So thrilled!!! Starting Nocturnal NxStage!

[KatieV]

I've posted before about trying to get permission from my center to do Nocturnal dialysis with my NxStage cycler.  After months of indecisiveness, I finally got a concrete answer of "No" from them.  I decided I couldn't keep living the way I've been - it's too stressful, not enough sleep, and I don't have time to do anything but work, dialysis, and sleep! 

I had heard about a center in New York that did Nocturnal HomeHemo, so I called them up.  Last Monday, my husband and I visited the center, met the team, and started the process of switching my care.  They have been super fast about getting the ball rolling!  I have a home visit on Monday and we go down on Thursday for two days of training on the heparin pump & securing lines.  They do remote monitoring through the internet.

It is a 2.5 hour drive one way that we'll have do once a month, but it will give us about 20 "free" hours a week.  I will be able to make dinner (my husband is getting sick of cooking) and work on my projects!  I am so excited!  It has been feeling like I haven't had a life.  I'm also looking forward to possibly getting off my binders and blood pressure meds.     

[boswife]

   couldnt be happier for you 

[noahvale]

*

[chook]

All the best with it! Keep us updated on how you go.

[okarol]

  Hope it works out great!

[M3Riddler]

I've posted before about trying to get permission from my center to do Nocturnal dialysis with my NxStage cycler.  After months of indecisiveness, I finally got a concrete answer of "No" from them.  I decided I couldn't keep living the way I've been - it's too stressful, not enough sleep, and I don't have time to do anything but work, dialysis, and sleep! 

I had heard about a center in New York that did Nocturnal HomeHemo, so I called them up.  Last Monday, my husband and I visited the center, met the team, and started the process of switching my care.  They have been super fast about getting the ball rolling!  I have a home visit on Monday and we go down on Thursday for two days of training on the heparin pump & securing lines.  They do remote monitoring through the internet.

It is a 2.5 hour drive one way that we'll have do once a month, but it will give us about 20 "free" hours a week.  I will be able to make dinner (my husband is getting sick of cooking) and work on my projects!  I am so excited!  It has been feeling like I haven't had a life.  I'm also looking forward to possibly getting off my binders and blood pressure meds.     

Katie,

This shows that you care about quality of your treatment. Not many folks would drive the extra miles to get better quality dialysis.   When I had a move from PA to VA, I drove back to PA for approx 6 months until the clinic I was going to switch to in VA was able to provide NxStage. I was their first patient on NxStage and the nurses etc had to be properly trained to cover me.   The 380 miles each way was worth traveling to be able to stay on NxStage until the other clinic was ready for me.   
Congratultions on holding your ground... Many people would say they woudl switch untit it actually comes down to make the move....