It's not uncommon, though. I remember being annoyed at going several days without so much as IV nutrition when it became clear that I had a leak in my intestines. The IV food was always going to be started "tomorrow", and it was always, thank you Annie, a day away. Apparently, as long as you are getting IV saline, they just shrug and let you go hungry. If you take up arms and protest, you might be prepared to compromise on broth and/or jello.
Shauna - please contact the Kidney Transplant/Dialysis Association (KT/DA). This all volunteer organization has been helping patients and families in the NE area for 40+ years. They also offer a limited financial aid program (up to $300 p/year) that you/Tony might qualify because of the additional expenses you are having.www.ktda.orgThe KT/DA officers and board members are listed with contact info. I'm familiar with George Arena and Michel Lisieski, both long-term members and former KT/DA presidents. I'm sure both wouldn't mind receiving a call from you.
Also, remember he's on some funky drugs, and they are messing with his mood like crazy. Prednisone makes everyone a little over the top, and who knows what the anti-rejection mess is doing to him.