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Author Topic: Please pray for Paris and her hubby and family....  (Read 45667 times)
kitkatz
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« Reply #50 on: September 20, 2012, 04:46:21 PM »
Prayers are with you.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
glitter
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« Reply #51 on: September 20, 2012, 06:11:32 PM »
Thinking of you,   :grouphug;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
kellyt
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« Reply #52 on: September 21, 2012, 05:01:50 AM »
You're in my thoughts, sweet friend.  You and your entire family.

Love and Hugs.  :cuddle; :pray;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
willowtreewren
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My two beautifull granddaughters

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« Reply #53 on: September 21, 2012, 12:58:36 PM »
Paris lost her dear husband today.  :grouphug;

I am torn with sadness for her and her family.
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
MooseMom
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« Reply #54 on: September 21, 2012, 01:34:47 PM »
And to think that some of us were in his company in Las Vegas less than a year ago...

I am so very sorry.  Words fail me.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #55 on: September 21, 2012, 03:24:03 PM »
Quote from: willowtreewren on September 21, 2012, 12:58:36 PM
Paris lost her dear husband today.  :grouphug;

I am torn with sadness for her and her family.

 
Awww
It was good to have all or most of his family there.
 
I could not keep up on fb while at the doctors todays.
 
I still do not know what to say and the cards at the hospital just did not seem to fit the situation.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
glitter
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« Reply #56 on: September 21, 2012, 06:48:24 PM »
oh Paris- I am so sorry  :grouphug;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
natnnnat
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« Reply #57 on: September 21, 2012, 07:18:49 PM »
Profound condolences Paris, hoping for strength for you and your family.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
okarol
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« Reply #58 on: September 21, 2012, 08:00:14 PM »
 :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( So sad.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Bajanne
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« Reply #59 on: September 21, 2012, 09:57:59 PM »
Sincere condolenes to Paris, Beth and the entire family.  The love and concern of your IHD family is surrounding you all at this time.  This is a loss to the IHD family.  I pray your strength at this time.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Sue
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« Reply #60 on: September 21, 2012, 10:02:29 PM »
God Bless and keep Paris and her family and friends as they mourn the loss of their loved one.
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Life is not measured by the number of breaths we take, but by the moments that take our breath away.
Jean
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« Reply #61 on: September 22, 2012, 12:48:50 AM »
So very sad for you Paris and for your family. Praying for your comfort of course. Know that your Hubby is now in the better place.
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One day at a time, thats all I can do.
Darthvadar
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« Reply #62 on: September 22, 2012, 01:35:16 AM »
So sorry for the entire family's loss....

May Barry's gentle sould rest in peace....

Darth...

God looked around His garden And found an empty place.

He then looked down upon the earth And saw your tired face.

He put his arms around you And lifted you to rest.

God’s garden must be beautiful He always takes the best.

He saw the road was getting rough And the hills were hard to climb,

So He closed your weary eyelids And whispered "Peace be thine".
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
monrein
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Might as well smile
« Reply #63 on: September 22, 2012, 05:56:33 AM »
 :'( :'( :'(

Such a sad time.  Such a lovely man and his family too. 

 :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Marsh
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« Reply #64 on: September 22, 2012, 07:40:30 AM »
 :pray;
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kitkatz
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« Reply #65 on: September 22, 2012, 10:20:49 AM »
My prayers are with the family at this time.  :grouphug; :grouphug;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
boswife
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us and fam easter 2013
« Reply #66 on: September 22, 2012, 11:31:41 AM »
 :'( So awful sad..  My prayers for comfort dear ones.  Im so sorry.  :pray;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Traveller1947
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« Reply #67 on: September 22, 2012, 12:55:27 PM »
My heart goes out to you, dear Paris.  Praying that you will find comfort...
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cassandra
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When all else fails run in circles, shout loudly
« Reply #68 on: September 22, 2012, 01:19:24 PM »
I'm so sorry to hear that. Condolences for Paris and her family, and friends

lots of love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Roxy
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« Reply #69 on: September 22, 2012, 05:33:26 PM »
My condolences to Paris and her family. Will be keeping you all in my thought and prayers.  :grouphug;  :grouphug;
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lmunchkin
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"There Is No Place Like Home!"
« Reply #70 on: September 22, 2012, 07:00:27 PM »
Quote from: Darthvadar on September 22, 2012, 01:35:16 AM
So sorry for the entire family's loss....

May Barry's gentle sould rest in peace....

Darth...

God looked around His garden And found an empty place.

He then looked down upon the earth And saw your tired face.

He put his arms around you And lifted you to rest.

God’s garden must be beautiful He always takes the best.

He saw the road was getting rough And the hills were hard to climb,

So He closed your weary eyelids And whispered "Peace be thine".

Paris, Im so very very sorry for the loss of Barry. I wish I had met him.  He had to have been a great guy.  Again, Im so sorry, and the quote above says it the way that I see it too.

Know that we ALL love you, and if you need anything, just ask. God Bless you all in this trying time!

lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
KarenInWA
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« Reply #71 on: September 22, 2012, 09:12:09 PM »
This is from Paris's Facebook:

"Yesterday, pain ended for my sweet husband and the pain began for our family. No one could write a better exit than what we experienced. All 4 kids, 2 dear friends, daughter in laws, David and Hatem, and Rev. Allen surrounded Barry, holding hands as Rev. Allen prayed lovely words about Barry and his homecoming. I layed my hand on Barry's chest most of the last 5 days and when his breathing was very slow, I tapped my fingers on his chest, waiting for each next breath. About half way through the prayer, I didn't feel his breathe, so I tapped gently waiting for the gasp. At the end of the prayer, the nurse stepped in and said he is gone. I knew already. But how many of us will take our last breathe while being prayed into Heaven? No more suffering. This has been a very fast journey and we were just beginning to comprehend how sick he was. He and I have been on a wonderful trip through life ---- 45 years and 1 month of marriage. It was a good life, a happy life. Memorial service will be Friday - more details will follow. I don't know how to do this; I'm getting through hour by hour. Thank goodness for my kids and grandkids, although, they are all devistated, too. The Lord is my shepard, I shall not want......."
 
 :'(
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
cookie2008
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« Reply #72 on: September 22, 2012, 09:51:50 PM »
So sorry for your loss, may he rest and peace.
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
lmunchkin
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"There Is No Place Like Home!"
« Reply #73 on: September 23, 2012, 06:34:54 PM »
Thanks to all of you on Facebook for the updates.  I don't do facebook so I deeply appreciate the updates.
Paris he is looking down on you now. Watching his little Angel on Earth.  You were his ROCK in life!

RIP Barry!

lmunchkin

P.S. Praying for the loved ones left behind.  May God give them comfort.
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
boswife
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us and fam easter 2013
« Reply #74 on: September 23, 2012, 07:26:01 PM »
My deepest heartfelt prayers with you.  I had fears today of your same loss.  I said,,"i dont know how to do this"...  Your having to 'do this' and it hurts me real bad knowing what you must be going through.  Bless your hearts, and peace and Gods comfort be with you.  Im sorry... with love, jill and bo
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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