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Author Topic: Day 1 of NxStage training  (Read 3225 times)
Angiepkd
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« on: March 04, 2013, 03:04:59 PM »

Today was the first day of training and my first time doing dialysis. I am afraid to jinx myself, but everything went well. My nurse, Denise, was wonderful and had the machine set up for me. We went through the steps of getting hooked up and what supplies to have ready (tape, gauze etc.).  She taught me how to listen to my fistula with a stethoscope. We started using 17 gauge needles which she inserted with no problem and no Emla cream, and they didn't really hurt at all. We drew labs and she explained all of the things I would need to do for that. She went through the settings on the cycler and we filled out the log sheets every 30 minutes as required. I do have a slight narrowing in my fistula that was causing a higher venous pressure than she wanted, so I may be headed to the access center, but arterial pressure was good. I was 1kg under the dry weight my doc prescribed, so we didn't remove any fluid. That number will probably be adjusted slowly as my treatment continues. My only complaint is I was freezing for most of the time and I did get a headache. BP and pulse were good and I didn't have any arm pain during the run.  I am hoping that venous pressure comes down tomorrow, because I really dislike going to the access center, but all in all it was a successful first day. I brought home some manuals to read over tonight and will probably get to bed early. I am not used to getting up so early lol! Tomorrow we are going to go through the whole set up process. Fingers crossed it goes as well as today!   :2thumbsup;
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
newgrl
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« Reply #1 on: March 04, 2013, 03:20:05 PM »

Angie,

I am glad it well for you today.  Please keep us updated.  I start training next Monday.  However, I have already been on dialysis for a while now (October 2012).  I am so excited to be able to do this in the comfort of my own home.  How long did your treatment last?
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Angiepkd
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« Reply #2 on: March 04, 2013, 03:30:05 PM »

Today I ran at 250 for 3 hours. It was explained that the low pressure rate meant longer run times for now. Each week they will bump up the pressure until I reach the rate ordered by my neph. I am more than happy to keep the numbers low and run a little longer, but it sounds like I will be bumped up to 400 or 450.  I am curious what rate other NxStagers use? My FF is 40 and I am to run 25 liters of dialysate per treatment.
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
cattlekid
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« Reply #3 on: March 04, 2013, 03:57:14 PM »

I have a FF of 35 and run at 450 with 25 liters.  My treatments are exactly three hours clock time, 2:45 treatment time.

Today I ran at 250 for 3 hours. It was explained that the low pressure rate meant longer run times for now. Each week they will bump up the pressure until I reach the rate ordered by my neph. I am more than happy to keep the numbers low and run a little longer, but it sounds like I will be bumped up to 400 or 450.  I am curious what rate other NxStagers use? My FF is 40 and I am to run 25 liters of dialysate per treatment.
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Angiepkd
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« Reply #4 on: March 05, 2013, 04:14:48 PM »

Thanks cattlekid!  Makes me feel better to know what others are doing   :)
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
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