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Author Topic: parathyroid gland removal  (Read 3651 times)
amanda100wilson
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« on: November 08, 2012, 12:50:57 PM »

I am going to have my parathyroid glands out next week.  apart from the reasons for doing it, for anyone who has had it done, were there any other physical benefits that you noticed?
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
cassandra
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« Reply #1 on: November 08, 2012, 02:11:21 PM »

I wish you all the best next week Amanda, can't answer your question, but am sure someone will.

love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Riki
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« Reply #2 on: November 08, 2012, 07:12:13 PM »

I didn't see anything.. i had 3 and 3/4 parathyroids removed 6 years ago,  think.. i'm not really sure how long ago it was.. *L*  it didn't really do anything  for my phosphorus levels, though my pth levels did go down.. I have a scar along the base of my neck that no one can really see.. I'm not sure if that's what you're looking for.. I was promised that my phosphorus levels would go down within a few months, but they never really did
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transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
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HD - Dec 2008-present
smcd23
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The patient, the baby and the donor - October 2010

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« Reply #3 on: November 08, 2012, 09:02:18 PM »

My husband had his removed. He had high phosphorus and PTH and also was getting calcium deposits in random places under his skin and in his joints which would cause him great amounts of pain. Within a month or so of the parathyroid removal, the calcium deposits under the skin had basically disappeared (body reabsorbs them) and he no longer has any joint pain. He no longer has to take phosphorus binders, just a couple Tums after every meal. All of his labs now look great once they got his calcium back up to normal.
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
Grumpy-1
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« Reply #4 on: November 09, 2012, 05:52:33 AM »

My PTH has been HIGH for a long time. The Dr are considering having the parathyroid glands taken out.  amanda - please let us know how it turns out.  Thanks Grumpy
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kitkatz
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« Reply #5 on: November 10, 2012, 07:32:32 PM »

My daughter says my moods were a lot better after parathyroid surgery/
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Grumpy-1
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« Reply #6 on: November 13, 2012, 04:44:43 AM »

kitkatz    what is the surgery like?  recovery time?  leasons learned?  Thanks Grumpy
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Make me the person my dog thinks I am
noahvale
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« Reply #7 on: November 13, 2012, 08:35:40 AM »

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« Last Edit: September 21, 2015, 10:11:06 PM by noahvale » Logged
kitkatz
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« Reply #8 on: November 13, 2012, 08:47:22 PM »

kitkatz    what is the surgery like?  recovery time?  leasons learned?  Thanks Grumpy

Pretty easy recovery time.  Drain in the throat for a day or two.  I have good scar, it is well hidden in neck folds.
JUst have to watch calcium levels closely. 
I had a good surgeon.  He explained everything and when nurses knew I was his patient they were very well coordinated in my care.
One nurse told me when he comes on floor everyone jumps to work.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Riki
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« Reply #9 on: November 15, 2012, 01:30:43 PM »

it's great to have a doctor who puts fear into the nurses.. *LOL*  I have a mom who puts fear into the doctors, so it's kinda the same thing.. *G*
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
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HD - Dec 2008-present
amanda100wilson
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« Reply #10 on: November 16, 2012, 06:33:44 AM »

op went fine although I am really swollen.  the worst part with general anaesthetic  is that I seem to get so e weird reaction where I have problems breathing, and I produce huge amounts to of snot and have a croup-like cough.  on a previous occasion I had to go to the ER and was given iv prednisone which resolved the issue.  any idea what this is?

the doc. said that three of my glands weren't that big.  he trimmed two of them and removed the other.  however, one of them was huge and he said that the only time that he has seen them this big was in primary hyperparathyroidism.
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
cassandra
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When all else fails run in circles, shout loudly

« Reply #11 on: November 17, 2012, 01:10:02 PM »

I'm glad to read your op went fine. The huge gland shows removed will very most likely make a huge difference.
I hope the recovery will go smoothly.

lots of love honey

Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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