Messed up after dialysis today.............

[Wat76]

Hello all, Today after d, I had the usual headache and a hour drive from home. I barely made it, I started shaking and trembling, had to immediately run to the rest room with diarrhea, it was terrible. Evevery part of my body was in serious pain, I could not move, the area where my heat is located was so painful, my feet, all the way up both legs were vibrating, it wouldn't stop, I could not get off the toilet, just when I Was ready to Call 911' y son gave me some water and a wet wash cloth and I started coming back to normal, they pulled a half liter of fluid, and did a sodium carbonate bath, anyone, have This ever happen to you, it was terrible,so bad I don't want to go back to dialysis. Still has diarrhea, help.

[jeannea]

Have you called your center yet? Tell the nurse you want to have the doctor call you back. You should get some advice.

[Big E]

I'm so sorry you had to go through that, it sounds awful.  You should absolutely call the doctor. 

I wish I had more than that to offer. 
 

[MommyChick]

Like everyone else comments the are right you need to call the doctor right away & tell your nurse what happened too!
Have you been on dialysis long?

Now I know everyone has different side effects on dialysis but when I first started & they kept trying to get my dry weight I had symptons like that but mine got so bad I didn't make it out to the parking lot ( I always drive myself) here they were taking to much fluid off & it made me horribly sick in the beginning. Its something you might want to question! Also only YOU know how your feeling, you cant always go on what the nurses or doctors tell you. The minute I don't feel good at my clinic I let me techs know.  I'm normally always right about when they take to much fluid from me. That can make the difference between feeling horrible or having a good day!

Hope you feel better

[MooseMom]

Oh Wat, that sounds really awful!  And so scary, too!  This can't happen again, so yes please call your neph.  That just doesn't sound right at all.

[Wat76]

Thanks for listening, I am going to talk with the neph on Tuesday and I am going to refuse dialysis if they try to remove fluid that I don't need remove. I don't eat salt, very careful about my diet, don't eat dairy products and follow everything I am told. So if they still insist on pulling water, I am going to refuse treatment. Until I start showing signs of edema, enough is enough. I feel better today after drinking tons of water to replace what they took off. Again thanks.

[lmunchkin]

Sorry Debra that you are going through all this crap!  Would you consider doing Dialysis at home.  Lots of people here are doing Hemo or PD at home and loving it.  We have done both (husband is the one with ESRD) and just never got into the In-center.  We tried it in between PD and Hemo at home, but not for long.

You could always tell them that you don't want alot taken off.  Good indicators of too much fluid removal are Low BP and cramping.  The minute you feel either, and you will know it, then  ask to reduce your UF to zero and just remove toxins.  It is your body, your life and you should dictate. Just take charge of your care!  That is why, IMO, so many people are doing home dialysis.  PD was a good modality, but Hemo was better for my husband.  Both are great because they are done in your own surroundings and on your own time.

Again sorry you are dealing with all this, and God Bless,
lmunchkin

P.S. Missing too many sessions, can not be a good thing!  You need to talk with your Neph and tell he/she what is going on and you want to change some things around. But do not continue to skip dialysis, you could get very sick quickly and possilby die.  Don't take that chance, do something to gain back control of your care!  Good luck and keep us posted.
       

[Wat76]

Good Morning Everyone,

Well, I spoke with the Staff at the D clinic and explained to them what I went through after D on Sat, they are going to run me through a series of test to see what is going on.  They are thinking without testing me, that my magnesium and potassium is too low.  '

We will see what happens, I don't agree with everyone being in the same boat and receiving the same thing because they are in kidney failure.  Some people do follow all precautions and watch their food and water intake carefully.  I still feel they are taking too much water off me, even though they are insisting they do not.  I hope they figure out what is going on me me, i am tired of feeling washed out after dialysis.  If this is what D, feels like, i don't want no parts of it.  I feel really bad and I feel adjustments can be made. No one should have to feel this bad, sometimes the experts can be wrong.

[thegrammalady]

first of all you know your body better than they do. you should be telling them how much to take off. just keep arguing with them till the give in. have them turn the maching so you can see it and make sure they don't take off more than you tell them to. i've been at this 6 years and if you don't do it my way you don't do it at all.

[lmunchkin]

That is exactly what happened to my husband when he was in-center.  They would drain him so low that he would have to stay awile because he was like a drunkered.  They washed him out almost every time.

Its a damn shame! Tell your neph that if something can't be done, you want to transfer to another clinic, that will get their attention!!!!!

lmunchkin