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Author Topic: MySpace or no MySpace?  (Read 15637 times)
okarol
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« on: February 17, 2007, 03:12:39 PM »

I have MySpace.
Just wondering who else does.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
angieskidney
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« Reply #1 on: February 17, 2007, 03:18:07 PM »

I have MySpace.
Just wondering who else does.
I do
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
Sluff
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« Reply #2 on: February 17, 2007, 03:21:20 PM »

Not I. My son does I think.
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BigSky
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« Reply #3 on: February 17, 2007, 03:25:11 PM »

Nope
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tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)

« Reply #4 on: February 17, 2007, 03:26:20 PM »

have it
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
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« Reply #5 on: February 17, 2007, 03:38:57 PM »

Rupert controls enough of our lives already...and maybe more soon...no Myspace here.
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kitkatz
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« Reply #6 on: February 17, 2007, 03:59:23 PM »

No, but I have Yahoo36.
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
angela515
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« Reply #7 on: February 17, 2007, 04:23:12 PM »

I have MySpace.
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Jill D.
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« Reply #8 on: February 17, 2007, 04:30:08 PM »

I have some things to say about kids and MySpace that I have been meaning to post for awhile. About a month ago, my 16 year old son got into some trouble, so I decided I needed to do a little "digging" and had him give me his password to his MySpace. OMG...it is unbelievable what some of the kids say and post on MySpace (including my own son). I am guessing that most parents do not check their kid's MySpace (I never did) because if they did, most of the stuff probably wouldn't be on there! I am pretty much talking across the board that kids put stuff out there that they would NEVER want parents to see. Of course, some are worse than others, but geez, if it's anything you wouldn't want certain people to see, why on earth would you put it on the internet??? It was QUITE eye opening, and I read some pretty vile stuff from kids I thought were "good kids" (including my own, I might add!)

I'm sure I violated some kind of space that parents are not supposed to go (according to what the kids think). They seem to think their page is like their personal diary, but HELLO! do they not realize that what they put out there can be read by thousands, if not millions, of people and the photos become public domain once they are out there?

I realize that you have the option to set your page to "private", so others cannot access your page unless they are invited. However, I was amazed how easily I could access literally thousands of kids through my son's page by clicking on friends of friends of friends of friends.....I couldn't neccesarily leave them a message, but I could read their profiles, look at their photos, read their blogs, read messages that were sent, etc.

I challenge any of you that have kids with MySpace accounts (you may not even know they have one!) to check out what they and their friends are putting out there.

And I didn't even get into the pedophile/sex offender aspects of this pandora's box!

The internet is awesome...and scary!


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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
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« Reply #9 on: February 17, 2007, 04:45:44 PM »

I consider this site "my space" and I wouldn't want my family reading this.  These are my feelings about dialysis which they wouldn't understand.  But, I can type what I feel on this site and leave it here.  A lot healthier for my well being.  I like having "My Space.'

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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #10 on: February 17, 2007, 04:46:10 PM »

I have monitored my kids myspace from day one. I told them, if you'd be ashamed to wear a shirt with words printed on the front like what you're writing on myspace, then don't write it. I read stuff other kids write and it is all over the map. That's why I have a myspace, and my kids are not allowed to block me. Of course, some kids get around that by opening another page, so you really have to check the history. Even so, Jill's got it right, the internet is wonderful and scary too!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
angela515
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« Reply #11 on: February 17, 2007, 04:48:16 PM »

I have never let my parents read my blogs or anything, not that I have anything to hide, but I just like my personal space and thats what it is to me. When my kids get old enough to use the internet, they will be monitored during their teenage years and I have all the programs to do it already, lol.
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #12 on: February 17, 2007, 04:56:21 PM »

Oh I also wanted to add that I was a pretty good kid, had a personal diary under my bed that would have curled my mom's already natural curly hair even more if she had read it. I also passed notes in school, some were probably REALLY inappropriate. Also had lots of phone activity as a teen, prank calls and other stuff that was probably over the top. We didn't have the internet, but we took risks, hitch hiking, open parties, driving around with liquor in some guys car, all this without parental supervision or permission. My mom thought I was at the school dance. My point is, I turned out ok. I did alright in school. I never got in much trouble (or got caught, I guess.) This is probably why I am more aware of what my kids could be doing. I hope they will turn out ok too.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
shay_pcb
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« Reply #13 on: February 17, 2007, 11:55:31 PM »

I have a MySpace.
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Epoman
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« Reply #14 on: February 18, 2007, 12:23:24 AM »

TTIWWL   ::)
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- Epoman
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13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.

Please help us advertise, post our link to other dialysis message boards. You
Epoman
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« Reply #15 on: February 18, 2007, 12:29:57 AM »

I have never let my parents read my blogs or anything, not that I have anything to hide, but I just like my personal space and thats what it is to me. When my kids get old enough to use the internet, they will be monitored during their teenage years and I have all the programs to do it already, lol.

Good luck with those "programs" if a kid is savvy enough, there are several ways around EVERY program out there. Trust me! the best thing you can do is limit the usage and keep the computer in a high traffic area where you will be able to monitor at all times. The Internet can be a very valuable resource or it can be a nightmare for a parent.

- Epoman
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- Epoman
Owner/Administrator
13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.

Please help us advertise, post our link to other dialysis message boards. You
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)

« Reply #16 on: February 18, 2007, 01:14:52 AM »

TTIWWL   ::)

This Thread is Worthless Without Links for us people that aren't computer savvy lol

Here's mine:

Pretty boring and been lazy of late but anyway here goes,

http://www.myspace.com/tamaraillisa
« Last Edit: February 18, 2007, 01:30:49 AM by tamara » Logged

ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Epoman
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« Reply #17 on: February 18, 2007, 01:31:35 AM »

TTIWWL   ::)

This Thread is Worthless Without Links for us people that aren't computer savvy lol

Here's mine:

Pretty boring and been lazy of late but anyway here goes,

http://www.myspace.com/tamaraillisa

NICE!  :thumbup; Tamara. I was wondering how many would get that.  :2thumbsup;

- Epoman
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- Epoman
Owner/Administrator
13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.

Please help us advertise, post our link to other dialysis message boards. You
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)

« Reply #18 on: February 18, 2007, 01:33:58 AM »

 :2thumbsup;    :cuddle;
Logged

ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Sluff
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« Reply #19 on: February 18, 2007, 06:31:07 AM »

I have some things to say about kids and MySpace that I have been meaning to post for awhile. About a month ago, my 16 year old son got into some trouble, so I decided I needed to do a little "digging" and had him give me his password to his MySpace. OMG...it is unbelievable what some of the kids say and post on MySpace (including my own son). I am guessing that most parents do not check their kid's MySpace (I never did) because if they did, most of the stuff probably wouldn't be on there! I am pretty much talking across the board that kids put stuff out there that they would NEVER want parents to see. Of course, some are worse than others, but geez, if it's anything you wouldn't want certain people to see, why on earth would you put it on the internet??? It was QUITE eye opening, and I read some pretty vile stuff from kids I thought were "good kids" (including my own, I might add!)

I'm sure I violated some kind of space that parents are not supposed to go (according to what the kids think). They seem to think their page is like their personal diary, but HELLO! do they not realize that what they put out there can be read by thousands, if not millions, of people and the photos become public domain once they are out there?

I realize that you have the option to set your page to "private", so others cannot access your page unless they are invited. However, I was amazed how easily I could access literally thousands of kids through my son's page by clicking on friends of friends of friends of friends.....I couldn't neccesarily leave them a message, but I could read their profiles, look at their photos, read their blogs, read messages that were sent, etc.

I challenge any of you that have kids with MySpace accounts (you may not even know they have one!) to check out what they and their friends are putting out there.

And I didn't even get into the pedophile/sex offender aspects of this pandora's box!

The internet is awesome...and scary!






You are right that's why I don't let him get on anymore. I think his account has been deleted but I will have to look. Fortunately when he first opened his account I told him only if i know the password. So I would periodically go in and the crap just got worse and worse so I locked it so he can't get in anymore.

Parents :The internet is not your childs babysitter.
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angieskidney
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« Reply #20 on: February 18, 2007, 06:57:30 AM »

TTIWWL   ::)

This Thread is Worthless Without Links for us people that aren't computer savvy lol

Here's mine:

Pretty boring and been lazy of late but anyway here goes,

http://www.myspace.com/tamaraillisa
Thank you! I was WONDERING wth that meant :P

Here is mine: http://www.myspace.com/angieskidney
Logged

FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
angela515
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i am awesome.

« Reply #21 on: February 18, 2007, 10:34:52 AM »

www.myspace.com/ang3la_in_iowa
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
shay_pcb
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« Reply #22 on: February 18, 2007, 02:58:24 PM »

TTIWWL   ::)
This Thread is Worthless Without Links for us people that aren't computer savvy lol

Here's mine:
Pretty boring and been lazy of late but anyway here goes,
http://www.myspace.com/tamaraillisa
Thank you! I was WONDERING wth that meant :P

Here is mine: http://www.myspace.com/angieskidney

LOL, me too!!

http://www.myspace.com/beepiebaby
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angieskidney
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« Reply #23 on: February 18, 2007, 03:30:50 PM »

Wow you changed your background Shay lol! Your site makes you now look like one of those tough girls that will kick any man's butt lol :P
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
Epoman
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« Reply #24 on: February 18, 2007, 04:13:17 PM »

Wow you changed your background Shay lol! Your site makes you now look like one of those tough girls that will kick any man's butt lol :P

 :o

/Epoman Runs and Hides
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- Epoman
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13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.

Please help us advertise, post our link to other dialysis message boards. You
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