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Author Topic: Husband's dr appt  (Read 16128 times)
paris
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« Reply #25 on: June 15, 2012, 10:09:35 AM »
Thank you Lola and Big E,   I believe strongly that he will get through this and next year will be a better year with a bright future.  The surgeon is very positive.  I just wish the results would come in.  We all know how hard it is waiting.    We patients never have patience!

I appreciate the prayers and good thoughts.  Barry does know what an amazing group this is and is so glad I have a good place to go with my fear and worries.

Love you all.    :cuddle;
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Darthvadar
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« Reply #26 on: June 15, 2012, 12:57:56 PM »
Thinking of you, and hoping for the best news possible!...

Your other half's lucky to have you!...

Love and best wishes to you both.....

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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« Reply #27 on: June 15, 2012, 02:54:29 PM »
 :cuddle; :cuddle; :cuddle;
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MooseMom
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« Reply #28 on: June 16, 2012, 01:09:04 AM »
My prayers are with you and your lovely husband. :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
paris
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« Reply #29 on: June 18, 2012, 07:57:36 AM »
Today we see the surgeon.  He better have the results in.  This waiting is ridiculous.  Life is on hold until we know exactly what we are dealing with.   Good thoughts or prayers would be greatly appreciated today.   :cuddle;
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« Reply #30 on: June 18, 2012, 10:28:31 AM »
Thinking of you, Paris.

 :cuddle; :pray; :cuddle; :pray; :cuddle;

Aleta
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Carl transplanted with cadaveric kidney, February 3, 2011. :)
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« Reply #31 on: June 18, 2012, 11:15:54 AM »
All thoughts are with you.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
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MooseMom
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« Reply #32 on: June 18, 2012, 01:32:24 PM »
I am so eagerly awaiting some word from you about the appt with the doc.   :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
MooseMom
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« Reply #33 on: June 19, 2012, 07:41:16 PM »
Any news, Paris?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Darthvadar
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« Reply #34 on: June 20, 2012, 12:45:05 AM »
Well???...

What did the surgeon have to say???...

Darth.....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
paris
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« Reply #35 on: June 21, 2012, 10:23:21 AM »
Definately Lymphoma. Now they are testing a little more to make sure they have the exact type of t-cell (there are 50+ t-cell types of lymphoma)  Dr. thinks Barry's is one of the rarer types (of course!).  We see the oncologist July 12th.  We could have gone somewhere else and had an earlier appt,  but this dr. is the medical director of DukeRaleigh, his specialty is the blood cancers, Lymphoma, Lukemia and ... shoot.. forgot the other.... starts with an M.  He is the doctor that other oncologist send their hard to help patients.  We have done lots of research and feel like Barry is in good hands.  The best news is the new cancer center at DukeRaleigh is 10 minutes from our house.  That will make part of this easier.    For some reason, we are both staying very positive.  No big meltdowns yet.  (although inside, I want to scream).   

I have now gone from a 21 month post transplantee to a wife with a husband who has cancer (I said the "C" word"!)   I have to keep reminding myself that along the way, I need to take care of me too.  Not sure how this is going to work.   lol     

Did I mention that Barry has 1 brother and 2 sisters and they have all had cancer.  One sister died from it.  4 siblings with cancer -- I will never believe that somehow this doesn't pass on genetically.   BTY, His mother and grandmother both died from cancer.  And we have 2 children who have had good size tumors on the thyroid and paradid gland --- both benign.   Our kids are now very aware and concerned for their future. 

Thanks for asking, for your thoughts and prayers.  Another scary adventure for us.    :cuddle;
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cariad
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« Reply #36 on: June 21, 2012, 10:44:15 AM »
Oh, Paris! It's all so unfair. I'm so sorry.

I am glad you at least have this place behind you, all the way, anytime you need us.

You've found a great doctor and are doing what you can. I am thinking of you and hoping that this cancer soon comes to see that it has picked the wrong fight this time.

Huge hugs.  :cuddle; :cuddle; :cuddle; :cuddle; :cuddle;
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willowtreewren
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« Reply #37 on: June 21, 2012, 11:13:20 AM »
I have been worrying, Paris.

Thanks for the up-date!  :grouphug;

It sounds like Barry is in good hands (including yours!)

I will keep both of you in my thoughts.

 :cuddle;

Aleta
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Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Darthvadar
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« Reply #38 on: June 21, 2012, 11:28:53 AM »
Hi Paris...

Is the 'M' you're thinking of Myeloma???...

Good that your hubby appears to be in good hands... I've great confidence in you and him getting through this with flying colours... Sooner he begins treatment, the better... At least you'll feel like you're 'doing something', rather than waiting and worrying...

Wishing you, your hubby and all the family all the very best...

Love...

Darth...

P.S.... Of course we'll ask about things, and we'll be here for you... Isn't that what friends are for!.....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
paris
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« Reply #39 on: June 21, 2012, 01:33:23 PM »
Dear cariad, Willowtree and Darth - The three of you brought tears.   Each of you are dealing with mulitple problems yourself, yet you took time to encourage me.  Thank you.  Where else could I get this kind of support?   You are all precious to me.  We will all get through our situations;  leaning on each other.    Thank you for letting me share my fears.     :cuddle;
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MooseMom
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« Reply #40 on: June 21, 2012, 01:33:45 PM »
OK, so I've been doing some research.  I am assuming that Barry's diagnosis is Non-Hodgkin's lymphoma?  And yes, there does seem to be an awful lot of different kinds of NHL depending upon which kinds of cells are reproducing abnormally.  T-cell lymphomas make up the minority of NHL, it seems.

Paris, you already know all about living with chronic disease.  Lymphomas can be managed and even cured.  I am eager to hear more information after your appt on 12 July.  We are all here for you just as we have been for these many years. :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
amanda100wilson
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« Reply #41 on: June 21, 2012, 01:53:36 PM »
Paris, I was hoping for good news for you and your husband.  I am sorry to hear that is not so.  However, I am glad to hear that you are in capable hands when it comes  to the medical care.
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ESRD 22 years
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  -Transplant 10 years
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Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
kitkatz
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« Reply #42 on: June 21, 2012, 01:56:31 PM »
Prayers have been said for you and your hubby.

Take care of yourself while this all is happening.
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Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #43 on: June 21, 2012, 03:45:13 PM »
"I said the "C" word"!" -> Facing it is the first BIG step.  :clap;
"I need to take care of me too" -> Just remember transplant is only a treatment, given a good treatment but you are still not 100% healthy, so take care yourself is a must. If you are not well, how can you care for others?!

In the other thread, we were discussing about Cancer vs kindy failure, it seems kind of silly now. Being sick suck, no matter which it is.

Thanks for the update. Will continue keep you in my prayer.

- Rose
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April 2011 start with Hemo
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galvo
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« Reply #44 on: June 21, 2012, 03:52:10 PM »
We're with you, buddy!
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Galvo
lmunchkin
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« Reply #45 on: June 21, 2012, 06:31:07 PM »
Man, Paris, you are one tough Lady.  Know that your "Whole" family is being Lifted Up! We are all here for you dear!  Anything we can do, say the word!!

God Bless You,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
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« Reply #46 on: June 21, 2012, 11:05:40 PM »
Paris,  I am sorry the news was not better, but relieved that you are so close to DukeRaleigh.  As you said they are the go-to place for this type of cancer.  I have to agree with Darth about starting treatment, waiting is so much more stressful than knowing and doing.  Please remember to take time for yourself to de-stress.  I know you and Barry will continue to get through this trial taking care of each other..

 :cuddle; :pray;
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monrein
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« Reply #47 on: June 22, 2012, 04:58:05 AM »
Paris, I'm so sad that you're all going through yet another stress filled situation...so unfair it hurts.  PLease know how often I'm thinking of you.   :cuddle; :grouphug; :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Big E
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« Reply #48 on: June 22, 2012, 08:56:55 AM »
 :cuddle;
Paris, I wish I could do something to help, but all I can do is to say how sorry I am and hope for the best. Too bad this has to happen to nice people.  At least your hubby is getting excellent medical care.
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PKD diagnosed June 1996
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cariad
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« Reply #49 on: June 23, 2012, 02:42:43 PM »
Quote from: paris on June 21, 2012, 01:33:23 PM
Dear cariad, Willowtree and Darth - The three of you brought tears.   Each of you are dealing with mulitple problems yourself, yet you took time to encourage me.  Thank you.  Where else could I get this kind of support?   You are all precious to me.  We will all get through our situations;  leaning on each other.    Thank you for letting me share my fears.     :cuddle;

Ha, this is what I was thinking when you replied to my thread about Gwyn's job loss.  :) You are in a state of crisis, yet took the time to support me in this never ending soap opera of mine. Thank you for being there for me, and I will continue to be on your cheerleading squad as long as I'm allowed. Barry has a true fighter on his side. He's seen you face down kidney failure and hopefully will take a page from your book as he embarks upon this battle.  :grouphug; :grouphug; :grouphug;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
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