I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
September 14, 2014, 06:59:40 PM

Login with username, password and session length
Search:     Advanced search
484745 Posts in 29929 Topics by 9437 Members
Latest Member: LoisZ
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: Diet and Recipes (Moderators: kitkatz, paris)
| | |-+  Probiotics?
0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: Probiotics?  (Read 1675 times)
drgirlfriend
Full Member
***
Offline Offline

Gender: Female
Posts: 273


« on: January 04, 2013, 09:25:08 AM »

Hey y'all,

I don't know if this is the best category for this question, but I'd like to know if anyone takes/has taken any probiotic product for digestive issues. The boyfriend has always had constipation problems, even before dialysis, and as you know that's a big deal on pd. He takes Miralax but it tastes terrible and causes other issues. Nopalina is difficult to take if you can't eat yogurt or oatmeal every day. I've tried adding Hi-Maize to things but it isn't enough. Help!
Logged

Boyfriend diagnosed with renal failure Feb. 2011. Cause unknown.
PD Catheter "installed" June 30, 2011.
Began CAPD August 11, 2011.
On transplant list 11/23/11.
Started Liberty Cycler 12/1/11.
monrein
Premium Member
Member for Life
*
Offline Offline

Gender: Female
Posts: 8281


Might as well smile

« Reply #1 on: January 04, 2013, 04:20:23 PM »

I take a multi-strain probiotic once a day with my neph's approval but I'm transplanted now. 
Logged

Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Lexxtech18
Full Member
***
Offline Offline

Gender: Female
Posts: 224


Be good to yourself when nobody else will.

« Reply #2 on: January 04, 2013, 09:24:00 PM »

I'm also interested in this thread as I get very constipated and don't know what to take, besides Miralax and that never seems to help.  :banghead; Drinking a cup of coffee in the morning was helping me there for a little while, but not anymore. :/
Logged

Diagnosed with Bilateral Hypoplastic Kidney Disease - 1990
First Livinig Donor Transplant (from my mommy!) - October 3, 1996
Transplant Failed/Put on Hemodialysis - May 2005
Second Kidney Transplant (deceased donor) - July 2010
Transplant Failed/Restart In-Center Hemodialysis - February 2011
monrein
Premium Member
Member for Life
*
Offline Offline

Gender: Female
Posts: 8281


Might as well smile

« Reply #3 on: January 05, 2013, 04:41:33 AM »

Chia seeds are very high in fiber and have other benefits as well.  I started using them instead of psyllium fiber when I was on D since I couldn't drink all of the water required by the psyllium husk.  You should ask your doctor's opinion first though.

http://nutritiondata.self.com/facts/nut-and-seed-products/3061/2
Logged

Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
drgirlfriend
Full Member
***
Offline Offline

Gender: Female
Posts: 273


« Reply #4 on: January 05, 2013, 03:51:56 PM »

monrein - I will check the chia out, but they are high in phosphorus.
Lexxtech18 - Keep in mind that the boyfriend does pd not hemo, but if you can fit yogurt or smoothies or oatmeal into your diet, Nopalina is highly recommended by our clinic. I have tried it and it will clean you out! The boyfriend takes Miralax every other day but it's unpredictable. Say, is that a Journey quote under your picture?

I think I'll contact the pd nurse about chia and probiotics. I'll let y'all know what he says.
Logged

Boyfriend diagnosed with renal failure Feb. 2011. Cause unknown.
PD Catheter "installed" June 30, 2011.
Began CAPD August 11, 2011.
On transplant list 11/23/11.
Started Liberty Cycler 12/1/11.
thegrammalady
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3775


« Reply #5 on: January 05, 2013, 04:53:36 PM »

colace! wonderful stuff. rather expensive but there is a generic. over the counter and available at safeway, walmart, etc.
Logged

s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Lexxtech18
Full Member
***
Offline Offline

Gender: Female
Posts: 224


Be good to yourself when nobody else will.

« Reply #6 on: January 05, 2013, 11:51:39 PM »

@drgirlfriend - love your screen name, btw. :) and yes it is Journey lyrics, I have the same ones tattooed on my back.

I was eating Activia yogurt twice a day for awhile and it helped a little. But it's a bit expensive for yogurt. Lol
Logged

Diagnosed with Bilateral Hypoplastic Kidney Disease - 1990
First Livinig Donor Transplant (from my mommy!) - October 3, 1996
Transplant Failed/Put on Hemodialysis - May 2005
Second Kidney Transplant (deceased donor) - July 2010
Transplant Failed/Restart In-Center Hemodialysis - February 2011
Rain
Full Member
***
Offline Offline

Gender: Female
Posts: 319

« Reply #7 on: January 06, 2013, 07:05:13 AM »

I started taking probiotic pills since last year after two cases of food poisoning left me with digestion issues.  I am current on hemo.  I got my doc approval with no issues. 
Logged

1988  Diagnosed with reflux and kidney damage
2006-  Diagnosed with Renal Failure and start dialysis in centre with catheter
2007- Fistula created and in centre hemo with fistula
2012- Fistula clotted and central line inserted
Razman
Full Member
***
Offline Offline

Gender: Male
Posts: 451


« Reply #8 on: January 06, 2013, 06:45:39 PM »

  Here  are  copies of some email that I had from my  dietitian and pharmacist regarding constipation.  I  hope  they  help. 

Hi David, sorry for the very late response.  Our main concern with the Benefiber is that the powder needs to be taken with extra fluid and many renal patients are restricted in fluids.  Since you are not restricted in fluids, this would be OK for you to use at this time from my perspective.  Chicory does not seem to be a concern either (see excerpt below from ‘Natural Medicines Database’).  I will forward this message to one of our pharmacists to see if there are any concerns from her perspective.  There are other medications that are routinely used in the renal population which can be prescribed for constipation - the pharmacist could give you the names of these as well.
Regards,;   Diane , RD   


Hi Dave,
We agree with Diane's comments.  The constipation meds we routinely use for our renal patients are docusate sodium up to 1 capsule 2 times a day ("Colace" or "Surfak" are common brand names), sennosides up to 1 to 2 tablets daily ("Senokot") and lactulose syrup up to 30ml dailiy.   The docusate is not really a laxative, but a stool softener that when used regularly, may minimize the need for laxatives for some people.  All of these can be purchased without a prescription.
 
Hope this helps.,  Aflora, BScPhm, RPh
Logged
drgirlfriend
Full Member
***
Offline Offline

Gender: Female
Posts: 273


« Reply #9 on: January 06, 2013, 07:20:54 PM »

Thanks for all the input!
The boyfriend does take Colase in addition to Miralax. That tells you how bad the problem is! However, it isn't bad enough for Lactulose. That is the roto-rooter of constipation.
Logged

Boyfriend diagnosed with renal failure Feb. 2011. Cause unknown.
PD Catheter "installed" June 30, 2011.
Began CAPD August 11, 2011.
On transplant list 11/23/11.
Started Liberty Cycler 12/1/11.
Lexxtech18
Full Member
***
Offline Offline

Gender: Female
Posts: 224


Be good to yourself when nobody else will.

« Reply #10 on: January 07, 2013, 06:52:01 PM »

Oh! I just remembered that when I was on PD, I got really constipated at one point and it clogged my cath. (all together now: EWWWW!) But my PD nurse suggested I take a stool softner or laxative only with senna. As we all know magnesium is toxic to kidney patients. So I got some Senokot at Walgreens. It took FOREVER to work, but it did... eventually.

Also, I'm not sure if it's okay for dialysis patients or not, but I've heard Acai berry is good for constipation. They sell it in pill form and juice.
Logged

Diagnosed with Bilateral Hypoplastic Kidney Disease - 1990
First Livinig Donor Transplant (from my mommy!) - October 3, 1996
Transplant Failed/Put on Hemodialysis - May 2005
Second Kidney Transplant (deceased donor) - July 2010
Transplant Failed/Restart In-Center Hemodialysis - February 2011
Pages: [1] Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.5 | SMF © 2013, Simple Machines
Enotify by CreateAForum.com
Valid XHTML 1.0! Valid CSS!