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Author Topic: A Book about this Mess!  (Read 3171 times)
renalpenguin
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« on: December 22, 2012, 08:13:52 AM »

Hey everyone,

"Penguin" here! I haven't been on here forever  :oops; because I've been busy writing a book (actually a series of ten or twelve short books) about this mess of a disease!

Today is my 2 and a half year kidney transplant anniversary  :yahoo;  but I can't help but feel the need to advocate for everyone affected by kidney disease... pre-dialysis, dialysis, transplant, and so on. Too few people understand it, and I want to help change that!

I was diagnosed with FSGS over five years ago as a sixteen-year-old in high school... ever since, I've felt like I'm on a never-ending adventure! Based on my story (although changed up quite a bit and infused with a lot of 'imagination'- you'll see what I mean if you read it), it's targeted toward teenagers and young adults, but I'm hoping it helps others, too.

The link to it is http://www.lulu.com/shop/hannah-reimers/the-pfa-part-one-stories/ebook/product-20591309.html (I haven't read the rules to this site for a while, so if I'm not supposed to link like that, I'm sorry! Please let me know!)

Hoping to help punch :boxing; the stigma and misunderstanding of CKF out of the world!

Hannah  :)
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August 2007- Diagnosed with nephrotic syndrome
September 2007- Kidney Biopsy found FSGS
December 15, 2009- Transplant Evaluation
January 7, 2010- I'm on the list!
February 4, 2010- Fistula and PD Catheter Surgery
March 8, 2010- Begin CCPD; My cousin will be my donor in June!
June 22, 2010- I got a kidney from my awesome cousin!
"Trust in the Lord with all your heart. Lean not on your own understanding. In all your ways acknowledge Him and He will make your paths straight." Proverbs 3:5-6
Rerun
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Going through life tied to a chair!

« Reply #1 on: December 22, 2012, 09:27:55 AM »

Bob Northam, also a member here (Bob N.) also wrote a book.  His is called
The ABC's of the Big D     

I'm glad someone is writing about this.   :cheer:

Best of luck!
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