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| | |-+  I have a new kidney! i also have a post op infection, woot!
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Author Topic: I have a new kidney! i also have a post op infection, woot!  (Read 4705 times)
MomoMcSleepy
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My son Roddy McSleepy at 6 months! sry pic sidewz

« on: January 30, 2013, 01:15:01 PM »

 :bandance;

I wrote this once already, but got knocked offline.

I received a living donor transplant from my husband two weeks ago today.  so far mostly good.  Monday i.woke up.with a temp. of 100.8, and is to have my brother drive me to the ER with a call at 6:52 am.  i had had trohble sleeping for a few days, since I wasn't taking pain meds anymore, I guess.  insomnia ran me down maybe?  I was being very careful and clean.  So, I have been in the hospital since Monday, the phlebotomist (?) Though i'd never left, asking " why did you.change rooms?"  Ha. 

Cr was 0.8, now 1.2 cause of meds and infection.  I have named te kidney "Howard" after Howard the Duck.  My husband has a colleague with some.bad habits and a checkered past, and this guy once rescued an injured duckling and nursed it to health and maturity.  He hopes that sort of makes up for some foibles and tips the scales with God.  My husband.has been calling this transplant his duck, so I named the kidney "Howard," after my husband's favorite duck-themed movie.  Could not change my avatar (again) so I'm posting a recent pic here.
 The pic is from today.  i washed my hair with hospital shampoo plus bath wash, but had no gel or anything.  I morbidly donated my hair before i had surgery, in case i died.  i had 13 inches cut off!  My new cut does well with no work. Color me pleased.  i had some real "bad lighting n the porch" issues though.  Will post a pic of my hospital board later.  My husband were highlarous things on it, such as under "tests" he wrote "fart analysis."  that's everyone's favorite joke of the board.. Ps--just edited this!  What an illegible mess!   I am so sorry, all I had was my phone, and it's autocorrect is terrible!  I also couldn't scroll up and down to edit. Mi kept getting Interrupted by nurses, etc., too, and would get knocked off the hospital WiFi.  My hospital board had my mom's number on it, so I would have to edit before posting,  which frankly may never happen.
« Last Edit: February 03, 2013, 06:46:44 AM by MomoMcSleepy » Logged

35 years old, first dx w/  chronic renal insufficiency at  28, pre-dialysis

born with persistent cloaca--have you heard of it?  Probably not, that's ok.

lots of surgeries, solitary left kidney (congenital)

chronic uti's/pyelonephritis

AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
Howard the Duck
Rerun
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« Reply #1 on: January 30, 2013, 01:22:51 PM »

Write more when you are not on pain pills.  I could not understand most of this..

    :rofl;

I did understand that your husband gave you a kidney.  YIPPEEE  for him.  I'm glad you went back in to get the infection under control.

Best of duck  (HA HA)

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Lexxtech18
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Be good to yourself when nobody else will.

« Reply #2 on: January 30, 2013, 02:14:30 PM »

Yay, they must have given you the good stuff, Momo!  :rofl;

I wish the best of luck to you, hubby, and Sir Howard of the Duckdom!  :yahoo; You look so happy in those pics, keep it up, girl!  :cuddle;
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Diagnosed with Bilateral Hypoplastic Kidney Disease - 1990
First Livinig Donor Transplant (from my mommy!) - October 3, 1996
Transplant Failed/Put on Hemodialysis - May 2005
Second Kidney Transplant (deceased donor) - July 2010
Transplant Failed/Restart In-Center Hemodialysis - February 2011
jbeany
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« Reply #3 on: January 30, 2013, 02:23:52 PM »

 :clap; :clap; :clap;

I'm trying to figure out if it's really good meds or just a combination of swipe and auto-correct!

Congrats, Momo!  This is fab news, even if you're having this little bump in the road right now.

If it walks like a duck and talks like a duck - it's a kidney!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #4 on: January 30, 2013, 02:52:43 PM »

 :bandance; (we need a dancing kidney)

Congratulations!! Hope you heal well, hubby too!

 :clap; :clap; :clap; :clap; :clap; :clap; :clap;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rerun
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Going through life tied to a chair!

« Reply #5 on: January 30, 2013, 06:07:50 PM »

That is a dancing kidney who is happy to have bananas again!

             :bandance;
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willowtreewren
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My two beautifull granddaughters

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« Reply #6 on: January 30, 2013, 06:23:43 PM »

Congrats!!!!!!

 :yahoo; :yahoo; :yahoo;

Yep, I think the meds were messing with you.  :yahoo; :rofl;

But it's all good!  :2thumbsup;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
MaryJoe
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« Reply #7 on: January 31, 2013, 05:42:23 AM »

I love "I got a transplant" posts! :yahoo;  I'm sorry to hear you have an infection, but it sounds like everything is under control and improving.  I hope your husband knows what a hero he is  :angel;

(Get the name of that drug!  :rofl;)
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
cariad
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« Reply #8 on: January 31, 2013, 11:26:01 AM »

I understood every lovely, joyous word! Should I be concerned?  :rofl;

Over the moon for you, MoMo. You and your husband have now joined an elite club and we welcome you to the post-transplant world.  :cheer:

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MooseMom
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« Reply #9 on: January 31, 2013, 11:37:53 AM »

Dear MoMo,

I am very sorry that you have a post-op infection.  However, that was the funniest post I've read in a long time.  I apologize for giggling. :P

Congratulations on your new kidney.  I do hope that a fart analysis won't be part of any post-tx protocol.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #10 on: February 01, 2013, 04:28:03 AM »

However, that was the funniest post I've read in a long time.  I apologize for giggling. :P
I second this ...  ;D

Sorry about the infection Momo, but yay for hubby (both for his 'Howard' and his entertaining humour!)
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
AguynamedKim
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« Reply #11 on: February 02, 2013, 10:26:20 PM »

Congratulations on the addition of Howard!  Taking great care of each other!
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MomoMcSleepy
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My son Roddy McSleepy at 6 months! sry pic sidewz

« Reply #12 on: February 03, 2013, 06:48:22 AM »

That is a dancing kidney who is happy to have bananas again!

             :bandance;

Yes!  And oranges, too!  And French fries....lots of French fries.   :yahoo;
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35 years old, first dx w/  chronic renal insufficiency at  28, pre-dialysis

born with persistent cloaca--have you heard of it?  Probably not, that's ok.

lots of surgeries, solitary left kidney (congenital)

chronic uti's/pyelonephritis

AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
Howard the Duck
MomoMcSleepy
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My son Roddy McSleepy at 6 months! sry pic sidewz

« Reply #13 on: February 03, 2013, 07:21:18 AM »

 Oh, gosh, I have fixed up the post a bit.   :shy;

Currently laying in bed with my touchpad.  Husband sleeps on the couch.  We are together, though, cause my mom and friend dragged the mattress downstairs before we got home after surgery.  We have a quad level, and the upstairs bathroom is gutted, so we have the mattress down here for easier access to the only bathroom.  We had friends over last weekend, and it was like a sleepover!

My brother was re-doing my bathroom, but now might have mono :-(. He started feeling sick the day after he drove me to the hospital, but since we didn't make out or share utensils, I am hopefully safe (plus wouldn't acyclovir help?).

Hubs and I had some very ginger, careful, snuggles yesterday.  He is afraid I'll accidentally hit him in our sleep, we only have a full sized mattress, tight quarters!

I am very pleased with myself for cooking and freezing so much, will make it a regular thing!  I love  having a deep freeze, and food already ready already.  Also friends bring us yummies, too!. We are very blessed!  My husband is eating well and had a good check-up.  He goes back to work on modified duties tomorrow.  We missed a whole week together  :(. For donors, they don't check Cr right away so people don't freak.  He was on Atkins before.  Now he just tries to eat sensibly, and has not gained weight yet!. He's taking good care of himself, which I was worried about.  I had to clean his wound with peroxide.  It is over his belly button (with two small laparoscopy incisions on his side) and gross stuff collects in belly button.  He picked me up Friday and told me it stunk, so I asked the nurse to look, and she said to pour a little hydrogen peroxide, which helped.
Regardless thing is having him clean things, etc., that are too geeky for me.  I don't like to ask him for help, cause he just have me a freaking kidney! 
 He is growing a beard.  I haven't kissed a man with facial hair since college!

I still have another five weeks or so of leave.  I have a clinic, then a blood draw, every week.

The drugs are not so bad.  Prednisone made me a little kooky at 100mg, so they gave me an Ativan script.

I am on half dose of cellcept while infection is treated. 

Oh!  I am on a NODAT study.  "New Onset Diabetes After Transplant". They gave me insulin as soon as I had a high sugar, and I take maintenance doses every morning based on my dinner glucose the night before.  they are trying to prevent diabetes in transplant patients.  I was excited to be in the treatment group, because I already have pancreas problems.  Hopefully we can learn to prevent diabetes!  Only 3 other people in the study now.  My transplant nephrologist calls me every morning, which is a nice bonus (he's the head of the study).. I participated in 2 other studies, too.  I love research!

I still can't drink cause of pancreas, but like this anyway  :beer1;

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35 years old, first dx w/  chronic renal insufficiency at  28, pre-dialysis

born with persistent cloaca--have you heard of it?  Probably not, that's ok.

lots of surgeries, solitary left kidney (congenital)

chronic uti's/pyelonephritis

AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
Howard the Duck
billybags
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« Reply #14 on: February 03, 2013, 08:56:26 AM »

Go  Howard go, wonderful news  MomoMcSleepy both of you take care.
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Leanne
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« Reply #15 on: February 04, 2013, 08:19:37 AM »

Awesome News!  And awesome hubby!  I hope things only continue to get better for you both.
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Leanne

I am more than a patient.  I am a mama, friend, wife, sister, and most of all a person.

41 years old, hemo since November 2011, trained for PD and tried numerous times.  PD did not work for me , it was a nightmare :(
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« Reply #16 on: February 17, 2013, 09:14:30 PM »

YAY!!!!!!!! Fantastic news Momo, except for the infection and the diabetes.  Good on you for the frozen precooked meals  :bow;
 :yahoo; :yahoo; :yahoo; :yahoo; :yahoo; :yahoo; :yahoo;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
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