a little sad

[justme15]

I just realized that I have not urinated once today.  I've been on PD for about a month now, and my urination dropped from almost 2L to zero.  I thought PD preserved your kidney function better than HD?  well, not for me.
Anyway, this forces me to realize how dependent I am on 'the machine'.  That my kidneys have officially failed.  That without this machine I will die.

it's scary...and sad.

[Rerun]

Maybe your PD is taking off too much fluid so there is no extra.  If you start to cramp there is probably too much being taken off.  Just a thought.

I do know that feeling.  When I had my transplant removed there was nothing and then one day a little bit and I thought WOW how can that be.  I had one of my native kidneys still trying after 17 years with a transplant.  Then I had to have a heart cath and boom the dye stopped it stopped forever.  Yes, a sad day.

[MaryD]

Are you still drinking 2 litres a day?  I have been on PD for 12 months now.  I have been told to drink at least 2 litres a day, and my peeing ability has only decreased slightly.

[jeannea]

Being advised to drink 2 liters a day is very unusual on dialysis. Drinking more won't make you pee more if you have no function.

[MaryD]

I assumed that if justme had been on dialysis for 1 month that she must have had some peeing ability left one month ago.  Do failing  transplanted kidneys stop peeing that quickly?  That's scarily fast!

[jeannea]

I think it depends on each person and each disease. I was lucky to have a little residual function so I got more leeway with liquids. Others have no function almost from the beginning. And of course all kinds of in-between. It is scary.

[justme15]

they didn't give me any fluid restrictions. probably because I was peeing almost 2 L. today I peed twice, but nowhere near 2L  each day is different I guess.  I pretty much drink what I want to.  I don't have any problems with fluid retention right now.

[MaryD]

I've been told to drink 2 litres/day.  I understand everyones's different, but that is an awfully fast decline.  I would be a little sad, too.

[tbarrett2533]

I drink whatever I want!!

Now when I was on in-center Hemo I followed EVERY single restriction that there was!

on CAPD, I eat and drink WHATEVER I want with the exception of high phospherous foods I do whatever I want, when I want.  In fact my urine output has increased since being on PD, if I do retain fluid I will just do an extra exchange.  I on the other hand am NOT on the cycler therefore am having a treatment every few hours which in my opinion is prolly why I have so much flexabiity in what how much I drink.   

Also, please note my labs are always perfect with the exception of my albumin, and my god I just cant seem to eat enough protien no matter what I do.... Please make note as well that I have been on CAPD for only a year and 5 months so I am still fairly new to it and this could change and I do not encouarge anyone else to do what I do........... this simply is what works for me and I consider myself very blessed to have such a wonderful membrane which hopefully holds up until Transplant.

Good luck and stay blessed 

[lmunchkin]

Good to see you posting again, T.  I know when J did PD, that was always something that was so hard for him to do, was get his protein up.  I hope your membrane lasts you a long long time.  You have made CAPD work successfully for you and that is awesome!

lmunchkin