I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 22, 2024, 04:32:56 PM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: General Discussion
| | |-+  Husband 45 with no dialysis for 6 days-says he's quitting
0 Members and 2 Guests are viewing this topic. « previous next »
Pages: 1 ... 12 13 [14] 15 16 ... 18 Go Down Print
Author Topic: Husband 45 with no dialysis for 6 days-says he's quitting  (Read 98835 times)
okarol
Administrator
Member for Life
*****
Offline Offline

Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #325 on: November 25, 2012, 09:01:49 PM »

Thanks for the update.  :cuddle; :cuddle; :cuddle;
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
cdwbrooklyn
Full Member
***
Offline Offline

Gender: Female
Posts: 388


Positive Thoughts equal Positive Energy

« Reply #326 on: November 26, 2012, 12:56:22 PM »

God do answers prayers!  Glad things are going okay with you.  You and your family are still in my prayers.
Logged

Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
MooseMom
Member for Life
******
Offline Offline

Gender: Female
Posts: 11325


« Reply #327 on: November 26, 2012, 12:59:49 PM »

I'm so glad that hospice is working so well for your family. :cuddle;
Logged

"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
WishIKnew
Sr. Member
****
Offline Offline

Posts: 635


Alports, dialysis '07-'12,cancer'11,transplant '12

« Reply #328 on: November 26, 2012, 03:46:51 PM »

So glad you and John and your daughter are getting the support you are getting.  I've never been directly involved with Hospice, but I have heard wonderful things about the emotional and practical support they provide.  I think of you often and pray for you to have what ever you need when ever you need it. 

Wish I knew the perfect thing to say...    :grouphug;
Logged
billybags
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2190


« Reply #329 on: November 27, 2012, 10:22:51 AM »

Sending you lots of hugs.
Logged
fuzzyL
Newbie
*
Offline Offline

Posts: 43

« Reply #330 on: November 28, 2012, 12:18:46 PM »

we are doing it at home with next stage--it nowhere has the bad affects your husband gets-and our nurse is very careful about not pulling too much water from me--our nurse has horror stories about clinics--consider the home method
Logged
Lillupie
Sr. Member
****
Offline Offline

Gender: Female
Posts: 665


wedding 12-10-11

WWW
« Reply #331 on: November 28, 2012, 08:18:21 PM »

we are doing it at home with next stage--it nowhere has the bad affects your husband gets-and our nurse is very careful about not pulling too much water from me--our nurse has horror stories about clinics--consider the home method

I agree. I like the idea of NxStage. But her husband is not going through with dialysis.

Lisa
Logged

Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
willowtreewren
Member for Life
******
Offline Offline

Gender: Female
Posts: 6928


My two beautifull granddaughters

WWW
« Reply #332 on: November 29, 2012, 04:22:21 AM »

Thinking of you....

 :grouphug; :grouphug; :grouphug;

Aleta
Logged

Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
johnswife
Jr. Member
**
Offline Offline

Posts: 54

« Reply #333 on: November 29, 2012, 01:55:43 PM »

Hi guys. Still here. He's starting to hallucinate though and talk alot while sleeping. He's sleeping alot. Hasn't eaten anything since yesterday. He's not in any pain and resting comfortably. Of course as strong willed and stubborn as he is; he will probably be back up and walking in a day or 2. God bless you all and hope you are all doing ok;)
Logged
willowtreewren
Member for Life
******
Offline Offline

Gender: Female
Posts: 6928


My two beautifull granddaughters

WWW
« Reply #334 on: November 29, 2012, 02:01:26 PM »

I know he is stubborn, but the sleeping and not eating sounds like he is getting much closer to stepping out of this life. I'm thinking of you. It has been simply amazing that he has held on this long. I'm so glad that he is comfortable.

How are YOU doing?

 :cuddle;

Aleta
Logged

Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Joe
Elite Member
*****
Offline Offline

Gender: Male
Posts: 1166


« Reply #335 on: November 29, 2012, 03:20:35 PM »

Have you both in our thoughts and prayers.  :grouphug;
Logged

Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
Whamo
Elite Member
*****
Offline Offline

Posts: 1028

« Reply #336 on: November 29, 2012, 03:36:51 PM »

God bless you, and keep him comfortable.   :pray; :pray; :pray; :pray;
Logged
cassandra
Elite Member
*****
Offline Offline

Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly

« Reply #337 on: November 29, 2012, 11:49:45 PM »



        :grouphug;


lots of love, and strength Cas
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Jean
Member for Life
******
Offline Offline

Gender: Female
Posts: 6114


« Reply #338 on: November 30, 2012, 01:23:55 AM »

You are on everyone's mind Johnswife, and I like so many others hit this post first thing. I hope he makes it thru Christmas anyways. God will decide that for him. You are all in my prayers.
Logged

One day at a time, thats all I can do.
MaryJoe
Sr. Member
****
Offline Offline

Gender: Female
Posts: 544


« Reply #339 on: November 30, 2012, 05:36:03 AM »

I'm glad to hear that John is not in pain.  I hope you are able to get more rest now that hospice has made him more comfortable.  You and the girls (as well as John) are in my thoughts often.   :grouphug;
Logged

Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
AnnieB
Sr. Member
****
Offline Offline

Gender: Female
Posts: 578


« Reply #340 on: November 30, 2012, 09:07:27 AM »

Thinking of you and John  :cuddle;
Logged
cdwbrooklyn
Full Member
***
Offline Offline

Gender: Female
Posts: 388


Positive Thoughts equal Positive Energy

« Reply #341 on: November 30, 2012, 09:25:32 AM »

I'm glad John is not in any pain.  You and your family are still in my thoughts and prayers.  Please remember to take care of yourself as well as you are taking care of your family.   God Bless!!!
Logged

Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
babycake
Full Member
***
Offline Offline

Posts: 266

« Reply #342 on: December 01, 2012, 05:42:56 PM »

you can actually if you feel your ready
there was a couple that was at my center he was on diaylsis and his wife would always be there
 and all of sudden they wernt there anymore
so i had ask and i didnt realize he was 8oyrs old'
he didnt look that old and his wife was in her 60s.. she didnt look her age either
but they decided that it was time and he wasent going to come to the center anymore
he had enough.
dont know if he past or not
but im sure he has
for they usually give a patient 6months if they refuse treatment
Logged
The Lady
Newbie
*
Offline Offline

Gender: Female
Posts: 47


« Reply #343 on: December 05, 2012, 11:10:23 PM »

Updates?

Still thinking of you guys!
Logged
johnswife
Jr. Member
**
Offline Offline

Posts: 54

« Reply #344 on: December 06, 2012, 02:58:08 AM »

Hi-This is the hardest thing ive even wrote but my husband died at 5:30 on December 5th. He died in his sleep and you know we are suppose to be ready after all this time but Im not. Id give aqnything for one more hug or just another hour to tell him what he means to me. I just let him go--I should have made him fight harder or go back or someting. aNow i cant. I was awake and I heard the odd breathing and I just laid there hugging him and didnt shake him or wke him back up. WHY?????????????????????????????????????????????????????????????????????????????? He might of woke back up if only for a day but I just let him go. Why didnt I do cpr--I mean I was just numb. I cant handle it. We had both granddaughters born within 24 hours before he passed. One only 2 lbs. Our 3 young girls are devastasted and kelly my 11 yr old is walking around with her daddys hat on. This is just bull crap. He was so strong for so long. He was out Hoss and I guess we thought no matter what those doctors say he will pull though. Its 5:50 am on the 6th so hes been gone for just over 24 hours and people please hug htem and love them now---I told him I loved him but you iknow every day I would get aggravated--more scratching his back, more rubbing his legs, shoulder hurting from all the lifting and tugging but what I wouldnt give to rub his back right now. I have t be at the funeral home early in the morning and I just dont know If I can take it. The night before he died he set up on the bed and out 2 youngest girls sung to him and he had them play alabama roll on eighteen wheeler, and a bunch of others. they hugged and kissed him and he cried. It meant the world to him but why didnt I fight harder with him!!!!! I maybe could have woke him back up and i just let him lay there---the pain is unbearable and  all the what iffs I cant deal with. I gotta go but thank you all for the kind words; he never knew about this site or all of you.  My biggest hope and what I pray is that he went to heaven and is ok. AHe isnt in anymore pain. and you know he died with those dam tubes still in him!!!! He was scheduled to get them out at one the day he died. I know he prayed with a preacher the night he passed but I just dont know and its breaking my heart. If I knew I think Id be ok---but what if he needed anothe day to get saved ad I could have gave him that and let him go. It may be a few days before i can get back on here but tell them now what they mean to you and love them please.
Logged
MaryD
Elite Member
*****
Offline Offline

Posts: 1010


« Reply #345 on: December 06, 2012, 03:07:13 AM »

Johnswife    :grouphug;

Don't blame yourself for John's going.  It must have taken great strength to let him go.  And great strength for him to have made the decision to go.  Take care of yourself and your family.  I wish for peace and continuing strength for you
« Last Edit: December 06, 2012, 04:10:45 AM by MaryD » Logged
Sue
Sr. Member
****
Offline Offline

Gender: Female
Posts: 596


« Reply #346 on: December 06, 2012, 03:48:15 AM »

God bless you Johnswife and your family as you mourn the loss of John. John is resting in heaven, no more tears, no more pain (((((hugs))))
Logged

Life is not measured by the number of breaths we take, but by the moments that take our breath away.
Joe
Elite Member
*****
Offline Offline

Gender: Male
Posts: 1166


« Reply #347 on: December 06, 2012, 06:08:58 AM »

Bless you johnswife, and prayers for all that is needed.  :grouphug; It sounds like he was ready to pass over, and delaying that would not have been what he wanted. As rough as it is, it was time. We will be here when you are ready.
Logged

Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
Bajanne
Member for Life
******
Offline Offline

Gender: Female
Posts: 5337


Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #348 on: December 06, 2012, 07:36:29 AM »

You have nothing to regret.  We have been with you through this journey and we are amazed at your selflessness and your care for and of John.  He is much happier now.  I am glad that he prayed with the pastor.  Our God is so merciful.  I am also glad that he had such a time with the family.  I know you can't help but miss him, but please look after yourself now.  That is what I know he would want.  My caring thoughts are with you all the way  :cuddle;
Logged

"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
MooseMom
Member for Life
******
Offline Offline

Gender: Female
Posts: 11325


« Reply #349 on: December 06, 2012, 09:12:21 AM »

I am so sorry for your loss, but I am thankful that your husband's suffering has come to an end.  As you chronicled his daily struggles, I grew more and more horrified; we all know how the body and the spirit suffers as the kidneys shut down, and I hated seeing your husband suffer in that way.

If you had shaken him awake, yes, he MAY have survived one more day, but that means one more day of suffering.  Surely you didn't want that.  You let him go because you love him and wanted to show him mercy.  That's real love, selfless and enduring.

You are in our prayers.
Logged

"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Pages: 1 ... 12 13 [14] 15 16 ... 18 Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!