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Author Topic: bloodresults after 4 weeks Nxstage 5/wk  (Read 3750 times)
cassandra
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When all else fails run in circles, shout loudly
« on: November 19, 2012, 07:15:06 AM »
My bloods after 4 weeks Nxstage 5 days a week are brilliant. My creatinine has not been below 1000 since, uhm before I lost my dad's kidney. My Potassium is low pre and post (for me that is) I always found going in with a potassium of below 5,5 is not worth bothering with D (in-center) Now I eat nearly everything, like chocolates, fruit, meat, vegs in 'normal' portions, and I don't get higher than 4.7.

And I feel pretty good, and I discovered the recurrence of hairgrowth (under my armpits okay, and sorry for TMI)
Ridiculous we have to fight so hard, for Nxstage here in the UK. But its the same in much of Europe.
Is it really that much more expensive? Or is their 'bonussystem' not up to speed yet?

love to all Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
AnnieB
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« Reply #1 on: November 19, 2012, 10:53:26 AM »
I'm glad Nxstage is turning out so well for you....wonderful that you can eat pretty much anything now! Glad also that you're feeling so much better....even at the cost of armpit hair  :rofl; .. :bandance; :bandance;
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Rerun
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Going through life tied to a chair!
« Reply #2 on: November 19, 2012, 03:44:02 PM »
Glad it is going well.  Do you hate doingi it pretty much EVERYday?  I'm glad you can eat again.

    :yahoo;
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MaryJoe
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« Reply #3 on: November 20, 2012, 05:34:09 AM »
 :2thumbsup;  Great news about your labs!  I'm happy Nxstage is working so well for you   ;D
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
cassandra
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When all else fails run in circles, shout loudly
« Reply #4 on: November 22, 2012, 03:24:15 PM »

Thank you all    :guitar:    No, I don't really mind doing it every day, bar two. It's quite short really. I'm just so much

more relaxed. No moody nurses, not watching, and checking every thing. Of course I don't work at the moment, and if I'm up to it, say in a year or so, I can only see myself working part-time.
I couldn't imagine working fulltime, and doing this 5 days a week.

love to all, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
lmunchkin
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"There Is No Place Like Home!"
« Reply #5 on: November 26, 2012, 06:45:57 PM »
Thats good news Cass.  Aint it nice, when you do it at your convenience as opposed to centers set schedule?  That is my most favorite part of NxStage, not to mention how much better John is feeling now. He has all this energy, but is limited due to his situation.  I just wish they had this NxStage before when he started.  But it is what it is!
So happy they finally got it for you.  Hey, you need to put that in your profile (update).  I don't see it on there.  Why is it so hard to get in the UK?  I don't understand that. 

You will get better and better Cass, over time!  Just be mindful of how much (not what) you eat and drink.  You can have most anything you want, in moderation.

So glad to hear & God Bless,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
cassandra
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When all else fails run in circles, shout loudly
« Reply #6 on: November 27, 2012, 08:27:18 AM »

Thanx Imunchkin, I'll update my profile right now. All that energy, and I still didn't do that    :bow;

love to all, Cas
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
big777bill
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« Reply #7 on: November 27, 2012, 11:52:16 AM »
 Cass it's great to hear that NxStage is going so well for you. It's so nice to be able to eat what you want and still have normal labs. With people like you to spread the word NxStage will catch on quickly in the UK.
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liver transplant 3/22/2005
CKD 2008
 
fistula 11/17/2011
 catheter 2/07/2012
 started  hemo-dialysis in center 2/07/2012
 fistula transposition 3/08/2012
 NxStage at home  3/29/2012
 Using fistula at home 6/25/2012
 Using new NxStage S High-Flow cycler 3/04/2014
cassandra
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When all else fails run in circles, shout loudly
« Reply #8 on: November 29, 2012, 02:22:28 PM »
Thanx Bill, oh yes the food is great. And I'll definitely will be spreading the word. I'll be giving a 'talk' about all new developments with D, and about my own experiences with Nxstage in Feb.
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
willowtreewren
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My two beautifull granddaughters

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« Reply #9 on: November 29, 2012, 03:34:20 PM »
Great news. Carl was always glad not to have to restrict his diet.

NxStage gives all sorts of freedom!  :2thumbsup;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
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