I'm on the transplant list! On Hold, but on the list :-P

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I'm on the transplant list! On Hold, but on the list :-P

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Topic: I'm on the transplant list! On Hold, but on the list :-P (Read 2069 times)

MomoMcSleepy

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My son Roddy McSleepy at 6 months! sry pic sidewz

I'm on the transplant list! On Hold, but on the list :-P

« on: July 31, 2012, 12:04:28 PM »

I haven't had an infection since April, though I think I've chased off a few. I have been purchasing extra catheters so I don't re-use them so often. It took Blue Cross four months to finally say they had my doctor's note for extra catheters (limit is 60 a month), they have now begun the 30 day review of my case. I feel bad about the waste, but I can't really argue with the results--I've been feeling pretty healthy!

Still waiting for Infectious disease specialist to sign off. No problem waiting; I don't want to get a new kidney and take immunosuppressives if I'm getting infections, I get it.

Also have three matching living donors. Still waiting on my brother, his doctor's office and another clinic refused to test him, so I told him to just come out by my house and we can hang after.

So how are all of you? Long time, no time, I have been super busy at work, but my summer project is winding down now...lazy days a'comin.


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35 years old, first dx w/ chronic renal insufficiency at 28, pre-dialysis

born with persistent cloaca--have you heard of it? Probably not, that's ok.

lots of surgeries, solitary left kidney (congenital)

chronic uti's/pyelonephritis

AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
Howard the Duck

lainiepop

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Re: I'm on the transplant list! On Hold, but on the list :-P

« Reply #1 on: July 31, 2012, 12:21:50 PM »

All good news! Hope you get Signed off soon & good luck with the live donor testing, do keep us updated! I'm 9wks post tx now & despite their Worries bout how to Connect Kidney to my mitrofanoff & whether it would drain ok all has gone well & working well.

looking forward to reading more good news updates


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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !

cassandra

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When all else fails run in circles, shout loudly

Re: I'm on the transplant list! On Hold, but on the list :-P

« Reply #2 on: July 31, 2012, 02:48:19 PM »

Congrats both of you.

love Cas


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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

still on waitinglist, still ok I think

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