low phos, unable to treat

[sullidog]

As you all know I was put on k-phos neutral for very low phos, however I had to be taken off do to a big jump in my k which went from 4.5 to 5.9. My doctor switched me to neutra-phos saying it didn't have any k in it, however my insurance which is caremark (medicare only pays for my rejection meds but not the other side meds I'm taking. However, I found out that caremark does not cover this med and the only thing they will cover is for me to take the k-phos which I can't because it makes my k go up to too high of a level and my tx center told me that if I want treatment for this I'd have to pay for it which I really don't want to, because I'm scared of what the cost may be and even when I was on the k-phos my phos level stayed the same, 1.0 or less. I'm having aches in my joints in my feet and ankles, could the low phos cause this?
Does anyone have any suggestions on what I can do? I don't have medicare drug coverage and only have drug coverage through my employer and I'd like to treat this because I don't want bone problems.

[Deanne]

I'm pre-tx so I don't have an answer about the phos problem. However, the pain your experiencing sounds like what I had with prednisone several years ago. Is this a possibility?

[sullidog]

I'm on steroid advoidence but I guess it could be from the other rejection meds, I will have to look into it with my tx center.

[amanda100wilson]

Can't you get your doctor contact your insurance provider and state that is medically necessary for you to have this version of phosphate?

[chris73]

I have low phos. Dr told me to drink diet pepsi/coke everyday...my levels seem to be ok.....Hope this helps some

[Speedy1wrc]

Sodium hexametaphosphate is a preservative sort of. It enhances flavor in a food that loses it's freshness quickly. It's sort of megphosphorus and those of us with an issue with high phosphorus must avoid at all cost. Many diet drinks contain it. I think Aldi's Fresh and Easy brand does.