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Author Topic: MySpace or no MySpace?  (Read 15644 times)
angela515
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« Reply #50 on: October 17, 2007, 02:39:03 PM »

 :lol;  Hey now.. that's NOT nice... not everyone talks louder when on their cell phones... sorry, but it's true... it's not EVERYONE. :)

I for one, don't... I don't see the point in talking louder... it's just a regular phone, that's mobile.. they can hear me the same and i can hear them the same...
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« Reply #51 on: October 17, 2007, 02:40:06 PM »

I hate the phone tree

Have you seen the link to the website that tells you how to speak to a person in customer service. It's in the "post an interesting internet link..." section. It's great!

http://gethuman.com/
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...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
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« Reply #52 on: October 17, 2007, 02:46:39 PM »

You know, i dont know what is worse, attempting to conversate with a machine or a customer service rep that doesnt know how to speak English very well,  :banghead;
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« Reply #53 on: October 17, 2007, 02:49:08 PM »

:lol;  Hey now.. that's NOT nice... not everyone talks louder when on their cell phones... sorry, but it's true... it's not EVERYONE. :)

I for one, don't... I don't see the point in talking louder... it's just a regular phone, that's mobile.. they can hear me the same and i can hear them the same...

Well I didn't say everyone :lol;, but I think I type louder in a fast paced conversation  :rofl;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
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« Reply #54 on: October 17, 2007, 03:08:20 PM »

Quote

Well I didn't say everyone :lol;, but I think I type louder in a fast paced conversation  :rofl;

Thats interresting enough...sounds like your intune with yourself there chris... :lol;  I never thought to pay attention to that and now I'll be checking and monitoring... :rofl;


EDITED:  Fixed quote tag error - Goofynina/Admin.
« Last Edit: October 17, 2007, 03:23:34 PM by goofynina » Logged
Chris
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« Reply #55 on: October 17, 2007, 08:59:55 PM »

You know, i dont know what is worse, attempting to conversate with a machine or a customer service rep that doesnt know how to speak English very well,  :banghead;
That is so true, especially when you have a problem with a pc.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
AlasdairUK
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« Reply #56 on: October 19, 2007, 08:31:44 AM »

I have just signed up to facebook as my friends where nagging, it is useful as I have friends all over the world. Any medium that helps you keep in touch with people and share information that you want is always useful.
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94 - PD for 3 months
94 - HD Permcath for 3 months
95 - RLD Transplant 10 years
2005 - HD Permcath 6 months
2006 - 2008 HDF Fistula
2008 - 2nd Transplant
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« Reply #57 on: October 26, 2007, 03:02:12 AM »

I have myspace!  I use it to keep in touch with family members who live out of state like my youngest sister and lots of cousins!  It's set to private though.  But since I've already posted stuff with my last name in it...I'll just tell ya that it's Reece and I will add people from here!  lol

 http://www.myspace.com/krisnar

« Last Edit: October 26, 2007, 03:08:30 AM by Krisna » Logged

Nov. 1979 - Diagnosed with glomerulonephritis of unknown origin by Dr. Robert
                  Hickman
Dec. 1979 - Diagnosed with Viral Pneumonia
Late Dec. 1979 - Emergency surgery to place a Scribner Shunt in left arm for dialysis
Jan. 1980 - Start hemodialysis until recovered from viral pneumonia
Feb. 27, 1980 - Receive 5 antigen living related transplant from father
Mar. 3, 1987 - PTH removed and part of one placed in left arm.  Fistula also placed in right arm.
Sept. 1988 - Start hemodialysis
Feb. 4, 1989 - Receive 6 antigen perfect match cadaveric transplant
Jan. 1994 - Return to hemodialysis
Oct. 18, 1996 - Receive 6 antigen perfect match cadaveric transplant
Nov. 22, 1996 - Emergency surgery to repair aneurysm to artery in kidney
Dec. 20, 1996 - Emergency surgery to repair aneurysm.  Kidney removed due to infection which has spread down right leg to abt mid thigh.
Apr. 1997 - Arterial bypass surgery to restore arterial blood flow to right leg
July 29, 1998 - Receive 6 antigen perfect match cadaveric transplant
Sept. 6, 2002 - Return to hemodialysis
Dec. 7, 2002 Sm. intestine ruptures while home alone. Still conscious upon arrival at hospital.
Dec. 8. 2002 - Surgery to repair ruptured bowel.  The prognosis is not good.  Surgeon tells family to prepare for the worse.  Spend a week in a coma and 3 months in hospital.  Takes abt a year and a half to completely recover.
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Life's a bitch and then you go on dialysis!

« Reply #58 on: October 26, 2007, 08:17:56 AM »

Rupert controls enough of our lives already...and maybe more soon...no Myspace here.

By Rupert I presume you mean the dirty digger Rupert Murdock. If so, well said. :clap;
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Ken
angela515
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« Reply #59 on: October 26, 2007, 02:05:26 PM »

Rupert controls enough of our lives already...and maybe more soon...no Myspace here.

By Rupert I presume you mean the dirty digger Rupert Murdock. If so, well said. :clap;

I don't get it... explain please?
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« Reply #60 on: October 26, 2007, 04:31:07 PM »

:lol;

 :rofl; :rofl; :rofl; :rofl; :rofl;
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Nov. 1979 - Diagnosed with glomerulonephritis of unknown origin by Dr. Robert
                  Hickman
Dec. 1979 - Diagnosed with Viral Pneumonia
Late Dec. 1979 - Emergency surgery to place a Scribner Shunt in left arm for dialysis
Jan. 1980 - Start hemodialysis until recovered from viral pneumonia
Feb. 27, 1980 - Receive 5 antigen living related transplant from father
Mar. 3, 1987 - PTH removed and part of one placed in left arm.  Fistula also placed in right arm.
Sept. 1988 - Start hemodialysis
Feb. 4, 1989 - Receive 6 antigen perfect match cadaveric transplant
Jan. 1994 - Return to hemodialysis
Oct. 18, 1996 - Receive 6 antigen perfect match cadaveric transplant
Nov. 22, 1996 - Emergency surgery to repair aneurysm to artery in kidney
Dec. 20, 1996 - Emergency surgery to repair aneurysm.  Kidney removed due to infection which has spread down right leg to abt mid thigh.
Apr. 1997 - Arterial bypass surgery to restore arterial blood flow to right leg
July 29, 1998 - Receive 6 antigen perfect match cadaveric transplant
Sept. 6, 2002 - Return to hemodialysis
Dec. 7, 2002 Sm. intestine ruptures while home alone. Still conscious upon arrival at hospital.
Dec. 8. 2002 - Surgery to repair ruptured bowel.  The prognosis is not good.  Surgeon tells family to prepare for the worse.  Spend a week in a coma and 3 months in hospital.  Takes abt a year and a half to completely recover.
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« Reply #61 on: November 20, 2007, 04:14:49 PM »

That.  is.  just.  terrifying.

 :rofl; :rofl; :rofl;


Here is Myspace ---
www.myspace.com/bethbreakey

Like my mom said, MySpace, emails, forums and texting is a great way to keep in contact with my friends who live literally all over the world -- There is a 6 hour time difference between here and Hawaii.  And worse still, when I was living there and my boyfriend at the time was living in Paris -- we were 12 hours apart.  Technology is a lovely thing.
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« Reply #62 on: November 20, 2007, 07:18:21 PM »

thats an absolutley beautiful pic.  chubby chasers of the world unite.   :yahoo;     :clap;
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
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« Reply #63 on: November 20, 2007, 08:02:57 PM »

thats an absolutley beautiful pic.  chubby chasers of the world unite.   :yahoo;     :clap;

thanks for that comment, your a nice man.. :)
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
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« Reply #64 on: November 20, 2007, 08:13:18 PM »

I deleted my post as a member was offended by it, which was not my intention.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #65 on: November 20, 2007, 08:21:13 PM »

you're kidding me! who would be offended by a beautiful woman?   :rant;  i just don't understand people anymore   :urcrazy;  oh well, it was good while it lasted.  sorry i got off topic, it won't happen again.
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
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« Reply #66 on: November 20, 2007, 09:20:31 PM »

Look at how MySpace caused that young girl to commit suicide.  I wonder how the family that engineered feel now.
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« Reply #67 on: November 27, 2007, 02:30:46 AM »

I am new to the computer. About a year ago a friend i know in Arizona called me and said she found my son on myspace. I didn't know too much about it but i told her i would feel very odd going on a site for kids. She then told me all ages are on there. So i joined. I found out the myspace page for my son was set up by a friend of his. All i could get out of my son was; "i am afraid to talk with you because i am not allowed to have myspace. i think that momwould influence what i want to say." He never told me why. That was all i heard from him. So i still had this myspace so i started a blog about my life. I wrote in detail of the many broken hearts in my life. One of these "broken hearts" read the blog and knew i was talking about her. She called and started to yell at me, so i said; "Hey did i mention your name?" NO. So leave me alone. I have found it to be therapeutic. It is a venue for me to write about me.
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
angela515
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« Reply #68 on: November 27, 2007, 06:06:01 AM »

Look at how MySpace caused that young girl to commit suicide.  I wonder how the family that engineered feel now.

Sorry, but "myspace" didn't cause her death. Nor did the teenagers behind the mean prank... she chose to go that route, and I am sure to take it that far she was already depressed and nobody probably saw the signs, or if they did they ignored them. I don't agree with what the kids did to her, but to *blame* them for her hanging herself, is wrong. Just my opinion on it. I don't like how when someone commits suicide there is always someone else to blame for it but the person who took the actions themselves.
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Sluff
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« Reply #69 on: November 27, 2007, 09:48:30 AM »

Look at how MySpace caused that young girl to commit suicide.  I wonder how the family that engineered feel now.

Sorry, but "myspace" didn't cause her death. Nor did the teenagers behind the mean prank... she chose to go that route, and I am sure to take it that far she was already depressed and nobody probably saw the signs, or if they did they ignored them. I don't agree with what the kids did to her, but to *blame* them for her hanging herself, is wrong. Just my opinion on it. I don't like how when someone commits suicide there is always someone else to blame for it but the person who took the actions themselves.

Which myspace are you talking about? I didn't here about a suicide.
« Last Edit: September 04, 2008, 05:14:11 PM by Sluff » Logged
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« Reply #70 on: November 27, 2007, 09:52:43 AM »

POKIN AROUND: Readers respond in force to story on suicide, MySpace hoax

By Steve Pokin
Tuesday, November 13, 2007 3:16 PM CST

This newspaper has received an incredible response to Sunday's story on the death of Megan Meier, a 13-year-old who lived in Dardenne Prairie and committed suicide last year.

Many of you expressed appreciation to me and to the Journal for running the story.

Some of you have asked your children to read the story and have requested/demanded to look at their MySpace pages.Of course, there has been outrage over the fact that Josh Evans - a 16-year-old who never existed - was created not by a teen, but by an adult. That anger is reflected in the comments posted on the Journal's Web sites.

Since the story ran Sunday Tina Meier, Megan's mother, has been contacted by other media outlets.

In brief, here's what happened.

Josh Evans had taken an interest in Megan, who for much of her life had battled depression and struggled with her weight. But according to her parents she was the happiest she had ever been.

Megan ended her life after Josh, whom she never actually met, suddenly became mean to her.

Six weeks after she died her parents discovered that Josh was created by a neighbor down the block, an adult woman whose own daughter had once been Megan's friend. This woman knew of Megan's depression, says Tina Meier.

According to a police report filed by the woman down the block, she created the account to check to see what Megan was saying, if anything, about her daughter. According to the police report, the woman, her daughter and an 18-year-old part-time employee monitored the Josh Evans account.

In Sunday's story the Journal did not name the woman because the newspaper did not want to identify her daughter. It was a decision I supported.

A few of you took us to task for not naming this woman.

I understand the loss the Meiers feel. But I told Tina in our very first conversation that even though we might have the legal right to publish a name, it doesn't necessarily mean we will.

Here are some of your comments. Many are taken from our Web sites.

"I have never responded to a news article before, but your story has not only moved me, made me cry, but has angered me. You are right. These laws need to change along with our so-called child predator laws." - Lisa K.

"The realization this can actually happen is truly frightening. THANK YOU for printing it" - R. W. Bross

"Your story in today's paper about Megan was sad but unfortunately an eye opener for every parent out there with a child that loves the Internet." - Heidi

"I hope your article strikes a chord with kids who may be planning (or may be currently doing) similar pranks on their friends, and make parents 'take notice.'" - Raymond Stone, St. Charles

"Your article in this morning's St. Charles Journal regarding the tragic and senseless suicide of young Megan Meier last fall, and the resulting criminal, legal, and familial progress and aftereffects, was a very powerful and moving piece, and I thank you for telling it." - Mandy Matthews

"I admire the courage of the Meiers to tell this story, and am astounded that it was actually ADULTS behind the fake identity that caused this young person so much unnecessary grief. It seems to me that justice has not been served in this matter." - GS

"This is a wake up call and I hope this story is out on the Internet for all parents to read and realize this could happen to them." - Kellie Keling, Wentzville

"I am a journalist myself, and I know the policy regarding not naming sexual assault victims, but none are involved here, and I cannot understand how you came to the decision not to name them." - Brian Russell, Alton

"This article was so upsetting that it made me sick to my stomach." - Ashley

"Parents today are so worried about being their child's friend and playing these adolescent games to prove how cool they are to their kid and the kid's friends, when what the kid needs is a parent." - Rachel

"This story is touching and sad. There should be a law and the Meiers would have my support. … Mrs. Meier, don't blame yourself for your daughter's death." - Tammy

And finally, a letter from someone who still feels the pain, and still struggles to look to the future, not to the past.

"I am hopeful that with this article we can start our journey to change the law and not let another family go through what we have gone through." - Tina Meier, St. Charles

http://ofallonjournal.stltoday.com/articles/2007/11/27/news/sj2tn20071113-1114stc_pokin_1.ii1.txt
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #71 on: November 27, 2007, 10:03:53 AM »

Thanks Karol.

I don't think you can blame myspace. They could have used any medium to cause harm to this young girl. Remember when a lot of us were kids, we were told that what goes on in our house stays in our house? All the psychologists thought this was wrong but maybe if the issues Megan had with her weight was not publicized to the neighbor lady this wouldn't have happened. I'm not blaming Megan, We all have struggled with some aspect of our life at one time or another. The fault for pushing the young girl over the edge was the cruelness of the neighbor lady, and no it was not a prank, it was intentional. Megan needed help and never received it.

This world we live in is becoming less sensitive to peoples feeling and privacy's. Just a darn shame.
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« Reply #72 on: September 04, 2008, 05:15:54 PM »

Here is Mine: http://www.myspace.com/georgejones4ever
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« Reply #73 on: September 04, 2008, 06:14:28 PM »

great tunes Sluff I love the cycle vid...Boxman
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Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
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« Reply #74 on: September 04, 2008, 06:44:08 PM »

My kids set up a myspace for me and I only use it to help monitor what the grandchildren are doing and yes I'm also horrified at what is said.  I have told the kids potential employers, college professors etc can read this but doesn't seem to make a difference.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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