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Topic: New to IHD (Read 3703 times)
tater
Newbie
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New to IHD
«
on:
December 05, 2012, 06:05:58 PM »
Good evening to all, and thank you for this website.
I am the wife of a dialysis patient. My husband (Glenn) is 64, and has been on dialysis for a year now. He started dialysis 12/7/11, and it's been a nighmare ever since. He has polycystic kidney disease along with PTSD, neuropathy, and spinal stenosis. My husband is a Vietnam vet. We live in Lawrenceville, Georgia. He has his dialysis at a Davita center that's about 7 miles from our home, that's great, but, whew................. the staff (except for his tech) are something else. I guess we were very naive, but we NEVER thought dialysis and the industry as a whole would be this bad. It's very frustrating for us-they don't listen. Seems to me like they don't even care!
Thanks for being here.
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Mr Pink
Full Member
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Posts: 139
Re: New to IHD
«
Reply #1 on:
December 05, 2012, 06:20:22 PM »
Hi there. Welcome to the site. It doesn't sound like dialysis in your part of the world is much chop. I guess it's stories like yours that make me feel grateful that I'm going through this in a place where dialysis isn't so bad. It must be difficult to remain positive under such trying circumstances. What I do find comforting, as I'm sure you will, is that there are others just like you and I going through similar things. You'll find lots of support here. I've found a wealth of information on this site, to the point where nothing that doctors tell me comes as a surprise. Good luck.
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MaryD
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Re: New to IHD
«
Reply #2 on:
December 05, 2012, 07:25:22 PM »
Welcome, tater!
This sure is the site for information and support. I hope your dialysis experiences improve with time. Is your husband on the transplant list?
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Rerun
Member for Life
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Going through life tied to a chair!
Re: New to IHD
«
Reply #3 on:
December 06, 2012, 06:53:32 AM »
Hi Tater and welcome to IHD. I'm so glad you found us. You learn to throw fits when things don't go right and as much as you hate to ..... do you sit right there for the 4 hours?
Come back and fill us in more. I go to a DaVita too but before it was DaVita it was a number of different names. I do like my current staff but have had to take drastic measures to get others to quit or fired. Some people just should NOT be in the health care system.
Rerun, Moderator
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iKAZ3D
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06/08/2013
Re: New to IHD
«
Reply #4 on:
December 06, 2012, 08:52:44 AM »
Good luck, tater! I hope your husband gets a transplant soon. I feel the same way, that they don't truly care. It's all about the moolah and the superiority of putting us "on" jail.
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August 16th, 1996 - Born in Sacramento, CA; Born with Posterior Urethral Valves
September 2008 - Large Reconstruction, bladder augmented, stoma placed and ureters fixed
September 2010 - Needed emergency hip surgery for Slipped Capital Femoral Epithysis
September 2010 - Started Dialysis without refusal (Big mistake)
Summer/Fall 2011 - "Inactivated" on the Inactive Transplant List
October 2012 - Activated on the transplant list
November 30th, 2012 - Surgeons threatening to not to a transplant based on weight
April 25th, 2013 - Lost 25 pounds (97kg), however developed highly resistant bladder bacteria, Inactivated from list until eradicated
May 15th, 2013 - Finally cleared of the bacteria, reactivating on list imminent.
May 24th, 2013 - Reactivated on the list!
June 8th, 2013 - Transplant!
June 19th, 2013 - Dialysis Catheter officially removed and returned home from the hospital!
June 21st, 2016 - Sleeve Gastrectomy
March 11th, 2019 - Revision to Gastric Bypass
Grumpy-1
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Make me the person my dog thinks I am
Re: New to IHD
«
Reply #5 on:
December 06, 2012, 03:14:45 PM »
Welcome Tater - At this site, you can find out anything and everything (good and bad) about dialysis. And you can vent too. Keep coming back and asking questions that the Dr or nurses won't answer. Grumpy PS is there a story behind the name Tater? if so can you share
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Make me the person my dog thinks I am
Poppylicious
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Posts: 3023
Re: New to IHD
«
Reply #6 on:
December 06, 2012, 04:09:20 PM »
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- wife of kidney recepient (10/2011) -
venting myself online since 2003
(personal blog)
grumbles of a dialysis wife-y
(kidney blog)
sometimes i take pictures
(me, on flickr)
Everything was beautiful, and nothing hurt.
MommyChick
Full Member
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Posts: 325
Me & my precious Miracle !!!
Re: New to IHD
«
Reply #7 on:
December 06, 2012, 04:42:03 PM »
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~ Hello All, My names Marna ~
- 1995 - 12 yrs old found out my kidneys were both failing
- 1996 - Dec. 3 I received my 1st kidney transplant at age 13, after 7/mths on the waiting list
- 2005 - In Aug. transplant failed after 9.5 years, had to have a nephrectomy due to being very ill & massive hypertension
- End of Aug. 1st time on dialysis
- 2006 - Had my fistula placed & ready to go
- 2010 - My little Miracle was born 6/mths into the pregnancy, weighing 2.4 lbs & 13.25 in long
- Found out my PRA is 100% & I have antibodies that CAN'T be decreased
- 2013 - Oct. 2nd *** I finally received my kidney!!! ***
- Dec. 3rd I had 3.5 parathyroids removed, due to them interfering w/my new kidney.
iketchum
Full Member
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Posts: 356
Re: New to IHD
«
Reply #8 on:
December 06, 2012, 05:00:46 PM »
Being a vet, is he eligible for VA care. I really like the VA I go to here in Maine. It is not a for profit outfit and the nurses really care about you.
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lmunchkin
Elite Member
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Posts: 2471
"There Is No Place Like Home!"
Re: New to IHD
«
Reply #9 on:
December 10, 2012, 07:40:20 PM »
Welcome Tater. Sorry you are having a hard time at the center. My husband is the one doing D., but we choose to do it at home. Just did not like the In-center experience. Maybe you could look in to doing D at home. We do hemo now, but we also did PD. Look into it and other options available to you. Just learn as much as you can about his disease. No one else will. In-centers do it because it is a job. That is all it is to them. They really care, but only to a point!!!!
Again welcome & God Bless,
lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present. NxStage at home
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