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Author Topic: Dammit!... Infection AGAIN!.....  (Read 22598 times)
natnnnat
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« Reply #25 on: September 20, 2012, 04:37:37 AM »
That's a week... its a fair stay... have they said anything about what it might be yet? 
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Poppylicious
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« Reply #26 on: September 20, 2012, 07:18:23 AM »
Darth, hope the hospital can sort this out quickly so she doesn't have to be away from home for longer than need be.  Sending positive thoughts and many *huggles* to both of you.
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Darthvadar
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« Reply #27 on: September 20, 2012, 11:50:09 AM »
News isn't good... They're taking her to theatre tomorrow to take out the TenchKoff. They're also fitting a Permacath to deliver haemo for a few weeks until they can fit a new TenchKoff and get her back onto PD... The infection's not going on antibiotics... It's complicated by the fact that there are two bugs involved... She's not one bit happy!.... Very tearful when I left her....

Please pray for her.... She's very distressed.....

Love to all....

God bless...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
cassandra
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« Reply #28 on: September 20, 2012, 01:37:13 PM »
So sorry to hear that, I'll be thinking of you both

lots of love Cas

     
      :grouphug;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
kitkatz
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« Reply #29 on: September 20, 2012, 04:51:24 PM »
Hopes and prayers for Elsie
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Darthvadar
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« Reply #30 on: September 20, 2012, 05:08:50 PM »
Thanks Cassandra and Katherine...

I confess I'm worried!.... Thanks for the Skype chat, Katherine... You must have a pretty soggy shoulder after me crying on it!....

Would appreciate the prayers... Think it's one of those 'Storm Heaven' situations!...

God bless...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
natnnnat
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« Reply #31 on: September 20, 2012, 06:34:21 PM »
 :grouphug;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
lmunchkin
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"There Is No Place Like Home!"
« Reply #32 on: September 20, 2012, 07:43:42 PM »
So Sorry Darth.  You must be at wits end.  Definately "Lifting her up now".  I pray she is going to get through this.  Praying God give you strength Darth.
This definately sounds like a Bacterial infection.  They are always harder to get rid of.  Please let us know if there is anything we can do along with our Prayers!

lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Darthvadar
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« Reply #33 on: September 21, 2012, 10:48:09 AM »
I am hopping mad!..... I'm spitting fire!......

Dammit!.... They put a new Permacath into Mum's chest to deliver haemodialysis this morning... They were to take her to theatre to remove the infected TenchKoff this afternoon... They had her Nil-By-Mouth, and then at TEN PAST SIX this evening, told her that they wouldn't be doing it until tomorrow!... Grrrrrrrrrrrrrr!!!!!!!.....

What I said in response is not repeatable in polite company!...

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Chris
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« Reply #34 on: September 21, 2012, 03:05:55 PM »
But you can tell us here amongst friends! ;D :-[
 
To me it seems idiotic on the way they proceeded. Why not kill two birds with one stone while you have someone in the O.R. It would not have taken to much longer to remove it, clean up area of the infection, and suture up. Idiots I say  :banghead; :Kit n Stik;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
natnnnat
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« Reply #35 on: September 21, 2012, 06:54:38 PM »
O man.  She must have been starving and miserable by the end of that!!!!!!!   ??? ??? ???
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
willowtreewren
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« Reply #36 on: September 21, 2012, 07:20:13 PM »
Oh, dear, Darth.

I know you are strong, but enough is ENOUGH!

 :grouphug; :grouphug;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Darthvadar
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« Reply #37 on: September 22, 2012, 01:40:01 AM »
Thanks everyone....

Just rang the hosp. to be told "Elsie's supposed to be going to theatre today for TenchKoff removal, so hopefully that goes ahead".... WHAT??..... 'Supposed to be'??... 'HOPEFULLY'??.... Folks, it had BETTER freaking  well go ahead, or believe me, all bloody Hell will be breaking loose, and the Patient Liason Officer will be picking fleas out of his ear for the next week!....

The air over the hospital will be turning blue!...

Going to the hosp. now, and I'm in FULL B*tch In The Wheelchair mode!!..... Will update later... If I don't get arrested meantime!....

Love to all...

Darth...
« Last Edit: September 22, 2012, 10:40:53 AM by Darthvadar » Logged
Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
natnnnat
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« Reply #38 on: September 22, 2012, 02:32:31 AM »
 :cheer: :cheer:
Hope she gets fixed up today. 
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Darthvadar
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« Reply #39 on: September 22, 2012, 05:00:32 AM »
Well Folks....

Interesting developments.....

I understand from the other ladies in the ward that there was what you might call 'a frank exchange of views' between Mum and a doctor about ten minutes before I arrived... The doc came to tell her that she probably wouldn't be going to theatre until Monday to have the TenchKoff removal done... Bear in mind, she was Nil-By-Mouth since midnight... This was 10.30am...

Well, from what the other ladies told me, Mum threw a major tantrum.... Made some 'honest' observations on the standard of care she was receiving, and she also threatened to go to the media!!!... Folks, Mum has NEVER stood up like this!.... I'm SO proud of her!... That's my mum!!!!!!...

The upshot of the whole thing is that Mum had gone to theatre when I got there, and should be back soon!....

Will update later!....

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Poppylicious
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« Reply #40 on: September 22, 2012, 06:32:40 AM »
Quote from: Darthvadar on September 22, 2012, 05:00:32 AM
Made some 'honest' observations on the standard of care she was receiving, and she also threatened to go to the media!!!... Folks, Mum has NEVER stood up like this!.... I'm SO proud of her!... That's my mum!!!!!!...
This made me giggle ... it's always the quiet ones with the loudest roar! Go Elsie!!

 :cheer:

(Hope the surgery passed by without a hitch.)
Logged
- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
billybags
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« Reply #41 on: September 22, 2012, 07:02:13 AM »
As Poppy said.  Go Elsie!! Go    Have they told her how long she will be on hemo for? When hubby had to have his cath out because they could not get rid of the infection in the tube, he was on hemo for about 3 months, drove him mad. Thinking about you both.
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Darthvadar
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« Reply #42 on: September 22, 2012, 08:27:36 AM »
Thanks Billy... Thanks Poppy....

Yep, it's only taken Mum 75 years to throw a tantrum, but I believe it was a beauty... Well worth the wait!... Sorry I missed it!!!...

Billy, they're talking about six weeks on haemo... We'll see!... Never believe what they say until it happens!....

Darth...
« Last Edit: September 22, 2012, 09:22:11 AM by Darthvadar » Logged
Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
willowtreewren
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« Reply #43 on: September 22, 2012, 09:49:24 AM »
I bet that was a doozy of tantrum! Would have paid for tickets to see it.  :shy;

Thinking of you....

Aleta :shy;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cassandra
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When all else fails run in circles, shout loudly
« Reply #44 on: September 22, 2012, 01:25:09 PM »
How did your mum get on Darth?

lots of love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Darthvadar
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« Reply #45 on: September 23, 2012, 01:16:06 AM »
Hi Cassandra and Aleta....

Just about to go to the hosp. now.....

All went well yesterday... Had the TenchKoff out, and they did a major clean up... She had a few hours haemo yesterday, and they said they might do a couple of hours today...

I can't wait until the docs she faced down have to treat her again... It should be 'interesting'.... Bet the poor young lads are drawing lots to decide who has that 'pleasure'... Hee Hee!!!!!...


Yes Aleta, one of the nurses said that they should have sold tickets.... They'd have made a fortune!.... LOL!....

Love to all...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
natnnnat
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« Reply #46 on: September 23, 2012, 02:17:22 AM »
This sounds more promising.  Now I hope they've learned some manners. 
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Darthvadar
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« Reply #47 on: September 23, 2012, 06:10:18 AM »
Hee Hee!!!!!...

This morning, the same three docs approached Mum's bed grinning sheepishly... Mum could see that they were wary of the reception that they were going to receive... Well Mum couldn't help herself, and burst out laughing... The docs started laughing too, and the surgeon wiped his hand accross his forehead and said 'Phew!'...

Mum said 'I'm not going to apologise for yesterday... Because I know that I had no choice'... One of the docs agreed with her and said 'You're right, Elsie... Had you not let fly yesterday, it wouldn't have been done... Now, can we please have a look at your wound???'... Gentlemen, all three!....

Everything is looking good.... The wound looks good... No ooozing, and her infection markers in her blood are down... All positive....

Thanks everyone for your support...

Darth...
« Last Edit: September 23, 2012, 06:15:23 AM by Darthvadar » Logged
Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
billybags
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« Reply #48 on: September 23, 2012, 10:41:05 AM »
That's great.
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Chris
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« Reply #49 on: September 23, 2012, 11:31:50 AM »
Yep, watch out for us quiet ones!


Glad everything looks good Darth
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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