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2purpleangels
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Just looking for people to talk to!
« on: June 29, 2012, 09:58:57 PM »
Hello all! I hope to make some new friends here! Ok so back in 1999 I got a bad rash on my ankles. It spread quickly and a month later I could barely walk! It was up to my hips. ER doc finally diagnosed me with Henoch Scholein Purpura with resulted 10 yrs later in IGA neuropathy. Now do home pd dialysis 10 hrs every nite with Baxter cycler. On transplant list with type O blood for almost two yrs now. I have two kids and work full time!








EDITED: Moved to Introduction section- kitkatz, Moderator
« Last Edit: July 18, 2012, 02:47:16 PM by kitkatz » Logged
ESRD home pd baxter cycler for about 18 months. Last GFR was 7 fistula placed in left arm just in case! Never used though. Not 100% sure of cause diagnosed with Henoch Scholein Purpura in 1999 which caused IGA neuropathy
MaryD
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« Reply #1 on: June 29, 2012, 10:28:14 PM »
Hi there, purpleangels.  I'm on PD too, though CAPD.  Welcome!
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cassandra
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When all else fails run in circles, shout loudly
« Reply #2 on: June 30, 2012, 02:14:34 PM »
welcome to the site 2purpleangels
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
MaryJoe
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« Reply #3 on: June 30, 2012, 06:22:56 PM »
 :waving; and   :welcomesign;  You've found a great place to make friends.  hang around, post often and join the conversation.
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
jbeany
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Cattitude
« Reply #4 on: June 30, 2012, 08:53:49 PM »
 :welcomesign;

You sound busy, busy, busy!  Glad you found time to join us!

jbeany, Moderator
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Sue
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« Reply #5 on: June 30, 2012, 08:56:10 PM »
Hi Purple :)
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Life is not measured by the number of breaths we take, but by the moments that take our breath away.
MommyChick
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Me & my precious Miracle !!!
« Reply #6 on: August 19, 2012, 06:02:29 PM »
Hello & Welcome  :waving;
Sounds like your a busy lady! I'm sure there are days when it gets very tiring, but I find that staying busy helps keep life as normal as possible & keeps the mind off things.
Good Luck & God Bless  :grouphug;
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~ Hello All, My names Marna ~

- 1995 - 12 yrs old found out my kidneys were both failing
- 1996 - Dec. 3 I received my 1st kidney transplant at age 13, after 7/mths on the waiting list
- 2005 - In Aug. transplant failed after 9.5 years, had to have a nephrectomy due to being very ill & massive hypertension
           - End of Aug. 1st time on dialysis
- 2006 - Had my fistula placed & ready to go
- 2010 - My little Miracle was born 6/mths into the pregnancy, weighing 2.4 lbs & 13.25 in long
          - Found out my PRA is 100% & I have antibodies that CAN'T be decreased
- 2013 - Oct. 2nd  *** I finally received my kidney!!! ***
          - Dec. 3rd I had 3.5 parathyroids removed, due to them interfering w/my new kidney.
Rerun
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Going through life tied to a chair!
« Reply #7 on: August 20, 2012, 10:39:51 AM »
Hi Purpleangles and welcome to IHD.  I'm so glad you found us.  Glad you feel well enought to work full-time.

Yeah for you!    :cheer:

Rerun, Moderator    :welcomesign;
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M3Riddler
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WWW
« Reply #8 on: August 20, 2012, 11:54:20 AM »
Quote from: 2purpleangels on June 29, 2012, 09:58:57 PM
Hello all! I hope to make some new friends here! Ok so back in 1999 I got a bad rash on my ankles. It spread quickly and a month later I could barely walk! It was up to my hips. ER doc finally diagnosed me with Henoch Scholein Purpura with resulted 10 yrs later in IGA neuropathy. Now do home pd dialysis 10 hrs every nite with Baxter cycler. On transplant list with type O blood for almost two yrs now. I have two kids and work full time!



Welcome to the group... How long have you been on PD?  Have you ever thought of being listed on mulitiple lists?

///M3Riddler




EDITED: Moved to Introduction section- kitkatz, Moderator
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____________________________________
Peritoneal - 13 years
NxStage Since 4/06
3 Transplants
Admin of Dialysis Discussion Uncensored on Facebook  
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AnnieB
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« Reply #9 on: August 20, 2012, 06:14:51 PM »
 :welcomesign;
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