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Author Topic: Tribute for Hanify  (Read 14260 times)
willowtreewren
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My two beautifull granddaughters

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« on: October 15, 2012, 05:56:27 PM »

It is with a very heavy heart that I share that Hanify died today.

I'm still too upset to write any more. She was a great optimist. There is another hole in my heart.
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
rocker
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« Reply #1 on: October 15, 2012, 06:42:34 PM »

 :grouphug;
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YLGuy
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« Reply #2 on: October 15, 2012, 07:10:12 PM »

This news is so very sad.  I will miss her dearly.  May she rest in peace.
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galvo
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« Reply #3 on: October 15, 2012, 08:57:47 PM »

So very sad, indeed. She was a good'un!
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Galvo
Jean
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« Reply #4 on: October 16, 2012, 01:21:20 AM »

Indeed, she was a good un. She was my first friend at IHD. We became immediate buddies, as she did with everyone. This year she came to the States and dropped by to have dinner with us. We had such a good time. Her husband Paul is amazing and Her little girl is adorable. I will miss Bern so very, very much. RIP sweetheart.
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One day at a time, thats all I can do.
cariad
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« Reply #5 on: October 16, 2012, 02:14:34 AM »

Such a shock. Cannot even process it right now. So young and, yes Aleta, so relentlessly hopeful.

My thoughts are with Paul and Molly and of course, her friends on IHD.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Des
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« Reply #6 on: October 16, 2012, 06:41:21 AM »

Another special one - She will be missed! :flower; 
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
willowtreewren
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My two beautifull granddaughters

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« Reply #7 on: October 16, 2012, 06:44:44 AM »

I can talk a bit more about Bern today. But the tears come easily....

Right up until she died she was joking. She always had a bright outlook and put up the good fight. But more than that, she was always thinking of ways to help others. When Dan was in the hospital, Bern was trying to arrange a way for folks to help another friend afford visiting him. And even the day she died, Bern was helping another renal patient.

And then there were all the plans she made for another mutual friend, trying to find ways for him to work around his kidney failure.

She never complained about her own condition. She did joke about it. the night before she died we were joking about ways to raise her BP so she could have that life-saving dialysis. And then it was time for her to go.....

People like Bern are few and far between. She was a ray of sunshine and a font of hope. I am not alone in grieving her.
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Wife to Carl, who has PKD.
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Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Rerun
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Going through life tied to a chair!

« Reply #8 on: October 16, 2012, 07:39:15 AM »

May she rest in peace.  Hugs to her family at this time of loss.

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Sluff
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« Reply #9 on: October 16, 2012, 10:49:07 AM »

 :(
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del
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del and willowtreewren meet

« Reply #10 on: October 16, 2012, 12:04:02 PM »

May she rest in peace.  She was an amazing woman with a super big heart.  :grouphug; to Paul, Molly and her family.
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Don't take your organs to heaven.  Heaven knows we need them here.
phyl1215
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« Reply #11 on: October 16, 2012, 01:58:27 PM »

May she rest in peace.
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PD 3 yrs.
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Learning To Dance In The Rain
glitter
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« Reply #12 on: October 16, 2012, 04:57:33 PM »

I'm so sorry for the loss of one more to this hateful disease.  :grouphug;
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Jack A Adams July 2, 1957--Feb. 28, 2009
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Marsh
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« Reply #13 on: October 16, 2012, 07:27:09 PM »

 :grouphug;
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The Lady
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« Reply #14 on: October 17, 2012, 10:42:47 PM »

Terrible news...and so fast. Love and prayers to all her family...here and offline. :(
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billybags
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« Reply #15 on: October 18, 2012, 11:00:56 AM »

I agree with Glitter, one more to this hateful disease. it breaks my heart when I hear of people dying from this disease because I know that they have tried so very hard to live. Such a shame.
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thegrammalady
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« Reply #16 on: October 18, 2012, 08:07:34 PM »

i'm speachless!!! so very sad.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

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For You Are Crunchy And Taste Good With Ketchup
Zach
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"Still crazy after all these years."

« Reply #17 on: October 22, 2012, 07:54:52 AM »

Another IHD friend gone.
RIP

 :'(
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
YellowRose
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« Reply #18 on: October 22, 2012, 03:02:19 PM »

I do not know her but still felt sad about her passing.
Have ESRD for almost 19 years but until 2 years ago, got into in-center hemo then found this site few months ago, I did not know ESRD impact so many people and their family so much.
Lost someone to this hateful disease is really really make me sad!
Rose
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Dec 1993 start with CAPD
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Jan 2007 start with CCPD
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Sept 2012 2nd transplant
RichardMEL
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« Reply #19 on: October 23, 2012, 12:18:07 AM »

I was really shocked when I got back from my trip and saw Bern was having trouble (via FB) then her passing was a real shock to me. As others have said she was such a positive and caring character and did all she could for others. I'd always joked with her about coming over to NZ and visiting and stuff... and I never did ( I feel a great deal for her hubby, dear Molly and her entire extended family and friends at this time.

Yet another, tragic, reminder that things can change in an instant with kidney disease and again to live life!

RIP.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Lillupie
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« Reply #20 on: October 23, 2012, 06:31:39 AM »

to clear things up. I believe that it was her heart failure and liver failure from having cancer. So it was strictly (or so it seems to me) from the cancer. Its still really sad because I liked her and talked to her on Facebook. She had cancer too and that caused the heart failure which caused her death.
Atleast that is what her daughter (i think) told me.

Lisa
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Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
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Darthvadar
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« Reply #21 on: October 23, 2012, 08:37:56 AM »

You're right, Lisa...

The type of cancer Bern had caused deposits of rogue proteins in her heart, liver and kidneys... These caused the organs to fail, and is the reason Bern's kidneys failed in the first place...

I haven't yet written a tribute to 'Our Bern'... It's still too raw... Everytime I write about her, I cry!... I adored the water this wonderful woman walked on!... LOL!....

Oh Gawd, I'm off weeping again... Pass the tissues!..

Love to all...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
looneytunes
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Wishin' I was Fishin'

« Reply #22 on: October 28, 2012, 03:57:37 PM »

My dear Bern...I will miss your wit and your optimism.  Your courage inspired so many of us.  May you rest in peace, my friend.   
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"The key to being patient is having something to do in the meantime" AU
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