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Author Topic: Reducing caregiver burnout  (Read 14252 times)
obsidianom
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« Reply #25 on: January 30, 2015, 09:10:27 AM »

I am as much invested in each dialysis treatment as my wife is. Keeping her alive and feeling ok is worth any amount of time and investment. She always feels so much better immediately after dialysis on Nxstage.
Yes at times it is tiring and I am considering retiring from my remaining medical practice soon due to the demands of taking care of my wife. But I do this happily for her.
We have been doing dialysis for almost 3 years now. 
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My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
PrimeTimer
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« Reply #26 on: January 30, 2015, 07:35:46 PM »

I am as much invested in each dialysis treatment as my wife is. Keeping her alive and feeling ok is worth any amount of time and investment. She always feels so much better immediately after dialysis on Nxstage.
Yes at times it is tiring and I am considering retiring from my remaining medical practice soon due to the demands of taking care of my wife. But I do this happily for her.
We have been doing dialysis for almost 3 years now.
Dr. O: You and your wife's story motivate me to be a better care partner. I am lousy at it but I do it and will keep doing it and hopefully at some point it won't seem so darn overwhelming (for my mind AND my body). 
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
obsidianom
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« Reply #27 on: January 31, 2015, 05:58:42 AM »

I am as much invested in each dialysis treatment as my wife is. Keeping her alive and feeling ok is worth any amount of time and investment. She always feels so much better immediately after dialysis on Nxstage.
Yes at times it is tiring and I am considering retiring from my remaining medical practice soon due to the demands of taking care of my wife. But I do this happily for her.
We have been doing dialysis for almost 3 years now.
Dr. O: You and your wife's story motivate me to be a better care partner. I am lousy at it but I do it and will keep doing it and hopefully at some point it won't seem so darn overwhelming (for my mind AND my body).
Thank you.    But I don't think you could possibly be 'lousy at it'".   You obviously care a lot from your posts and take it quite seriously. That is really what it is about.  Keep up the good work.
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My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
pianoflute2
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« Reply #28 on: March 25, 2015, 09:37:18 PM »

I'm scared I'm already experiencing burnout, and I've only been taking care of my brother for about two weeks, and he's been in the hospital the whole time! Luckily I'll get this Saturday off. It's especially hard because I'm having to move from Florida to Utah, and I miss my home. I hope it will be better once he's home.
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cassandra
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When all else fails run in circles, shout loudly

« Reply #29 on: March 26, 2015, 05:57:09 AM »

Dear Piano I really can imagine the stress you are under with all the things happening at the moment with your brother. the shock must have been incredible. I remember that my family was in shock when I was first admitted, and when I'm in hosp now it's way worse for hubby than when I'm doing HHD. I read in one of your posts that his kidneys could still kick in, and that your brother is trying really hard to do everything he needs to do, so try and do some 'me' things on your next Saturday off?

Love and strength and luck, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
pianoflute2
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« Reply #30 on: March 26, 2015, 08:36:58 PM »

Thanks Cas, it was very scary and shocking! And this hospital environment is just draining my energy... But I promised my brother I'd be there for him, and I'm going to be there the whole time. This Saturday I'm going to the local amusement park with a friend, so that should really help me wind down, it's just getting to Saturday that's becoming an issue! I keep breaking down and just crying....
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PrimeTimer
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« Reply #31 on: September 24, 2015, 08:31:32 PM »

One way to eliminate the type of burnout one feels from fielding repetitive questioning and/or negative remarks from friends and family, is to either do it the time consuming way and slowly cut them out of your life, learn to ignore them, which also can be time consuming (depending on your level of experience) or, if you're really up to it and wanting instant results (notice, I didn't say gratification) and don't think they'll sue you, slap them silly.  ;D
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
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