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Author Topic: Has Anyone Self Catheterized?  (Read 3657 times)
Cordelia
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« on: September 20, 2012, 04:28:21 PM »
Has anyone self catheterized? Someone in my family may have to and I thought I'd come here for advice. They have to have the bladder sling surgery for a leaky bladder and was told they'd have to self catheterize for a couple of days post surgery at home.  She is female.

Does anyone know if the catheter has to be in the entire two days or is it something you only do so often during the course of the day?

Just wondering if anyone had this surgery before and what your experience was with the catheter if you had to do that?

Thanks in advance for any help/info/advice.
« Last Edit: September 20, 2012, 04:55:55 PM by Cordelia » Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Sue
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« Reply #1 on: September 20, 2012, 05:03:21 PM »
The sling surgery i had was the main contributing factor to my renal failure as it was done too tightly and damaged my urethra. This caused obstruction, urine retention and reflux. At the time of surgery i had in dwelling catheter for about 4 days. I now self catheterise 5/6 times a day. Good luck to your family member, i know this surgery is successful for many , i was just unlucky i guess.
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Life is not measured by the number of breaths we take, but by the moments that take our breath away.
Cordelia
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« Reply #2 on: September 21, 2012, 05:37:07 AM »
Did you have much pain post surgery?
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
okarol
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« Reply #3 on: September 21, 2012, 10:38:25 AM »
Jenna has been self-catheterizing for 11 years, 4 to 5 times a day.
She never has had trouble doing it.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
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She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
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Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
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Cordelia
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« Reply #4 on: September 21, 2012, 01:03:05 PM »
Thanks, Karol.  I've often wondered how people go about doing this, so it's not likely then that the catheter would be in constatly, just intermittedly then, I'm assuming.
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Sue
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« Reply #5 on: September 21, 2012, 10:05:47 PM »
There wasn't much pain post surgery Cordelia, mind you I had the procedure done at the same time as I had a hysterectomy so I was full of pain meds :)
The catheter remained in for the first days.
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Life is not measured by the number of breaths we take, but by the moments that take our breath away.
Cordelia
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« Reply #6 on: September 22, 2012, 03:07:16 AM »
There are one of two ways to go in, right? Vaginally or through the navel, right?
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Sue
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« Reply #7 on: September 22, 2012, 06:42:19 AM »
I had a suprapubic Catheter, which goes in just above the pubic bone, was left in for about 4 days..... I now self catheterise which is via urethra.
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Life is not measured by the number of breaths we take, but by the moments that take our breath away.
Cordelia
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« Reply #8 on: September 23, 2012, 04:09:18 AM »
What is a suprapubic Catheter?
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Rain
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« Reply #9 on: September 28, 2012, 11:39:38 AM »
I have been self catheterizing since the age of 4.. via the urethra (vaginally).

I also have a narrowing of the urethra that the catheter sometimes get stuck on, they have note on my chart to put a larger catheter in when i go for transplant surgery to try to stretch it. It doesn't happen very often since i use smaller catheters. 

I self cath 4 times a day.  Make sure  it's clean and you use defecting wipes, a good gel (lubricant) and get female catheters since they are 1/2 the size of normal catheters. 
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1988  Diagnosed with reflux and kidney damage
2006-  Diagnosed with Renal Failure and start dialysis in centre with catheter
2007- Fistula created and in centre hemo with fistula
2012- Fistula clotted and central line inserted
May 2014- Received Kidney from deceased donor
Cordelia
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Posts: 2012
« Reply #10 on: September 28, 2012, 02:24:53 PM »
Does it hurt even with lubricant?
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Sue
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Gender: Female
Posts: 596
« Reply #11 on: September 28, 2012, 07:40:34 PM »
I imagine everyone is different but I never have pain when using catheters.
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Life is not measured by the number of breaths we take, but by the moments that take our breath away.
Cordelia
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Gender: Female
Posts: 2012
« Reply #12 on: September 29, 2012, 03:07:05 AM »
Thanks   for  sharing your  experiences here  Sue, Okarol and Rain          :thx;
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
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