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Author Topic: Another New Miracle Supplement!  (Read 6589 times)
Rerun
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Going through life tied to a chair!

« on: July 30, 2012, 09:58:36 PM »

Why do people think they can bring back my health/kidneys with these supplements.  REALLY?

The latest video I had to watch was about Ambrotose Complex  aka  NutriVerus. 

If anyone has heard of these and that it helps with kidney failure please tell me.  Also, can I take it?? 

I guess it is this little scoop of powder I mix in with my food that uses real nutrients that my cells need.

Now I know we are not supposed to take regular vitamins because some don't dialyze out and build up to a toxic level.

Why?  Why?  Do people keep trying to cure me?
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Jean
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« Reply #1 on: July 31, 2012, 12:56:21 AM »

Because they LOVE you!!
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One day at a time, thats all I can do.
Grumpy-1
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Make me the person my dog thinks I am

« Reply #2 on: July 31, 2012, 05:57:53 AM »

because they want to make money - not out of love
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Make me the person my dog thinks I am
Gonyeau
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« Reply #3 on: July 31, 2012, 06:29:44 AM »

Snake Oil would work just as well.

Oh wait that was 200 years ago :-))
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Stephanie
DX APKD age13 1965
Successfully denied disease until May 2009
Now in Stage 4 and still trying to deny
sullidog
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« Reply #4 on: August 04, 2012, 09:58:27 PM »

Reminds me of that one guy on youtube can't remember his name Tim somebody who said dialysis was bad for you and even brought a former tech on his show.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
AnnieB
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« Reply #5 on: August 05, 2012, 12:17:44 PM »

Reminds me of that one guy on youtube can't remember his name Tim somebody who said dialysis was bad for you and even brought a former tech on his show.

Is "former" the operative word in that sentence?
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Rerun
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Going through life tied to a chair!

« Reply #6 on: August 09, 2012, 06:03:52 PM »

Well, I watched the hour DVD and I've talked to 4 people, one of whom is on hemodialysis.  www.mannatech.com is the website that talks about the science of gyglobology and I will try the Ambrotose to see if it will make me feel better and help my skin improve.

Time will tell.
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Rerun
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Going through life tied to a chair!

« Reply #7 on: August 18, 2012, 10:00:27 AM »

Okay I got the stuff yesterday.  It was in this big box and it was stuffed with mostly paper and this little jar.  Then I open the jar and it is 2/3 full~~~  3.5 ounces of powder that I'm supposed to take a teaspoon monrning and night.  That shit better work for $136.00   or $38 an ounce!!

I'll let you know.  Believe me if it makes my skiin better and the warts go away on my hands I'll be selling it.  Would be really great if it does work.

See.... I'm trying that "positive attitude" crap!

     

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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #8 on: August 18, 2012, 04:44:47 PM »

What does your doctor say about taking it? Does it have a list of ingredients?
Good grief woman! It could be ground up tree bark!
Anyway, I hope it works, but I am forever a skeptic, especially after reading this http://chetday.com/glyconutrients.htm

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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Whamo
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« Reply #9 on: October 31, 2012, 06:59:02 AM »

A lot of supplements don't work, but some do.  I don't know of any for kidneys that really works.  Most of them just pull water, if anything.  I do know of something that helps the heart.  My ejection fraction went from 19 (disabled) to 75 (70 is normal) after six months of taking Standard Process "Cardio-Plus".  If anyone has heart failure issues, you might want to try it.  I also took a strong fish oil during that period. 
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