life tied to a chair!
« Reply #6 on: March 12, 2013, 09:06:03 AM »
Hi Amy,   
Welocme to IHD.  I'm so glad you found us.  I am sure we can answer your questions.  Stay tuned to IHD.

Rerun, Moderator   :welcomesign;
« Last Edit: March 12, 2013, 09:07:57 AM by Rerun » Logged
Speedy1wrc
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« Reply #7 on: March 12, 2013, 05:39:43 PM »
Howdy and welcome!
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bennyswife
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« Reply #8 on: March 13, 2013, 09:56:31 AM »
:welcomesign; Amy, this is a great site for any questions you may have about the "dreaded dialysis". ;D




Edited: Fixed smiley error - okarol/admin
« Last Edit: March 29, 2013, 01:18:38 AM by okarol » Logged
Mr. B 123
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« Reply #9 on: March 14, 2013, 11:42:33 PM »
 :welcomesign;
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frankswife
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« Reply #10 on: March 15, 2013, 07:10:14 AM »
 :welcomesign;
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CebuShan
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« Reply #11 on: March 15, 2013, 06:52:14 PM »
    :welcomesign;  AmyKathleen! I do home Hemo. I don't do nocturnal though. My session usually lasts about 2 hours 15 minutes/ 5 days a week. That's just about long enough to watch a movie or a couple of TV shows. That's what we usually did in the evenings any way. I use a NxStage unit. I'd be happy to try to answer what I can about HHD.
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
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